PCD Scotland

The Twitter page for PCD Scotland! Follow us for all things PCD.

[PCD Scotland @PCD_Scotland]

@Mill_lab @beatpcd @PCD_UK @PCDFoundation @PCD_ispm @lunguk @BlfResearch @mrc_hgu Great, that’s fantastic to hear. We are looking to spread the word to patients all over Scotland and hear about their experiences. Excited to have your support!
We will be in touch shortly. Thanks 😊

[PCD Scotland @PCD_Scotland]

@PCD_Scotland @beatpcd @PCD_UK @PCDFoundation @PCD_ispm @lunguk @BlfResearch @Mill_lab

[PCD research group at ISPM Bern @PCD_ispm]

The most used face masks among people with PCD are certified single use masks or reusable fabric masks. More results from the #covid_pcd study on our website https://t.co/1C5E3t3iWO #pcd #covid19 #raredisease

[PCD Support UK @PCD_UK]

Congratulations go to our very own @pcdmum in being awarded a British Empire Medal for her tireless work for the PCD Family Support Group in the Queen’s New Year’s Honours list!🥳

More info: https://t.co/3qroL3adOs

#PCD @lunguk @EuropeanLung #PrimaryCiliaryDyskinesia #champion

[ERS publications @ERSpublications]

A novel real-world validation of two tools (PICADAR and NA-CDCF) that use routinely collected clinical data and help triage the need for primary ciliary dyskinesia diagnostic testing is performed, showing both tools perform well with equivalent performance https://t.co/fd8O3HjtXD

[PCD Scotland @PCD_Scotland]

https://t.co/ZGoUWK5o18

[PCD Support UK @PCD_UK]

(4/4) #PCDAwarenessMonth #PCD #cilia #genetics #raredisease #lungdisease #inheritance #inherited #genes #PrimaryCiliaryDyskinesia #rare

[PCD Support UK @PCD_UK]

(3/4) #PCDAwarenessMonth #PCD #cilia #genetics #raredisease #lungdisease #inheritance #inherited #genes #PrimaryCiliaryDyskinesia #rare

[PCD Support UK @PCD_UK]

(2/4) #PCDAwarenessMonth #PCD #cilia #genetics #raredisease #lungdisease #inheritance #inherited #genes #PrimaryCiliaryDyskinesia #rare

[PCD Support UK @PCD_UK]

Today's #PCDAwarenessMonth features genetics. How come non-PCD parents can have children with PCD? (1/4)

#PCD #cilia #genetics #raredisease #lungdisease #inheritance #inherited #genes #PrimaryCiliaryDyskinesia #rare

[PCD Scotland @PCD_Scotland]

🤩Virtual Open day, Sat 26th & 27th September🤩 @MRC_IGMM

Powerful presentation on PCD will be included!

https://t.co/79A3lv8EFQ

PCD Family Support Group UK
MRC Institute of Genetics & Molecular Medicine
@MRC_HGU
#DODIGMM
#DigiDoorsOpen
#DODScot

[PCD Scotland @PCD_Scotland]

🤩Virtual Open day, Sat 26th & 27th September🤩 @MRC_IGMM

Powerful presentation on PCD will be included!

https://t.co/79A3lv8EFQ

PCD Family Support Group UK
MRC Institute of Genetics & Molecular Medicine
@MRC_HGU
#DODIGMM
#DigiDoorsOpen
#DODScot

[PCD Scotland @PCD_Scotland]

https://t.co/RofVIB7msB

[PCD Support UK @PCD_UK]

Study update! 483 participants 🤩Getting closer to that 500 mark!

Thank you to all who are taking part and continue to help us understand the effects of #covid19 on #PCD. Please join us if you haven't!

#raredisease #research #lungdisease #primaryciiliarydyskinesia #community

[Prof Jane Lucas 💙 @JaneSLucas1]

Well done #PCD community, 👏😷👏
Your regular participation in the survey is providing important information, so please keep completing the short surveys. If you have #PCD and are not yet involved in this international project, it's easy to join in https://t.co/JPazzoDPpl

[PCD Scotland @PCD_Scotland]

👍🏻PCD Shielding update 22nd June 2020👍🏻

https://t.co/1TAQKMgf34 @PCD_Scotland @PCD_UK @lunguk

[PCD Scotland @PCD_Scotland]

Have you participated? Click on the link to see results 🤓, how many people have participated from each country 🏴󠁧󠁢󠁳󠁣󠁴󠁿 and if you haven’t completed the questionnaire, there is a red ‘participate in the study’ tab! 🔴 @PCD_UK @PCD_Scotland @lunguk

https://t.co/YvEnZmlw2j

[PCD Support UK @PCD_UK]

PCDers we need you! Please complete this questionnaire to help us understand the impact of Covid-19 on people with PCD. The study is open to anyone with PCD around the world: https://t.co/RCRi9ycKV1

#pcd #covid19 #primaryciliarydyskinesia #survey #help

[Jeans for Genes UK @jeansforgenes]

👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏👏

#clapforNHS #ClapForCarers 💙#NHS💙

[PCD Support UK @PCD_UK]

Great idea! Make sure you keep up your exercise regimes! 🏃‍♀️🏋️‍♂️🚴‍♂️🤸‍♂️🧘‍♀️⚽️🥊