PCPLD Network

Palliative Care for People with Learning Disabilities Network. UK based charity raising awareness and sharing best practice. Shortlisted for NDA Awards 2021.

[PCPLD Network @PCPLDnetwork]

‘Learning disability nurses save lives. Without urgent intervention, this profession will disappear, leaving people with a learning disability at even greater risk’

https://t.co/mPdMsfYGoP

[PCPLD Network @PCPLDnetwork]

The sad reality that a worrying number of people with learning disabilities are missing out on an early cancer diagnosis which could have saved their lives

https://t.co/QmLYDItIsl

[Cicely Saunders Institute at King's @CSI_KCL]

Healthcare professionals in palliative and end-of-life care: help shape the new Impact Centre at King’s College London. Share your insights in our short, anonymous survey (15 mins).
Take part: https://t.co/KkfqSew6IX

[Learning from Lives and Deaths - LeDeR researchers @AliveLeder]

📢 The new LeDeR report is now available. The 2023 annual report analyses the deaths of 3,556 people with a learning disability & autistic people who died in 2023. The work is part of efforts to reduce health inequalities. Access here: https://t.co/4cu1VsaOv8 #LeDeR @KingsIoPPN

[PCPLD Network @PCPLDnetwork]

The LeDeR report has been published!

https://t.co/bCjg7Y4H8p

[@PCCongress @PCCongress]

⭐️MAIN CALL FOR ABSTRACTS NOW OPEN ⭐️

Online abstract submissions are invited for original research relevant to palliative care and in consideration of the conference theme #PCC2026

More info 👇
🔗https://t.co/2sUvTfMJ9K

[PCPLD Network @PCPLDnetwork]

Talking about dying with people with learning disabilities: webinar details below from the Victoria & Stuart Programme, together with @KingstonUni in partnership with @mariecurieuk

[Marie Curie EOLC @MarieCurieEOLC]

We're excited to exhibit at this years Nursing Live in Birmingham for the third consecutive year running . We look forward to sharing our Palliative and End of Life expertise and resources and celebrating the best in Nursing care.

Sign up for your free place
https://t.co/8SWGyUx47A

[PCPLD Network @PCPLDnetwork]

Learning disability and palliative care conference coming up at @StChrisHospice! Find out more below 🙌

https://t.co/775duzK52M

[PCPLD Network @PCPLDnetwork]

‘A person with a learning disability may need more than one conversation to fully understand and accept what has happened’ - important to remember this when discussing that somebody has died 🫶🏼

[PCPLD Network @PCPLDnetwork]

Calling our colleagues in general practice ⬇️

[NHS Ability @NHSAbility]

The #NHS should make #ReasonableAdjustments to make it easy for #disabled people to use services. Hear what works for Kareem to find out about the support you could ask for https://t.co/zjeMASXZMg #LearningDisability

[PCPLD Network @PCPLDnetwork]

Have you heard about the DAPPLE project? It’s a 3 year research study that aims to find the best ways to make sure that people with a learning disability get the right care and support at the end of their lives.

https://t.co/Ixm2d6PX6j

[BC Epilepsy Society @BCEpilepsy]

Did you know that #DisabilityPrideMonth is celebrated every July in honour of the anniversary of the signing of the Americans with Disabilities Act (ADA) in July 1990? Happy #DisabilityPride Month from all of us at the BC Epilepsy Society! #Epilepsy #EpilepsyAwareness

[UK National Innovation Centre for Ageing (NICA) @UKNICAofficial]

Are you a carer supporting someone with a learning disability?

The @unisouthampton are looking for #carers with a variety of experiences, ages, genders, and ethnicities.

Find out more here!👇

https://t.co/MAImAn2WvS

#VoiceOpportunity

[PCPLD Network @PCPLDnetwork]

A little preview of our amazing conference yesterday! Lots of dancing and brilliant discussions. Who knew talking about palliative care could be so much fun!

[PCPLD Network @PCPLDnetwork]

As we close for the day, a brilliant afternoon here at #pcpld2025 conference: the Dapple Project, communicating grief in young people with severe and profound learning disabilities and our ‘soap box session’ . A huge thank you to all our speakers, presenters and attendees!

[PCPLD Network @PCPLDnetwork]

Our last ever Linda McEnhill Award presented to Prof Irene Tuffrey-Wijne - our previous @PCPLDnetwork chair, academic and researcher in palliative care for people with a LD, for her incredible contribution to the field . A huge congratulations and thank you!!!

[PCPLD Network @PCPLDnetwork]

A truly fabulous performance at #pcpld2025 conference from the inspirational Baked Beans Choir!

[PCPLD Network @PCPLDnetwork]

A fantastic morning at #pcpld2025 conference - overview of research so far, the READY project, a hospice/CPCT LD audit, the importance of relational care and ‘on the sofa’ with some of brilliant poster presenters! Looking forward to this afternoon’s session!