Mildly Scrambled

Optimistic tea obsessive and reluctant multiple sclerosis veteran.
Blogging a soundtrack for this pesky disease. #MS

[Mildly Scrambled @MildlyScrambled]

17 years with #MS, 7 things I've learned:
* persevere
* but know when to rest
* swearing is good
* but laughter is better
* be realistic
* but never lose hope
* high heels are safest when seated

Find support from @mssocietyuk @MSTrust @shiftms

[Mildly Scrambled @MildlyScrambled]

19 years with #MS. Top 9 annoyances:

* "You look well"
* Invisible isn't imaginary
* Cogfog
* Endless health admin
* DMT roulette
* Effing fatigue, and
* "I'm tired too"
* Guilt (work/relationship/family)
* Motivational bloody quotes

Support from @mssocietyuk @MSTrust @shiftms

[Mildly Scrambled @MildlyScrambled]

Would like to wholeheartedly thank the person who thought to put the angled mirror into the face cage for MRIs.
Gave me a perfect view of the lovely radiographer having (what he thought was) a secret bop to my specially-selected scanner CD. #MS

[Mildly Scrambled @MildlyScrambled]

Had a completely unexpected call today from someone high up in the organisation - just calling to check I was looking after my #MS self. Think he may have seen my harassed face in too many Teams meetings.
Entirely lifted a crappy day. And mattered to me more than he knew.

[Larry the Cat @Number10cat]

Classic kitten trick: send out the smallest, cutest one to sucker someone in and then… BAM reveal that they need to adopt all 12 of ya. Works every time.

[Mildly Scrambled @MildlyScrambled]

This 90s indie kid had a great time at #BlackCountryBeats now on at the brilliant @WolvArtGallery
Memorabilia, music, monkey (cheeky) and a jukebox that only plays Slade - what's not to luv?

[Mildly Scrambled @MildlyScrambled]

It's #MSAwarenessWeek.
And, among far more serious issues, I'm aware of all those heels I can no longer wear - unless I want to go A over T into a rose bush.
But I love them and I miss them and I keep them safe, waiting for a little balance miracle.
My beautiful dignity killers.

[Anna Severwright @AnnaSeverwright]

Just heard on the radio 'I don't think we'll ever see the Queen in a wheelchair' she wouldn't give in. Can we all (including the media) stop this idea that using a wheelchair is giving in or so awful that we couldn't possibly see a 95 year old use one if she needed.

[Mildly Scrambled @MildlyScrambled]

Stuff that's hard to do with #MS hands:
- type without fcuk ups
- laces, buttons, pens, cutlery
- negotiate tampons without a Kill Bill-style bloodbath
- apply passable eyeliner
- feel anything (other than frustration)

Hand exercises from @MSTrust👉 https://t.co/lCpFOGAc8e

[Mildly Scrambled @MildlyScrambled]

#MS is when three bouts of shingles and a Covid infection - but no relapses - seems like a healthy year.

[Mildly Scrambled @MildlyScrambled]

@SparkleTCat1 What's your favourite feline-inspired song Sparkle?
The Love Cats?
What's New Pussycat?
Phenomenal Cat?
Cat's in the Cradle?
Year of the Cat?
My Cat's Name is Maceo?
It Wasn't Me?
🐾🐾🐾🐾🐾🐾🐾🐾

[Mildly Scrambled @MildlyScrambled]

@JoannaF0202 🤭Oh no, sorry about that!

[Mildly Scrambled @MildlyScrambled]

Hurrah! Pancake Day.
Or, as I like to think of it, Edible MRI Day.
#MS #PancakeDay

[Mildly Scrambled @MildlyScrambled]

Sunday sorted.

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@lougalczynski @MiffyJG Oh no!! Poor wee fluff bundle. Hope the birthday drip did it's job and she's feeling brighter x

[Mildly Scrambled @MildlyScrambled]

18 years with #MS, 8 things I've learned:
* get advice, but
* trust yourself
* learn all you can, but
* don't become your illness
* fight if needed, but
* it's ok to back down
* the options get fewer, but
* the choice is still yours

Help👉@mssocietyuk @MSTrust @shiftms

[Mildly Scrambled @MildlyScrambled]

@SparkleTCat1 Evening Sparkle. Looking snuggly😺

[Mildly Scrambled @MildlyScrambled]

@lougalczynski @hummingbbakery Happy birthday me dear🎂🎉 xx

[𝐓𝐢𝐟𝐟𝐚𝐧𝐲 𝐊𝐚𝐢𝐫𝐨𝐬 @TiffanyKairos]

Being diagnosed with a chronic illness is like being handed a full time job that you never applied for and can never quit.

[Mildly Scrambled @MildlyScrambled]

@shellfergy Yeah, I thought so too, but apparently not. Faintly grumpy about that tbh🙄