Mads

LC, ME/CFS and more since 2022

[Mads @Moonplanter_]

@AutonomicBrad77 This is definitely what’s happening with me, but how do we treat it or even test for it?

[Mads @Moonplanter_]

@amiandlife I had this and it was dishydrotic eczema - I used a cream from the GP

[Mads @Moonplanter_]

@laramecfs @TweetingTimo I’d like to know too

[Christiansen @LeneCch]

Research team finds clear, coordinated protein alterations in cerebrospinal fluid of #MECFS patients, indicating active immune and nervous system dysregulation within the CNS
#Proteomics #Immunology #CSF
(pic: Professor Jonas Bergquist, Uppsala University)
https://t.co/rSNON1KI0o

[Mads @Moonplanter_]

Easter is British 😂😂😂😂

[Ant Middleton @antmiddleton]

HAPPY EASTER! A message to all in the UK. Enjoy our traditions and culture on such a British day! 🫡🇬🇧🏴󠁧󠁢󠁥󠁮󠁧󠁿

[Katy B @KatyBruce108]

All of this suffering, for #pwME & their families, could have been avoided, instead governments & @NHSuk are, far too frequently, still choosing to perpetuated it.
@wesstreeting @SharonHodgsonMP @tessamunt

#ME #MEAwareness #MedTwitter

[Dame Sa 🐝 3.5% @LongCovidHell]

@TeemuTagg In England, most NHS staff have made it their life’s mission to ignore Covid. They would rather let patients die - literally - than admit it’s still a problem.

[Dan Wyke 🦠➡️🧠🔥 @Dan_Wyke]

It's that time of the year again... Happy Easter, guys! 🐣🐇🍫

[Mads @Moonplanter_]

@PlanetEarth_HD @seanstidston Me too - it’s like any kind of digestion is intolerable. Sometimes it feels like it overloads my brain. Autonomic symptoms, so much.

[Mads @Moonplanter_]

What supps are we taking for glutamate issues which have actually worked for ppl? I hear GABA as a supplement doesn’t have much effect on the brain.

[Vipin M. Vashishtha @vipintukur]

Is post-COVID depression partly immune-driven?

➡️ New study finds distinct salivary IgA autoantibodies in patients with depressive symptoms after COVID-19.

➡️ Key finding:

-65 unique IgA autoantibodies detected
-Present only in post-COVID depression group
-Absent in healthy controls

➡️ These antibodies target human proteins linked to brain function and mood

👉 Suggests a possible autoimmune/neuroimmune mechanism behind symptoms. 1/

[Mads @Moonplanter_]

@JackHadfield14 What biomarkers will you look at? J think mast cells are huge for me too. But I got worse starting cromolyn a year ago, and have been more reactive ever since

[Mads @Moonplanter_]

@erikmoldwarrior @laramecfs Yes it’s pretty poor, all of the systems have negatives especially when it comes to this illness

[Mads @Moonplanter_]

@erikmoldwarrior @laramecfs It will be on NHS record that you have ME already

[Mads @Moonplanter_]

@TanteRos @wesstreeting You can also have really high b12 but be functionally low. NHS don’t test this .. (MMA and homocysteine)

[sean stidston @seanstidston]

Are there any u.k patients that are part of big uk support groups ? If email template was made for their M.P depicting the scandalous ignorance of covid and long covid. The lack of funding researching and trials. Do you think this would be worth doing. I know it’s done before.

[Mads @Moonplanter_]

@DarainChains @JasonS1269 How were you dx with the compressions?

[Mads @Moonplanter_]

Idk what to do. reduced my low dose lamotrigine-it was making my structural dissociation feel worse (I have cPTSD) & I felt like I was observing my mind all the time. But a tiny decrease I have brain overload & can’t even think, but I feel more like me. #mecfs #longcovid

[Dan Wyke 🦠➡️🧠🔥 @Dan_Wyke]

When a coroner warns @wesstreeting "there will be further deaths from ME unless action is taken" one expects the Health Secretary to take action. If more deaths occur, and the minister hasn't done so, he deserves to be charged with gross negligence.
https://t.co/kKg9BS07KO

[Mads @Moonplanter_]

@anna_reise87030 I am exactly the same as you. My daughter started school in September (she’s 4) it’s a constant worry