PCD Support UK

We talk about Primary Ciliary Dyskinesia (PCD) as widely as possible, and champion research to improve its diagnosis, management and treatment.

[PCD Support UK @PCD_UK]

Congratulations!

[Calderwood_Primary @Calderwood_Pri]

A huge congratulations to Miss McEwan & Miss Threadgold who did the @thekiltwalk today for @PCD_UK and @SmileCounsel. We are very proud of them! #CalderwoodChampions

[Lena Group Respiratory Hub 🫁 @Lena_Group4Resp]

#EBROW25

🌐 Registration is now open!
👉 Visit our website and set up your profile today: https://t.co/1R13ZjiUzn
#RespiratoryMedicine #Bronchiectasis
We look forward to welcoming you soon!

📅20-22 February 2025
📍Paris, France

[James D Chalmers @ProfJDChalmers]

Priorities and Barriers for Research Related to Primary Ciliary Dyskinesia
@mgoutaki @ERSpublications
https://t.co/ros2yR5pVY

[7th European Cilia Meeting @EuroCilia2027]

Great interaction at the #cilia2024 welcome reception in #UCD Dublin.

[PCD Support UK @PCD_UK]

@colinbmwhite @EuroCilia2024 @UKCiliaNetwork @CiliaAlliance And you Colin! 😀

[PCD Support UK @PCD_UK]

This week, our Chair Katie is chatting all about PCD to scientists, clinicians, and other patient support groups at #Cilia24

@EuroCilia2024 @UKCiliaNetwork @CiliaAlliance

[PCD Support UK @PCD_UK]

@YinTing_Lam @erin_cant @EMBARCnetwork @Shoemelia @ProfJDChalmers 👏👏

[European Lung Foundation @EuropeanLung]

Following #WorldCleanAirDay and #HealthyLungsforLife in Vienna, @DrMariaNeira - Director of Public Health, Environment and Social Determinants of Health at the @WHO - talks about ensuring patients are empowered and informed on key risk factors!

#ERSCongress @eurorespsoc

[PCD Support UK @PCD_UK]

Love your t-shirt! #PCD

[Lena Group Respiratory Hub 🫁 @Lena_Group4Resp]

🏃‍♂️ Proud to #TakeTheActiveOption at #ERSCongress! Alongside 500+ delegates, we’re advocating for lung health 🫁
Led by @EuropeanLung & @EuroRespSoc, this initiative raises awareness and encourages action.
We proudly support #HealthyLungsForLife
More info: https://t.co/0TxbMfs6XW

[Dr Maria Neira @DrMariaNeira]

Let’s make #WorldCleanAirDay every day.
Patients have a special voice in demanding action on air pollution & climate change. Invest in #CleanAirNow
#BreatheLife #WorldCleanAirDay @fenaer2 @Longfonds @apepoc_es @empowersankar @EfaPatients @EuroRespSoc

@EuroRespSoc @ELF @WHO

[Yin Ting Lam @YinTing_Lam]

Come to PS-20 for @Leonie_Schreck results on exacerbations in #PCD #ERSCongress @ClaudiaKuehni @mgoutaki

[European Lung Foundation @EuropeanLung]

Many thanks to everyone who attended the ELF Patient Organisation Networking Day in Vienna, and those who joined us online. It has been another fantastic event, and we cannot wait to see what else the #ERSCongress brings!

#PatOrgDay2024

[PCD Support UK @PCD_UK]

We're incredibly proud of our treasurer Abdullah, who has done an excellent job chairing the afternoon sessions of @EuropeanLung's #PatOrgDay2024

@EuroRespSoc #PCD #PCDSupportUK @A_ihsan99

[BEAT-PCD (ERS CRC) @beatpcd]

PCD Annual Research Meeting 2024 #BEATPCD2024

[BEAT-PCD (ERS CRC) @beatpcd]

We are starting our inflammation in PCD session with our own @Shoemelia talking about neutrophilic inflammation #beatpcd2024

[PCD Support UK @PCD_UK]

We've just arrived at @EuroRespSoc ready for the @EuropeanLung #PatOrgDay2024!

#PCD #PCDSupportUK

[European Lung Foundation @EuropeanLung]

The team are at the #HealthyLungsForLife press conference in Vienna, raising the profile of lung health!

Here, speakers are presenting new data to show that air pollution impacts lung health.

Learn more about #HealthyLungsForLife here: https://t.co/CbzDkF7tgF

[James D Chalmers @ProfJDChalmers]

A few papers coming out this week for #ERS2024 😀
Starting with A systematic literature review of the clinical and socioeconomic burden of bronchiectasis

Bronchiectasis imposes a massive burden on patients, families and healthcare. New therapies needed!
https://t.co/80B3sb8OWN

[BEAT-PCD (ERS CRC) @beatpcd]

For people watching the 1annual research meeting feed online, feel free to MP your questions to this account and they will be relayed to the speakers #beatpcd2024

[Yin Ting Lam @YinTing_Lam]

In case you missed the brilliant @pcdmum and Emilie Wattellier watch the recording here https://t.co/s5D9209j1N