Monika Jones

Pediatric epilepsy surgery advocate | love my husband, boys, and dogs | daughter of immigrants 🇪🇸🇵🇪 | radical centrist | @PESAlliance founder | my tweets

[Monika Jones @MonikaJonesJD]

Love this. My son goes shark fishing with his friends on the weekends and instead of freaking out I’m mostly ok with it until someone in their crew thinks they need a bigger boat.

[Let Grow @LetGrowOrg]

One flyer. Sixty houses. Twenty kids.
Now Friday nights in Bend, Oregon are full of capture the flag and laughter again.
📍It all started with boredom — and a spark of independence.
Read Guthrie’s story + get the free Let Grow Community Toolkit: https://t.co/q97WnmD51R #childhood

[Monika Jones @MonikaJonesJD]

Really excited about our new awareness campaign. Parents deserve to know the life-saving facts about epilepsy surgery!

[Pediatric Epilepsy Surgery Alliance @PESAlliance]

November is Epilepsy Awareness Month! We've launched a bold, new awareness campaign to help parents learn about the life-saving nature of epilepsy surgery. Join us and spread the word!

https://t.co/McoFYBZ7VY

[Monika Jones @MonikaJonesJD]

@GMI_Canada @FarbodNiazi Wow - what a list of authors! 😍

[Jonathan Haidt @JonHaidt]

Brain rot is real, hitting adults too.
Two recent articles show that....

1) When our phones got smart, we got dumber:
https://t.co/gPGrShE2dk

2) When people are randomly assigned to make their smartphones dumb, they get smarter
https://t.co/49dL1l2YxM

[Monika Jones @MonikaJonesJD]

@TracyDixonSalaz My dear friend I am absolutely devastated for you. Holding you so damn close to my heart.

[Monika Jones @MonikaJonesJD]

Deeply disturbing. We all need to put down our phones.

[Jonathan Haidt @JonHaidt]

A stunning essay in the FT on the international decline in the ability to read, reason, focus, and learn new things.
It began or accelerated in the early 2010s.
It's hitting teens AND adults.
Self-report and objective scores.
by @jburnmurdoch

https://t.co/gPGrShE2dk

[Monika Jones @MonikaJonesJD]

Grateful our home is still standing. Most of our community is destroyed.

[Chris Cristi @abc7chriscristi]

THIS is the closest aerial view I’ve been able to capture yet of almost the entire town of Altadena, CA. There are no words… #EatonFire

[Monika Jones @MonikaJonesJD]

I remember feeling like I was drowning in a dark, cold, and open sea.

[Pediatric Epilepsy Surgery Alliance @PESAlliance]

Great research from our friend @SickKidsNews Mary Lou Smith PhD and @PukaKlajdi reveals distinct mental health trajectories for caregivers—especially around epilepsy surgery. (Psst - moms are not okay.)
🔗 Full study https://t.co/l1ISVSer3C
1/🧵

[Monika Jones @MonikaJonesJD]

@la_dorkout Was an undergrad at @UCLA ‘85-‘89 and waited tables at Baxter’s. It was an absolute blast.

[Monika Jones @MonikaJonesJD]

@jshauptman @PhxChildrens @TheASPN @CNS_Update @AANSNeuro @AANSNeurosurg @PedsSection 😳

[Monika Jones @MonikaJonesJD]

@jshauptman @PhxChildrens @barrowpch @TheASPN @PedsSection @CNS_Update @AANSNeuro @AANSNeurosurg @BarrowNeuro @PESAlliance @epilepsysociety @CureEpilepsy @epilepsyaction Grateful on behalf of the HME community that you treat these children at a young age. So many parents are told to wait until the child is much older. Don’t forget to tell parents about how we can support them! https://t.co/BFmEXb3UyQ

[Monika Jones @MonikaJonesJD]

Our parent support navigator program is growing! So exciting to see different at syndromes represented.

[Pediatric Epilepsy Surgery Alliance @PESAlliance]

Parents considering @livanova VNS or @neuropace RNS for seizures caused by Doose or Lennox Gastaut syndromes can connect with Mandy Graham, one of our trained parent support navigators.

Learn about Mandy's journey: https://t.co/8fZBR4Fdqa

[Monika Jones @MonikaJonesJD]

Excited to present at #COPAA2025 ❤️

[COPAA @COPAA]

Beginner's Guide to Building the IEP
Presenters:
Monika Jones
Audrey Vernick
For additional information and to register now, please visit our website - https://t.co/w1ZSswquxq

#COPAA2025 #Irvine #CaliforniaLove #SPEDLaw #SPEDAdvocacy

[Lenny Rachitsky @lennysan]

"The only people who’ll remember you worked late are your kids.”

[Judy Chu @RepJudyChu]

Free mental health support and other forms of care are available for wildfire survivors and their loved ones.

Anyone feeling overwhelmed or in distress because of the fires can call or text the Disaster Distress Helpline 24/7 at 1-800-985-5990 to receive free crisis counseling.

[Los Angeles Times @latimes]

As Altadenans reel from the devastation, many wonder whether their rebuilt town will retain its soul.

https://t.co/NNuUb6WhSn

[Monika Jones @MonikaJonesJD]

@leslie_tarot It did not, but several houses in the street behind it did. The area is still blocked off.

[Monika Jones @MonikaJonesJD]

A neighbor recorded this as he evacuated our neighborhood. Our city is in ashes. We are stunned.

#AltadenaFire #EatonFire

[Monika Jones @MonikaJonesJD]

@Kcpitbull816 @unlimited_ls @TheFlagGuy_ I’m so sorry this is happening. Have you sent the school a Gebser letter? https://t.co/SmHB2Pan9I