Sue Worrall

Owner of a body broken by ME. Campaigning for change. Love cakes I shouldn't eat! Longs to garden and to walk a coast path again

[Long Covid Support @long_covid]

📣 Long Covid Support responds to Government's Get Britain Working White Paper!

Read the full statement here:
https://t.co/Ydld9PEXoB

(Link to Government���s pages in comments)

#LongCovid

[George Monbiot @GeorgeMonbiot]

This story is one of the most disturbing I've ever covered. It's about how the views of a deeply weird ideological sect affected science, medicine and the media, with devastating impacts on patients. Please read and pass on. This horror has to stop. https://t.co/qVjkbiGQY3

[Carole Bruce @CaroleBruce17]

There will, without doubt, be future deaths from #ME unless @NHSEngland are very, very careful about the training module they are preparing to put out on ME. The responsibility is on them to put out the very highest quality of information.
#pwME #PreventFutureDeaths

[Adam @ABrokenBattery]

🧵of news articles, radio and TV about the landmark prevention of future deaths report following the death of Maeve Boothby O'Neill from Severe #ME

[It's M.E. Linda 💙 😷 @HappyHoundHouse]

@DHSCgovuk @DWPgovuk @NIHRresearch

We use the 2002 estimate?

HOW is this even possible?

@ONS @NHSEngland What other LTC’s have no current prevalence figure?

WHY does the #MEcfs community even have to ask Govt/NHS to calculate the numbers of #pwME in 2024?

#DontForgetME

[Kirstie Sivapalan @KirstieSivaP]

Just watched Scoop. Struck by this quote at the end

"This is what Newsnight is...Stories that need to be told, that people care about, hold the powerful to account and give victims a voice"

Well, @BBCNewsnight here's a story for you, and it needs to be told

#BringMillieHome

[Alexis @alexis___me]

Despite undisputable biological evidence of severe neuro-immune disease #MECFS, NHS cont’ to psychologise & fail severe patients like Millie #BringMillieHome #DontLetMEDie @TheSun @gmcuk @rcpsych @MetroUK We DEMAND a protocol 4 severe ME https://t.co/OmJh4kM95F

[Katie's on the patio @SockFoam]

Medical leaders have a responsibility to, well, lead. Step up and stop a severely ill young woman from coming to further harm. @VictoriaAtkins @wesstreeting @NHSuk @NHSE_WTE #BringMillieHome #DontLetMEDie @gmcuk @rcpsych @RCPhysicians

[Alisontomyradioooo @arisonsned]

#BringMillieHome #DontLetMEDie
@gmcuk
@rcphysicians
@rcpsych
@VictoriaAtkins
@wesstreeting

Why do we keep having to do this? When will the #NHS treat #MyalgicEncephalomyelitis patients with respect and implement a protocol for very severe patients? https://t.co/t38HDCt9od

[Tina Rodwell #TeamPatient🇺🇦🕊🌎🕊💞 @TinaRodwell1]

Please look out for update for Millie as there could be repercussions as Millie's sister stated and I will be sharing as much as I can #BringMillieHome #DontLetMEDie #TakeDownPACEtrial lady in West Sussex in the same position @TheChronicColab

[It's M.E. Linda 💙 😷 @HappyHoundHouse]

#DontletMEdie #BringMillieHome

@CareQualityComm
@gmcuk @rcpsych @RCPhysicians
Please help now!
#MEcfs

[It's M.E. Linda 💙 😷 @HappyHoundHouse]

#DontletMEdie #BringMillieHome

@CareQualityComm
@gmcuk @rcpsych @RCPhysicians
Sophia 2003 wrongly sectioned
Millie 2024 wrongly sectioned

#MyalgicEncephalomyelitis
#MEcfs

[Carole Bruce @CaroleBruce17]

No more avoidable deaths from #SevereME. It is a life threatening physical illness,not a mental health situation. It can happen to anyone and hospitals must learn how to treat it now, right now.
#BringMillieHome #DontLetMEDie
⁦@gmcuk⁩ ⁦ https://t.co/960KqXAZWN

[Jessica Taylor-Bearman @jayletay]

My simple message is the world needs to wake up to Myalgic Encephalomyelitis.

I was hospitalised in 2006 it was horrendous. Lot of the treatment questionable. I live with the trauma now.

How is the treatment still like this 18yrs later?
#BringMillieHome #DontLetMEDie
@gmcuk

[xxx ROSE xxx @TanteRos]

People with ME should not live in fear of going to hospital due to the lack of education of doctors. It's up to @gmcuk @rcphysicians @psych to get to grips with how they can help patients & avoid causing further harm to extremely ill patients #SevereME
#BringMillieHome

[Carole Bruce @CaroleBruce17]

This is what Millie’s family is asking for, just this. Too many people with #SevereME have already died. Please let this be a turning point and let #ME be treated as the biophysical illness that it is for all patients. #DontLetMEDie #BringMillieHome 🙏

[Katie's on the patio @SockFoam]

@VictoriaAtkins @wesstreeting #MyalgicEncephalomyelitis @NHSuk @NHSE_WTE #BringMillieHome #DontLetMEDie @gmcuk @rcpsych @RCPhysicians #BringMillieHome #DontLetMEDie

[Sue Worrall @OffBye24]

#pwME only have a small amount of energy available to use each day, @gmcuk @RCPhysicians @rcpsych you will only get a glimpse of the strength of feeling today because our energy will run out. Please take notice #SevereME #BringMillieHome #DontLetMEDie

[Naomi Harvey “PhD Witch” #WearAMask @Naomi_D_Harvey]

Can people outside of the ME community has please retweet this? A young woman’s life is literally at stake and there *must* be public awareness and outrage to stop this or she’ll be the next young woman with ME to die in NHS care @NickyAACampbell @RolfatWarwick @MrAndrewCotter

[Paula Knight @Paula_JKnight]

#BringMillieHome #DontLetMEDie
M.E. lives shouldn't be at risk in hospital. We badly need NHS protocols for ME hospital admissions, and feeding guidance. People have died from ME being psychologised. Please stop it happening again.
@gmcuk @RCPhysicians @rcpsych @VictoriaAtkins