A new analysis from @CAPDisability highlights the urgent need for disability and reproductive rights and equity organizations to work together amid growing attacks on bodily autonomy and access to care.
https://t.co/xBghJnB0Z3
Repeatedly getting an avoidable virus that does systematic damage to the body and raises your chances of becoming disabled every single time you’re infected
Viruses like SARS-CoV-2 don’t need to kill fast to be catastrophic.
The acute phase is often survivable.
But it leaves behind microvascular scars, immune dysfunction, and chronic inflammation.
We are already seeing elevated risks of diabetes, cardiovascular events, strokes, and neurodegeneration years after infection.
Things I (a chronically ill person) would love to see normalized:
•Fragrance free spaces (especially medical ones)
•Air purifiers in buildings (especially medical ones)
•Masking normalized—people can mask without being bothered, and it being more popular to mask AT LEAST in medical settings and during flu season
•Staying home when sick, especially with fever. (Even from work, school, or fun plans)
•Hand washing/sanitizing and covering your mouth again. Yes, people have legitimately gone backwards on this…it was normalized before.
What would you add or change?
The CDC tried to remove remote work as an accommodation for disabled people.
Working from home is a game changer when you’re chronically ill.
Various unions fought back. There was public outcry.
The CDC has reversed their decision.
This is disability solidarity!
Thanking Violet Affleck for her powerful advocacy and hearing her speak was the highlight of my UN trip.
"I am furious on their behalf... it is a neglect of the highest order to look children in the eyes and say, 'We knew how to protect you, and we didn't do it.'"
Leadership
Wanting to not catch a virus that has killed 40 million and caused long term disability in 400 million people already is not health anxiety.
Pretending that virus doesn't exist:
That's health anxiety.
Just a reminder before the "big announcement."
Autism was differentiated from schizophrenia back in 1911. Tylenol was created in 1955.
Anyone trying to tell you that Tylenol causes autism is entirely full of shit.
Each covid infection destroys grey matter 10x faster than normal aging.
That means it ages our brains at a TENFOLD increase.
Kids are catching it multiple times a year.
They’ll grow up to resent the adults who failed them as kids.
It’s been 5 years. Learn the fuck up!
Just heard a psychiatrist on NPR argue that remote work increases social isolation and, honestly, fuck that.
Stop assuming that work being a primary source of socialization is in any way appropriate or healthy.
Your boss doesn’t love you.
Your coworkers are not your community.
If you died your office would just send out an email, at most do a brief office meeting, and then replace you and move on.
Work is not for socializing. It is a job.
And you know what people can do with the hour or two that they get back from not having to commute to work?
SPEND IT WITH FRIENDS AND FAMILY!
Requiring doctor’s notes every single time is classist and also ableist. Chronically ill employees and students can’t go to the doctor every time they feel awful, and healthcare isn’t cheap.
The problem with medical records is that they are doctor centered.
Every note in a patients chart is from the doctor’s perspective.
Patients need a space to document their side of the story on how the appointment went.
We need notes that reflect both voices.
expecting a sick/disabled person push past their limits, go w/o accommodations, sacrifice their health/safety for you, is abusive. not believing them, setting expectations they cannot meet &then punishing them, holding them to higher standards than you hold yourself, is abusive.
When a top CDC scientist resigns and cites eugenicist rhetoric from federal health agencies as a main reason, everyone should absolutely be paying attention.
“The lockdown had so many negative effects on people’s mental health”
Imagine how disabled people feel after five years of not being able to exist in public because none of you care about us
Combatting COVID should be an absolute slam dunk for "the left."
In only 5 years, COVID has killed nearly 10 million people and disabled ~half a billion.
COVID disproportionately harms the most marginalized.
We know EXACTLY how to stop COVID from spreading.