Niloofer Narendran

Organizational Transformation and Change leader, g6pd deficient mom, aspiring Zumba Instructor & marathon runner, lover of life! All views are my own!

[Niloofer Narendran @NilooferN]

We are working towards making new borne screening for g6pdd a reality in 49 states in US given the recent success in New York State. If you are keen to make a difference and are passionate about this topic please register here: https://t.co/iXMbsIAZIs

[Niloofer Narendran @NilooferN]

@TheChiefNerd Ivermectin and Methylene Blue might be great for the majority, but not for the 4-5% of population that has the g6pd enzyme deficiency. If we test for the deficiency we can consider much more effective treatment strategies! New York State is one of the few that test for it!

[Niloofer Narendran @NilooferN]

G6PD Deficiency Foundation recently published a short video for parents whose babies have just been diagnosed with g6pd deficiency. New York State now mandates this test and a lot of hospitals are looking for content to help navigate this condition!

https://t.co/aNV6DB3ykE

[Niloofer Narendran @NilooferN]

Join us in the conversation around g6pd Deficiency!

[Niloofer Narendran @NilooferN]

Come over to booth 257 at the PAS conference in Washington DC, USA from the 28 April - 1 May to learn more about g6pd deficiency and the urgent need for testing for this condition!

[Niloofer Narendran @NilooferN]

@RayPanthaki @TEDTalks @TedxSoho So well said Ray! Loved the Ted Talk!

[Al Norman @SprawlBusters]

DLBN] ANGRY SHOUTS OF “SHAME” AS THE PLANNING BOARD IN WEST WINDSOR, NJ VOTED 6-2 LAST NIGHT TO APPROVE A MASSIVE DEVELOPMENT OF 7 HUGE WAREHOUSES. Developer would not reveal tenants. Residents of “family-friendly” town were outraged by the board’s vote:
https://t.co/RPZzkSmepf

[Niloofer Narendran @NilooferN]

@directcoops @mrMattSimon

@Kbratskeir

@AlexCKaufman

@elizabarclay.

@iamjohnoliver

@lizabio

[Amnesty International @amnesty]

You're not free when you can't decide your own future.

Abortion is a human right.

[Niloofer Narendran @NilooferN]

Opposition Grows to U.S. 1 Warehouse Project | Town Topics https://t.co/LNOfqySZ3A

[Direct Global/Direct Co-ops @directcoops]

[DLBN] CITIZENS IN WEST WINDSOR, NJ BATTLE A 653-ACRE PROJECT WITH 7 WAREHOUSES TOTALING 5.5 MILLION S.F. (96 football fields of buildings.) NJ is turning from the Garden State “to the Warehouse State.” Support “Stop the Trucks” here:
https://t.co/dSqHuDq4NA

[Niloofer Narendran @NilooferN]

@SprawlBusters Thank you Al. Warehouses do not belong in a residential layout! Being the largest Warehouse project in New Jersey on the largest contiguous parcel of undeveloped land in the EAST COAST I do not understand why the project of this size is not getting the attention it deserves!

[Niloofer Narendran @NilooferN]

@JeffTittel Mr Tittel. Saw your article on the west Windsor warehouse project in Dec 2020. The entire town has woken up to protest! We need your help and support. https://t.co/faSb9eVGUW. Just because our mayor is in the warehouse biz, we do not need to become west warehouse!

[Niloofer Narendran @NilooferN]

Just a reminder, the webinar starts in 19 minutes!

[Niloofer Narendran @NilooferN]

We are working towards making new borne screening for g6pdd a reality in 49 states in US given the recent success in New York State. If you are keen to make a difference and are passionate about this topic please register here: https://t.co/iXMbsIAZIs

[Niloofer Narendran @NilooferN]

@Kpamnani29 Kamal, that is so unfortunate to hear!

[Niloofer Narendran @NilooferN]

For those of you tweeting about g6pd deficient tests not being required during pregnancies, heres an interesting statistic. 1 in 5000 new borns in US have severe jaundice related to g6pdd. If left untreated leads to Kernicterus. i.e. brain damage. https://t.co/44nhEfpRu1

[Niloofer Narendran @NilooferN]

@DrEricDing @PPEtoheros What about inserting a filter in a cloth mask… how much would that help?

[Niloofer Narendran @NilooferN]

Finally a clinical study on g6pdd and Covid-19. Also a great relief for the g6pdd community! Is glucose-6-phosphatase dehydrogenase deficiency associated with severe outcomes in hospitalized COVID-19 patients? | Scientific Reports https://t.co/RaiHiMsKx8

[Niloofer Narendran @NilooferN]

@RayPanthaki @zurichfilmfest @PhilipBarantini @_vinette @Hesterruoff @bartruspoli @HannahWalters74 @cantabulous Great to see you Ray!

[Niloofer Narendran @NilooferN]

@Mdurukan3 There are a lot of posts on my Twitter feed on vaccines. Some governments like Singapore have given residents the green signal. There are webinars that suggest the benefits outweigh the risks. My son and I recently got the 1st dose of Pfizer vaccine on his hematologists advice.

[Niloofer Narendran @NilooferN]

Very interesting research on the impact of COVID-19 for the Sardinian population! “Another very interesting finding is the higher frequency of G6PDH enzyme deficiency in patients with severe symptoms, compared to pauci-symptomatic patients (25.6% vs 9.8%). https://t.co/ayj4CROvID