Mike Matters

[Muscle Owl @MuscleOwl]

This weekend we’re at the @ActionDuchenne Conference. Stay tuned for updates on here and through Action Duchenne on Facebook!

[Mike Matters @MikeMattersDMD]

Mike Matters at #ADConf17

[IPPOSI @IPPOSI]

.@AvrilKennan of @MRCGie - patients are experts too and they need to be involved in the medicines reimbursement process #access2meds

[Muscle Owl @MuscleOwl]

Last year Michael Young campaigned to get #Translarna in Scotland. This year he wants it in Ireland!
https://t.co/IG4UiOvHUJ #duchenne

[Louise O’Reilly TD for Dublin Fingal West @loreillysf]

At #Translarna briefing in @OireachtasNews We need 2 catch up with the rest of Europe Maith thú @conwaywalsh 4 facilitating

[EURORDIS-Rare Diseases Europe @eurordis]

New: #ParliamentAdvocate4Rare, a network of EU & national members of parliament advocating for #raredisease https://t.co/MyrhZjcDFI

[Muscle Owl @MuscleOwl]

This week @MDUK_News launched their new #FastTrack campaign for faster access to treatments.
Sign the petition here https://t.co/Cf4oD1QKH3

[Mike Matters @MikeMattersDMD]

#standwithlewis #Translarna Lewis and his family on TV tonight asking for medicine that is available in 22 European countries. https://t.co/tFpaXhMEKN

[Mike Matters @MikeMattersDMD]

#standwithlewis

[Mike Matters @MikeMattersDMD]

@theSNP @MikeMattersDMD Michael Young (age11) is still walking and living life to the full after the SNP ensured he got Translarna, a life enhancing medicine. #SNP17

[Help4harry @Help4harrynow]

Fellow tweeters pls sign this so the boys Ireland can start receiving #Translarna every day counts, they need this drug now thank you 💙 https://t.co/w7eVI2vIa1

[Mike Matters @MikeMattersDMD]

Please sign this petition. Little Lewis Harte is being denied Translarna. He is five years old and desperately needs this life enhancing medicine as quickly as possible. https://t.co/VkSPNYlEvV

[Mike Matters @MikeMattersDMD]

Managed Access Programme announced for Exondys51 by Sarepta Therapeutics. Suitable for deletions amenable to exon 51
https://t.co/96MpoWLazE

[RitchieH @BacktotheEU]

Progress for VISION_DMD as trial sites expand internationally @BushbyKate @Vision_DMD @EU_H2020 #DMD #RD @findacure @trinds_nmd https://t.co/XIhcvmnrJI

[Mike Matters @MikeMattersDMD]

Cross Party meeting for Muscular Dystrophy on Wednesday focused on Adult Services @markichapman @h0pefulmummy @ActionDuchenne @jackiebmsp

[Rare Disease Day @rarediseaseday]

What will you be doing for #RareDiseaseDay tomorrow?

[Michael Matheson @MathesonMichael]

I've volunteered a few hours each month. So, if you are interested in helping get in touch with Fraser 👇 https://t.co/4DbhOVyFuh

[Dean Widd @Deanwidd]

Great to see so much support for today's @MDUK_News family fund Defeating Duchenne Kerr's Cause with #charity #football tournament

[Mike Matters @MikeMattersDMD]

Please support Duchenne families in Ireland
Here’s the link:
https://t.co/VqXbjHbC1X

[Help4harry @Help4harrynow]

Our boy is home 22 nights in hospital taken off traction now has a cast on
#brokenfemursucks #braveboy #beatduchenne #stillsmiling