Openapp - an IQVIA business

International software company providing healthcare IT solutions to Health Executives, Patient Organisations & Pharmaceuticals. #evidenceforhealthcare

[Cystic Fibrosis Registry of Ireland @CFRegistryIE]

We had a great day in Cork on Tuesday, meeting with our friends at @SkinRegs to share learning, research & talking all things registries!

[Openapp - an IQVIA business @OpenappIreland]

Excellent piece which provides an illuminating view on registry set up, operation and sustainability!

#realworlddata #patientregistires

[Health Research Charities Ireland - HRCI @HRCIreland]

Today, HRCI & our collaborators NISR & CFRI publish 𝐔𝐧𝐥𝐨𝐜𝐤𝐢𝐧𝐠 𝐭𝐡𝐞 𝐏𝐨𝐭𝐞𝐧𝐭𝐢𝐚𝐥 𝐨𝐟 𝐏𝐚𝐭𝐢𝐞𝐧𝐭 𝐑𝐞𝐠𝐢𝐬𝐭𝐫𝐢𝐞𝐬: 𝐀 𝐆𝐮𝐢𝐝𝐞 𝐟𝐨𝐫 𝐒𝐮𝐜𝐜𝐞𝐬𝐬. It lays out practical advice on developing & sustaining a patient registry. https://t.co/BV2SrDG0Aq

[Openapp - an IQVIA business @OpenappIreland]

We can't wait to read what will be a very informative piece on effective patient registries. We know first-hand how knowledgeable the CFRI team are through collaborating on their successful patient registry!

#patientregistries

[Health Research Charities Ireland - HRCI @HRCIreland]

We worked with the hugely knowledgable team in the Cystic Fibrosis Registry of Ireland to create a Guide on developing and sustaining an effective patient registry. 'Unlocking the Potential of Patient Registries: A Guide for Success' will be launched on Tues Sept 12th-stay tuned!

[Openapp - an IQVIA business @OpenappIreland]

Excellent article in the Medical Independent highlighting the need to prioritize the patient voice/experience in rare disease research!

#rarediseaseresearch #patientengagement

[Health Research Charities Ireland - HRCI @HRCIreland]

Thanks to @med_indonews for highlighting patient engagement in research activities in rare diseases! Great to see the Rare Disease Clinical Trial Network @rare_trial growing and reaching the rare community. Read the article here https://t.co/I7vs8ANGsE #HealthResearchMatters

[GeoDirectory @GeoDirectory_ie]

It’s the perfect weather for a park stroll, and our GeoFindIt knows just where to go 🍃🚶‍♂️
Join us on a sunny exploration as we uncover the best nearby parks for today’s outdoor adventure.

Download our GeoFindIt app now 👉 https://t.co/wBfDETNrHl

[Openapp - an IQVIA business @OpenappIreland]

For everything you need to know about GDPR for patient data:https://t.co/38F6dYcn8T

#GDPR #Patientregistrysoftware

[Openapp - an IQVIA business @OpenappIreland]

What types of software maintenance are found in the software development life cycle? The 4 critical pillars of your healthcare software development plan: https://t.co/MnA3rdh1pw

#softwaremaintenance #softwaresupport

[GeoDirectory @GeoDirectory_ie]

Unveiling Q2 2023 Irish Property Trends🏡
Discover the latest numbers, trends, and insights shaping the future of #IrishRealEstate! From rising #ConstructionRates to changing #Vacancy figures, it's all here 📊🏢

Read our latest blog https://t.co/TcRs4nQsgM

[Openapp - an IQVIA business @OpenappIreland]

We are delighted to bring you our SMArtCARE case study, accessible here: https://t.co/X0jtkomQaH

#realworlddata #patientregistries #raredisease

[Openapp - an IQVIA business @OpenappIreland]

For everything you need to know about GDPR for patient data! https://t.co/38F6dYcn8T

#GDPR #Patientdata #patientregistry

[Children's Tumor Fdn @ChildrensTumor]

Save the date--

Sunday, September 17, 2023
https://t.co/OyhLPFYoFm
NF1 Medical Symposium, hosted by Children's Hospital of Los Angeles, NF California and CTF
8:30am-3:00pm PT

[GeoDirectory @GeoDirectory_ie]

GeoDirectory's latest Residential Buildings Report found that there are 21,134 #derelict units nationwide, with Connaught accounting for the highest units at 37.1% 🏚️

Access the full report 👉 https://t.co/SuqzxdxHsf

OR read via @RTE_PrimeTime https://t.co/JVsBUvmF6C

[Openapp - an IQVIA business @OpenappIreland]

Here is an excellent resource comprehensively detailing the National Alpha-1 Antitrypsin Deficiency (AATD) Registry: https://t.co/gaQiB8Cr6D

#alpha1awareness #raredisease #patientregistries

[Openapp - an IQVIA business @OpenappIreland]

With #InternationalAlopeciaDay this Saturday gone, we wanted to highlight the work we've been doing in collaboration with GRASS to develop an international registry platform for alopecia areata.

For info on how to get involved please visit: https://t.co/vNJkWVYl33

[GeoDirectory @GeoDirectory_ie]

Our residential property report found the number of buildings under construction in Ireland increased by 2% in Q2 2023, compared to last year.

⬆️ Co. Dublin had the highest activity
⬇️ Co. Leitrim had the lowest activity

Learn more here: https://t.co/Gl3779qTdA

[Children's Tumor Fdn @ChildrensTumor]

Don't forget to join us on our next virtual NF2 Meetup on Thursday, August 3 at 7 PM ET!

Link to register:
https://t.co/x9TLxSbdnr

Live captioning will be available. #EndNF #NF2

[Openapp - an IQVIA business @OpenappIreland]

Excellent video series introducing the faces behind the @inpdr_registry who are advancing the knowledge and care for Niemann Pick: https://t.co/3hFHE1cumB

#raredisease #patientregistrysoftware #niemannpick

[Openapp - an IQVIA business @OpenappIreland]

An excellent paper distributed highlighting the utility of patient registries for informing regulatory authorities on rare disease medicinal products: https://t.co/o5VLtnxker

#patientregistries #realworlddata #raredisease

[Openapp - an IQVIA business @OpenappIreland]

If you didn't catch our CEO @ConHennessy's interview with Rare Revolution Magazine, it is now being featured as part of their throwback series!

#patientregistrysoftware #raredisease #ceo

[RARE Revolution Magazine® @RareRevolutionM]

#ThrowbackThursday is back, and this time we revisit Con Hennessy of Open App.

With a background in IT and the healthcare system, Con Hennessy became CEO of OpenApp in 2017.

Read Con's full feature here: https://t.co/j6Qrploy3E

[Openapp - an IQVIA business @OpenappIreland]

Check out our Children Tumor Foundation Patient Registry case study! https://t.co/FveZmMFJaN

#raredisease #realworlddata #patientregistries