Catherine Hale

Disability research, coproduction and inclusion consultant. now over at [email protected] 🦋

[Catherine Hale @octoberpoppy]

Sign today if you are unhappy with Neil Riley’s position at the ME Association

https://t.co/8qFNkVkcJa

[Lizzy H @hopefullizzy]

Is anyone able to link me to the guidance that pwSevereME should be provided with a place to lay down for outpatient stuff please?

I can’t find it and the hospital are expecting me to sit up in my wheelchair for an hour before my MRI on Monday 🤦🏻‍♀️

Thank you

[Helen Barnard @Helen_Barnard]

Great piece from ⁦@BigIssue⁩ giving a fair assessment of government plans to ‘Gat Britain Working.’ Lots to welcome, but experts all point to the same gaps & risks - ⁦@Sumi_RabindraK⁩ ⁦@PollardTom⁩ ⁦@Jamestaylor2⁩ ⁦@Z2K_trust⁩ https://t.co/1fmp07W1DV

[Catherine Hale @octoberpoppy]

@Dan_Wyke Dan I’m so sorry, this is heartbreaking. A fear I live with myself. I dearly hope she recovers soon

[Helen Barnard @Helen_Barnard]

Here’s my take on the government’s rhetoric & the reality of their plans on work, disability & benefits: 🧵
1. This kind of rhetoric is damaging, even though the reality is rather different. The benefit system is a source of fear & shame for many…1/n https://t.co/ta8NCyt0gE

[BendyGirl @BendyGirl]

Some real positives here.

But no mention of the role of employers. What persuades them to hire disabled people, to make reasonable adjustments, provide part time, flexible roles?

Without employer support & incentives then this is all just wasted hot air.

[DPAC @Dis_PPL_Protest]

“No impact assessment, until & unless the legislation passes second reading. MPs will be engaging in one of their most totemic votes of this parliament without access to all the facts - & being asked to commit on partial information”

Thread 🧵

Vote No❌ https://t.co/Mc4cmzzLxE

[Catherine Hale @octoberpoppy]

@Paula_JKnight @MEAssociation Yes it’s that note of sarcasm and smug provocation at the start. Straight out of the Weasley playbook

[Catherine Hale @octoberpoppy]

My prediction: Neil Riley from the @MEAssociation has been Weasled. He will become the next Paul Garner writing in the media about the harassment he received from the militant ME brigade. His column sounds like it was scripted by the devil himself.

[Catherine Hale @octoberpoppy]

@CallMeMoNow @MEAssociation Right. If only he would retire…

[Catherine Hale @octoberpoppy]

The thing is, people with ME don’t “rest”, we merely recharge our battery enough to be able to do the next thing.

Riley’s experience of “resting” and then trying out activity speaks to a different illness than ME

[Naomi Harvey “PhD Witch” #WearAMask @Naomi_D_Harvey]

“Rest didn’t help me, I rested for years and only gained more function when I started moving more again”

This is a common opinion ion encountered amongst pwME who have seen some functional gains. I would argue however that this perspective comes from a logical fallacy.

[Catherine Hale @octoberpoppy]

@PhoebsBo @MEAssociation OMG I am so shocked to read this. Neil Riley must go immediately. This is outrageous. He clearly didn’t have PEM but a simpler form of chronic fatigue for which pushing through symptoms was helpful. Many people do. But this is not ME. Is Riley doing a Paul Garner on us?

[Catherine Hale @octoberpoppy]

It’s time to X-it!

I am trying out the 🦋 app

CatherineHale@ b l u e s k y social

Hoping to find my disability and ME/cfs communities ♥️

[Catherine Hale @octoberpoppy]

@StefBenstead @RattusMalumus @stephenctimms @scope @jrf_uk @BenBaumberg I was part of a coalition of DPOs and lived experience experts who bid for this project commissioned by JRF but they chose to partner with Scope

[Disability Wales @DisabilityWales]

Rhian Davies, DW’s Chief Executive said: 'This is devastating news which will further harm and demonise disabled claimants without affecting employment rates and moreover will mire the system in appeals.

[Catherine Hale @octoberpoppy]

@Z2K_trust Thanks for this update and for your great campaigning work. Please don’t forget to mention that disabled people are now being expected to work from home under cruel WCA changes, while labour market data clearly shows fully remote jobs barely exist

[Catherine Hale @octoberpoppy]

DWP WCA reforms: Reeves confirms Labour to follow through https://t.co/RWuiPiHAwH

[sarah @swastrosarah]

@Siobhan_ODwyer Caring for #VerySevereME means not being able to go anywhere, ever, for decades. As @CGATist says, it's a form of exile. Banishment from all forms of public life, work, education, leisure, friendship. No exaggeration @steve_race @GwynneMP Loss of all but love for each other.

[Prof. Bethan Evans @DrBEvans]

As a researcher of energy limiting conditions, with ME myself, this really resonates with our research findings and personal experiences. To find out more about our research see this animation https://t.co/L7KGTpStAy, and report: https://t.co/aZvXDW5vcD

[ME Association @MEAssociation]

iNews: Don’t use benefit claimants as scapegoat in Budget, 60 activist groups tell Reeves

The ME Association is one of the 63 organisations who has signed the open letter to the chancellor.

See the letter: https://t.co/IXztx7Rlig

Read the full article on iNews: https://t.co/iMdvi9SZSm

#MECFS #MyalgicEncephalomyelitis #LongCovid #pwME #Benefits #PIP #UniversalCredit