Nick Else

ME/POTS/FIBRO/PVFS - Mod/Admin for Millions Missing Voice Global #InstitutionalisedDiscrimination #MECFS #LongCovid

[Ali Max Erturk @erturklab]

Our new study shows that SARS-CoV-2 spike protein accumulates & persists in the body for years after infection, especially in the skull-meninges-brain axis, potentially driving long COVID. mRNA vaccines help but cannot stop it🔬🧠🦠🧵👇@cellhostmicrobe https://t.co/IEGx7HIrXf

[S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic @dysclinic]

I see... so we needed an expensive study to confirm what many children, teens, parents and physicians have been saying over the past 4 years. By the way, there was ALWAYS a small percentage of kids and teens who had post-acute infection syndromes: after mono, flu, Lyme, strep and other pathogens. 99% of patients never "faked it", it was never "in their mind", it was not "functional", it was not "anxiety or depression, and it was not "deconditioning." ‼️

#LongCovid #BrainHealth #NeuroTwitter #MedTwitter

[Physios For ME @PhysiosForME]

A year ago today (after much hard work) our book was published.
We've heard many accounts of people sharing it with their physios and positive feedback from lots of different professions.
You can find out all the info on the book at our blog post
https://t.co/dXExp72sjQ

[@richardvallee.bsky.social @richardvallee]

Why is medicine so damn obsessed with catching fake illness, to the point where they will fail to see millions of real illnesses?

Throwing babies out with the bathwater on an industrial scale. This is so obviously wrong.

[Valerie Eliot Smith @ValeriEliotSmit]

1/8 Short🧵following up on some obvious questions arising from my recent #MEmedia posts.
Note: my comments refer to the situation in the UK, altough other countries may have similar experiences...

[Nick Else @nick2155]

Make the Canada Disability Benefit (CDB) non-reportable for taxes so that recipients can keep more money in their pocket!

https://t.co/xRzbMQGIeb via @leadnowca

[Led By Donkeys @ByDonkeys]

We just dropped in on Liz Truss’s pro-Trump speaking tour with a remote-controlled lettuce banner. She didn’t find it funny. 🥬

[Carole Bruce @CaroleBruce17]

YouTube link to the whole of @swastrosarah and Dr Shepherd’s interview on @GMBritainITV. On #ME and how Maeve died due to malnutrition caused by severe ME Thanks to @ABrokenBattery
https://t.co/0KJdhFamKN

[davidtuller @davidtuller1]

Some thoughts on the inquest findngs from @ValeriEliotSmit: https://t.co/jKIlzVCCK8

[Valerie Eliot Smith @ValeriEliotSmit]

David and I take a first look at the conclusion of the inquest touching the life of Maeve Boothby O'Neill.
https://t.co/3gFrjJcn1K

[𝙹𝚘𝚎 𝚅𝚒𝚙𝚘𝚗𝚍 [email protected] @jvipondmd]

This isn't right, just, or humane. https://t.co/VjDtyO2XMK

[Timothy Caulfield @CaulfieldTim]

Yet ANOTHER much circulated antivaxx "study" withdrawn.

This is the nonsensical autopsy study used to (allegedly) support "died suddenly" BS.

Authors = antivaxx supplement salesmen supergroup.

Reasons for withdrawal:
- "Inappropriate design of methodology.
- Errors, misrepresentation, and lack of factual support for the conclusions.
- Failure to recognise and cite disconfirming evidence."

Ouch.

And NO, this is not "censorship" or "silencing." This is the academic process. Part of the marketplace of ideas.

https://t.co/HOjlp8myDQ cc @RetractionWatch @gorskon @picardonhealth @DrJenGunter

[The Breakdown @TheBreakdownAB]

From the DM's...

First surgeries and now eliminating entire programs?

Is the new Alberta Health Care slogan under smith simply "May the odds be ever in your favour"?

#abpoli #ableg #cdnpoli

[davidtuller @davidtuller1]

Thoughts on the Maeve Boothby O'Neill inquest from @DafoeWhitney and @NaomiWhitt: https://t.co/TBgpXNzDgd

[Royal Free 1955 @RFH1955]

The Daily Telegraph, UK

#maeveinquest #myalgice #MyalgicEncephalomyelitis #cfsme #mecfs

“ME patient had to fight NHS alongside her disease, says health minister”.

https://t.co/VCA8faK7Y5

[@richardvallee.bsky.social @richardvallee]

We did warn about it. As early as Spring of 2020. It's easy to find out.

We were dismissed.

It's absurd that so many amateurs can predict the future better than almost all experts in a major profession and it goes completely unacknowledged most of the time.

[Courtney Theriault @cspotweet]

If Alberta were to ban the COVID vaccine, it would be the first place in North America to do so.

Many have banned COVID vax mandates, but not even Florida has banned the actual vaccine.

[Courtney Theriault @cspotweet]

"Shocking, tears were streaming down my face as I was reading the email."

Hundreds of long-COVID sufferers affected as AHS abruptly closes outpatient programs #yeg #yyc #ableg

https://t.co/REGv4rSvrT

[Carole Bruce @CaroleBruce17]

Yesterday for the first time ever, because of a scary escalation of symptoms I had to ring 111. The person on the line had never heard of #ME only vaguely of #CFS after lengthy questioning she suggested I take Paracetamol. This is how the #NHS supports severe ME! 🥵
#SevereMEDay

[ME nieuws @mecvsnieuws]

#SevereMEAwarenessDay #pwME #MillionsMissing
The ME you don't see.
Anil, Margot, Vivian, Dascha, Ilse, Lara talk about living with Severe ME. Lou talks about his daughter Céline, who died last year. Watch their full stories/full video here: https://t.co/OiKc5gxW7e