Norfolk MND Network

The official twitter feed for the Norfolk MND Care and Research Network

[Norfolk MND Network @NorfolkMND]

What a fantastic evening of networking and discussing advance care planning in MND. Great to share experiences and exchange ideas. Thanks @drcarolinebarry and Dani Ayre for leading us through this important area of practice

[Norfolk MND Network @NorfolkMND]

@mndassoc @mndcampaigns Thank you, Sue, for your unwavering commitment and tireless campaigning to support people with MND and their families. You are so appreciated.

[Norfolk MND Network @NorfolkMND]

Wow! What a busy week! Great steering group hearing about the wonderful new hospice build @PBHospice. Then meeting with super local volunteers @mndassoc @MNDANorWave. Followed by research meeting to plan our next steps @UEAResearch @FactorMND @EneidaMioshi

[Norfolk MND Network @NorfolkMND]

Congratulations to @drcarolinebarry our @NorfolkMND Co-director. Great news!

[Norfolk and Norwich University Hospitals @NNUH]

We are delighted to announce our first ever Clinical Associate Professors to boost our research profile.
Eight Consultants have been awarded the posts in translational and clinical medicine following funding from the UEA Medical School and NNUH.
https://t.co/VT6FxCkNLH

[Norfolk MND Network @NorfolkMND]

Thank you for our invite to speak about #mnd at today's neuroscience study day @nnuh. Great to be back in the room with you all @mndassoc @emmajlarner

[Norfolk MND Network @NorfolkMND]

We are pleased to now be offering the use of telehealth to support communication with our patients with #MND across the Norfolk network. Thanks to our colleagues in Sheffield for sharing this great service development @LiamKnox92 @DrEstherHobson @profcjmcdermott

[Norfolk MND Network @NorfolkMND]

Thank you @MNDANorWave for a lovely branch meeting today. Great to be with you all again. Good to hear about the positive campaigning on behalf of people living with with #mnd. Plus research update on understanding needs of family carers from @EneidaMioshi

[Norfolk MND Network @NorfolkMND]

@hocking_sian @SallyHughesMNDA @mndassoc @ejmayberry Thank you for an excellent day so far, highlighting that good psychological care is such a vital part of looking after patients and families well.

[Norfolk MND Network @NorfolkMND]

Care Centres and Care Networks funded by the MND Association improve the support and coordination of services for people living with #MND. Our work includes clinical research and everyone here @NorfolkMND is proud to be a part of a global effort that's #DrivingMNDResearch

[Norfolk MND Network @NorfolkMND]

@ratkorad @mndassoc @emmajlarner @ChelseaAnnRad @C_Crockford @c_mchutchison Well done Ratko. Knew you wouldn't let us down! Thank you for joining in the #icefoot92 challenge @mndassoc #TrustLen

[Norfolk MND Network @NorfolkMND]

We are forever grateful for the wonderful support of the @MNDANorWave volunteering team. So crucial to supporting people living with #mnd and their families. Please consider joining this great team if you can @mndassoc

[MNDANorwichWaveney @MNDANorWave]

Looking for a valuable way to spend your spare time? We are recruiting volunteer Association Visitor's across Norfolk and Waveney to provide friendship and support to people living with #MND.
For more info please visit our website: https://t.co/vxLHg08DCW ~MS

[Norfolk MND Network @NorfolkMND]

Yes, excited to share our experience of having a specialist respiratory physiotherapist as part of our MND team to improve symptom management and end of life care for our patients @emmajlarner @mndassoc @drcarolinebarry

[Caroline Barry @drcarolinebarry]

Looking forward to sharing the excellent work of @emmajlarner in helping our MND patients receive care in their own home and avoiding hospital admissions @NorfolkMND @mndassoc

[MND Association @mndassoc]

Over the next 5 years we want @GOVUK to invest £50 million into motor neurone disease (#MND) research.

You can help us. We're #United2EndMND.

Please add your name to our petition 👇 https://t.co/jjeXwCbJkf

[NNUH Physiotherapy Team @NNUHphysio]

🌟We’re very proud of our awesome band 5 Elle Boyce on the publication of her paper on the evidence of pain in ALS with recommendations for the tools that should be used be used to reduce the distressing impact of severe pain symptoms 🌟#ALS #phyisosinresearch

[Norfolk MND Network @NorfolkMND]

Care Centres and Care Networks funded by the MND Association improve the support and co-ordination of services for people living with #MND. Our work includes clinical research and everyone here at @NorfolkMND is proud to be part of a global effort that's #DrivingMNDResearch

[Richard Cave 🇺🇦 @speedoftrust27]

Learn how to voice bank your client (50 phrases=30 mins) and record up to 300 of their personal phrases in their natural voice at the same time same system. Join this free online session, bank your own voice & demo to patients Wed 24/March 10-12 email [email protected] pls RT