Anne Pinney

Researcher, policy wonk, data champion. Mother, citizen of the world, lover of the great outdoors. Happiest up a hill or on a bike.

[Anne Pinney @P2Pinney]

Son has continuous cough since early Nov. Can't get to sleep. Barely tolerated in classroom on few days he's there. GPs at wits end, referred to #paediatricrespiratory @OUHospitals. Appointment end July! #NHS that's way too long to wait for a young person missing school.

[The Challenging Behaviour Foundation @CBFdn]

Are you a family carer of someone with a severe learning disability? You can connect with others who understand through our various peer support options provided at the CBF:
https://t.co/j13mE4laAm

[Tim van Hasselt @Tim_van_Hasselt]

Challenges of parenting children born before 24 weeks of gestation

https://t.co/NLNGBA2AEJ

Good articles, challenges for children & families.

Generalisability of this Swedish study for 🇬🇧/🇺🇸 tho? Family and social support was good, support economically & at school widespread

[Anne Pinney @P2Pinney]

@k_runswick_cole I drove two weeks ago. Love it!

[Anne Pinney @P2Pinney]

So happy to have run my second half marathon this morning in 1h53. Much more importantly, raising over £4000 for MND Association Oxford Care Centre, in memory of our dear Mum. Thank you so much to all who sponsored us, you can still donate at https://t.co/Ym1gX3LZzg

[Anne Pinney @P2Pinney]

Up at 6:30am to beat the heat on last long training run (22km) for half marathon on 7 July. Fund-raising with family for the outstanding Oxford #MND Care Centre who supported my Mum and us with such kindness. Thank you for any support you can offer. https://t.co/kGRnSyV2qv

[Anne Pinney @P2Pinney]

@lornafraser10 Poor old you Lorna, put your feet up and take it easy now

[Anne Pinney @P2Pinney]

@SteveBroach Same here (Henley constituency)

[Anne Pinney @P2Pinney]

We are running a half marathon on 7 July in memory of my amazing mother. Please help us to raise funds for the Oxford MND Care Centre who supported her and our family with incredible kindness through our long, painful journey with #MND. Thank you. https://t.co/kGRnSyV2qv

[Anne Pinney @P2Pinney]

@marybusk Beautiful, Mary. I hope you and family are all well?

[Anne Pinney @P2Pinney]

Lockdown habit that kept going. German and now Mandarin (much harder).

[Alex Mancini (Smith)💙 @mancini_smith]

Please have your voice heard and comment on the NEW Framework for Palliative Care. It’s vital you have your say #PerinatalPalliativeCare #ManagingUncertainty #SupportingFamilies #SupportingPerinatalTeams @NeoPallCare @NNAUK1 @Blisscharity @Tog4ShortLives @TheAPPMuk

[Anne Pinney @P2Pinney]

Spare 90 seconds to watch & share this great little video with a very important message, from children and young people missing out on school due to unmet special needs.

[letuslearntoo @letuslearntoo]

Parents are blamed by the government for absent children when in fact we are fighting to get our children to school. If anyone wants to know why we fight so hard - watch this #WeCanLearn @education4all23 @DCPcampaign @bphillipsonMP @helenhayes_

[Centre for Young Lives @CfYoungLives]

Congratulations to @samthesparrow for receiving this prestigious award. She is such a powerful champion of children in care and care leavers ⬇️

[Anne Pinney @P2Pinney]

@mancini_smith @CNOEngland @_4Louis @Fieldfisher @robsmithitv @NNAUK1 @BAPM_Official An amazing day, full of inspirational speakers, I learnt a lot & had so many interesting conversations! Thank you for inviting me @mancini_smith and thank you to all our speakers.

[Alex Mancini (Smith)💙 @mancini_smith]

Please take a look at our new Enhanced e-learningcourse, complementing the ‘Introduction to Neonatal Palliative Care’ course. Adapted from our textbook ‘Neonatal Palliative Care for Nurses’ @duncan_CNSE @gso_jones @KathEvans2 @MckeonCarter @louisewlowe @petty_julia @EmilyHarrop9

[Cheryl Battersby @DrCBattersby]

3 x ⬆️ in babies born 22 weeks cared for in UK NNUs

3/10 admitted survive to discharge

Implications for resources to deliver best care & support parents and staff.

@ImperialPaeCH
@ImperialSPH
@Imperial_PCPH

Read @imperialcollege news coverage ⬇️

https://t.co/628wmZzc8i

[Cheryl Battersby @DrCBattersby]

Impact of revised ⁦@BAPM_Official⁩
extreme preterm framework: risk based approach to provision of survival focused care for babies born at 22 weeks’ gestation in England and Wales 2018-2019 vs 2020-2021.

Published ⁦@BMJMedicine⁩ today ⬇️ https://t.co/wYVrW9krQ9

[Anne Pinney @P2Pinney]

@rogpeppe Sending love to team Skye X

[FFT Education Datalab @FFTEduDatalab]

NEW: Risk factors of secondary school exclusion

In our latest post, we identify three variables associated with exclusion in secondary: history of exclusion/suspension at primary, involvement with Social Care, and economic disadvantage.

Read more ➡️ https://t.co/2k46yC4IZU