@DonKel5757@MichaelOkun I originally designed it for a study in 2012 (because none existed that could do the job), but many other people have helped bring it to where it is now.
@MichaelOkun@MayoClinic@MichaelOkun Sanity! And according to our recent study, people supplementing w homocysteine-lowering vits reported fewer symptoms over time. https://t.co/48rTPErMFD
In only a few weeks, the Parkinson Symptom Tracking App has users from 101 different countries! The capacity to assess and deliver healthcare globally is mind-blowing. #parkinsons#globalhealth
The Parkinson Symptom Tracking (PRO-PD) App allows PwP to generate reports to share with their doctors. Please tell us what you like/ don't like about the report - we get one round of edits! (https://t.co/4xMeF2LE3S)
#parkinson#Parkinsonsdisease#Parkinsons
Our new paper showing mitochondrial dysfunction (low NAD+ and ATP) is associated with worse PD symptoms. This is especially exciting in light of the NADPARK /NOPARK studies, currently attempting to boost NAD+ and ATP. https://t.co/qqnJAS2tMM
Anonymous gift-giving is next level. This person knows me so well and I don’t know them at all- that experience is a gift upon a gift. Thank you, Friend
[2/3] Get practical tips for healthy eating and answers to your pressing questions on the topic in @MichaelJFoxOrg's latest podcast, Food for Thought: Answering Your Questions on Diet, Brain Health and Parkinson's.
@SYMBYXbiome This was only an attempt to see where the fish are biting. We asked, “which if these have you used consistently for the past 6 mo?” It is possible that something not shown to be effective here may help w symptoms, but not overall progression.
Over-the-counter supplements associated with fewer Parkinson’s symptoms over time. Thanks to the https://t.co/X0lzpE1d7H participants. Link to full paper here: https://t.co/6TPqNtl9No
@LevitanAndrew Anecdotes are case reports. This is a cohort study of 1000+ people w PD. Not all situations are appropriate for double-blind RCTs, eg tobacco->lung cancer, DES—> birth defects, seatbelts, etc. meaningful information can come from well-designed observational studies.
@djclairemj @elegantfowl@purposeful_pd It’s a geographical thing, like iodine, not a diet thing. Until there is standardized litithiation of depleted water supplies, consider testing and fortification. 5-20 mg/d, not the 900-2000mg/d used in psychiatry.
@djclairemj @elegantfowl@purposeful_pd Lithium is an essential trace mineral, many folks are deficient, and the consequences are neurological/psychological. Pharmacological dosing has fallen out of favor lately, while folks are waking up to the need for physiological doses.
@ThePeterMartens The lower the PRO-PD score, the better. You can get your own PRO-PD score and see how your score compares to others with the free Parkinson Symptom Tracking app (https://t.co/iV5sptewbO)
@purposeful_pd @WeCanThrivePD All data were adjusted for years since diagnosis, so we are accounting for change over time. The longitudinal analysis is underway and, at least for food, doesn’t change much.