Nef Moncur

[ATHLOS @athlos]

"London HAD to be the first place we would go global."

We kicked off our ATHLOS London launch week by gathering some of the most impactful movers and shakers in the city.

@alexisohanian

[Nef Moncur @Nefitieri]

@alexisohanian Wild!

[Alexis Ohanian 🗽 @alexisohanian]

NEVER DONE! This has been a hard secret to keep but when I became an owner in the club and spoke to the players, playing at Stamford Bridge was high on their list of things they wanted and the team at @ChelseaFCW got it done!

https://t.co/BpxCoPPNHy

[Nef Moncur @Nefitieri]

@alexisohanian @CocoGauff Exactly! The media gives black women no breaks or grace. In the words of McEnroe, whose explosive rants were able to live equally alongside his on the court brilliance “You cannot be serious!”

[Nef Moncur @Nefitieri]

Treating women’s sports like a real business isn’t radical — it’s overdue.
Standards change outcomes. And outcomes change everything.

[Alexis Ohanian 🗽 @alexisohanian]

Thanks for the cover, Inc Magazine — we sat down and talked a bit more about how women's sports become such a big part of my legacy so quickly in the last 5 years since leaving Reddit. NWSL owners couldn't treat their teams like a charity (or worse) ever again.

[EBONY @EBONY]

Known as the Grandmother of Juneteenth, Opal Lee is being honored with her own Barbie in Mattel’s Inspiring Women collection, celebrating decades of work that helped make Juneteenth a federal holiday in 2021.

At 89, Lee walked from Fort Worth to Washington, D.C., covering 2.5 miles a day to symbolize the delayed freedom of enslaved Black people in Texas. That walk, and years of organizing, changed history. In 2024, she received the Presidential Medal of Freedom.

This Barbie reflects that legacy while honoring a living elder whose impact continues to shape Black history today. 🖤

[Barack Obama @BarackObama]

The killing of Alex Pretti is a heartbreaking tragedy. It should also be a wake-up call to every American, regardless of party, that many of our core values as a nation are increasingly under assault.

[Billie Jean King @BillieJeanKing]

Congratulations to @_ajawilson22, TIME's 2025 Athlete of the Year!

🏀 MVP of the WNBA Finals
🏀 3rd WNBA Title
🏀 3rd WNBA Defensive Player of the Year
🏀 4th WNBA MVP

[Serena Williams @serenawilliams]

On this episode, @venuseswilliams and I are joined by @itsgabbyt, @melissajanae21 and @itsshacarri at the 2nd annual @athlos NYC event to explore the growth of women's sports and share their unique journeys on the way to greatness.

[ATHLOS @athlos]

NYC's hottest club was trackside at ATHLOS 💫

[ATHLOS @athlos]

Shelly deserves only the best so we’re giving it to her ❤️🙌

[Alexis Ohanian 🗽 @alexisohanian]

Thank you @CBSMornings for having me back on with the GREAT @realshellyannfp to talk about her crowning at our ATHLOS NYC meet this Friday (and our big plans for the league next year-building the F1 of Track & Field)

[ATHLOS @athlos]

Don't miss out on the most entertaining night of Track & Field & Ciara!

Get your tickets for ATHLOS NYC now and join us this Friday: https://t.co/a6E9HacFJ1

[ATHLOS @athlos]

ATHLOS LONG JUMP LANDS AT TIMES SQUARE 🤩

History will be made October 9 as we bring the long jump competition to Times Square for the first time ever. Olympic stars like @tar___ruh, @Jasmineemoo, @strongbelieverQ and more will soar beneath the lights of Broadway.

This isn’t just a meet. It’s the main event, with Track & Field rightfully taking center stage.

[Nef Moncur @Nefitieri]

Let’s go! @athlos: 10/9 LONG JUMP in TIMES SQUARE + 10/10 join the LJ finalists and fastest women on earth at ICAHN STADIUM #Athlos #TrackAndField

[Alexis Ohanian 🗽 @alexisohanian]

Were not just back— @athlos is taking over Times Square this year 💪 Long Jump in TIMES SQUARE OCT 9. Then join us and the LJ finalists OCT 10 at ICAHN. Get tickets now while you can!

[Alexis Ohanian 🗽 @alexisohanian]

I’ve bet big on women’s sports before—and I’m doing it again.

I'm proud to announce that I'm joining @ChelseaFCW as an investor and board member. I'm honored for the chance to help this iconic club become America's favorite @BarclaysWSL team and much, much more.

[Nef Moncur @Nefitieri]

Let’s go! See you 10/10 in NYC at Icahn! 🔥 #athlos #trackandfield #winning

[CITIUS MAG @CitiusMag]

📅 BREAKING NEWS: @athlos, the hit women’s-only track and field meet, will return to Icahn Stadium in New York City on October 10, 2025.

The high-energy event hopes to build on its inaugural success with even bigger competition and entertainment. It has received early commitments for its 2025 meet from Olympic gold medalists @itsgabbyt , @brittanyshamere, @masai_russell, @Marileidy_P and @JCamachoQuinn.

Last year, ATHLOS made an instant impact on the track calendar and attracted top talent by offering the largest prize purse ever for a women’s-only track meet. $663,000 was awarded in prize money across 35 athletes – with $60,000 going to the winner of each race.

📰 Read more here: https://t.co/M1oeKv4EU2

[ATHLOS @athlos]

A lot to unpack here… @trackqueenlex is a renowned actress, she has new hair color coming in 2025, AND we’re hoping to see the American record break 👀

[Nef Moncur @Nefitieri]

@alexisohanian @jasonwhitlock 🚑

[Nef Moncur @Nefitieri]

Congratulations on this meaningful launch! Rooting for you all - we love you Ari. 💛

[Cristina Apple Georgoulakis @cristina_laki]

When life hands you a diagnosis—we show up swinging.

In January 2023, we got the news that our son, Ari, has a rare genetic disease—a progressive condition with no cure—and I stopped breathing.

Here’s our story:

2020: I became a mamá at the height of the pandemic. My heart grew three sizes.

2021: Our Pandemic bubble.

Early signs that something wasn’t quite right emerged, but doctors dismissed them over glitchy Zoom calls and rare, short hospital visits.

2022: A year of joy (Zoe was born), but our concerns wouldn’t go away.

At two years old, Ari still wasn’t walking. Endless Google rabbit holes (pre-ChatGPT!) gave us no answers.

Instead, we got this from doctors:

“It’s a delay, not a disability.”
“You probably carried him too much; he’ll catch up.”
“Kids outgrow physical developmental delays.”

They even urged us to stop searching:
“Only 20% of parents get answers. Is this how you want to spend your time?”

Our answer? YES.

Without a diagnosis, Ari couldn’t access the medical support he needed—or the community we needed.

So, we fought:

Switched healthcare providers.
Waited 5–10 months to see specialists.
Paid out of pocket for genetic testing—against advice.

January 23, 2023: The Call.

The geneticist who had discouraged us from testing said: “I’m sorry. We found something…Charcot-Marie-Tooth.”

All we heard was “Shark Tooth.” At first, I thought she was joking. It wasn’t.

Charcot-Marie-Tooth (CMT) Type 1A affects 1 in 5,000 births and is 99% hereditary. Ari is part of the rare 1% of spontaneous cases caused by a de-novo mutation—one of just 70,000 cases in the U.S.

Validation and diagnosis at last. Acceptance was instant—but the weight was crushing. My body responded with dissociation and panic attacks. I struggled to simply breathe.

We had full-time jobs that helped us cover endless out-of-pocket costs (no diagnosis = no healthcare coverage). But even that wasn’t enough. Advocating for Ari (a polite way of saying fighting like hell) wasn’t possible while showing up for work.

Something had to give.

Historically, I’ve been the one to step back—to take the supporting role. I was ready to do it again, but the thought of leaving a job I loved felt like one more loss. This time, my husband, David, wouldn’t let me.

He stepped up for our family by stepping down from his role as CRO.

2024: The Uncoiling.

Testing continues to rule out other diseases. Slowly, I untangled from dissociation and integrated this new reality. What once felt unbearable transformed into quiet strength.

@davidcapple became a Board Member of the @CMTAssociation and dove into the science. What he learned inspired him to start @SharkToothBio to develop a treatment for Ari. Slowly, I found myself breathing again.

That breath came from time—and from the incredible people alongside us:

- Family, friends, and teachers who show up in big and small ways.

- Hazel, a wise 12-year-old girl with CMT: “If he wants to try something, even if you think he might get hurt, let him. Keeping him from finding his limits will hurt more than his condition.”

- Jonah Berger, who lives with CMT and works at the CMT Association, and answered our cold email hours after diagnosis to share his inspiring journey of “walking like a cowboy.”

But most of all, my husband. My partner. The one who gave me hope and air.

While we can’t choose what happens, we can choose how we show up—and we show up swinging.

If Ari can fall into the 1-in-a-million odds of developing a rare disease, I believe our family can beat the odds again. Shark Tooth Biotech is our fight—our hope—to find a treatment for the 1.6M people silently suffering from CMT without a treatment or a cure.

My ask:
If you feel compelled, check out @SharkToothBio and support our mission—or pass this on to someone who might resonate with our story. Every ripple matters 💜

While this is the post I never wanted to write—and feared most to share—I hope it makes anyone navigating “something” feel a little less lonely. It turns out that 8% of the general population has a "rare disease," up to 20% live with a disability—and everyone has “something.”e

2025: A chapter yet to be written. A journey toward light, community, and the path to the first treatment for CMT.