Parkinson's Research Interest Group

The Twitter Page of the patient lead Facebook forum for discussion on PD research.

[Parkinson's Research Interest Group @PDresearchadvoc]

You may have noticed that this account has been less active, the attached is why #Parkinsons

[Parkinson's Research Interest Group @PDresearchadvoc]

Both @SaraRiggare and @julie_physio research, are arguably far more relevant to people living with #Parkinsons today, than perhaps research into proteins or genes will be for the foreseeable future.

[Parkinson's Research Interest Group @PDresearchadvoc]

Congratulations to @SaraRiggare on her Phd Thesis defence on Self Tracking and personalised care and science.

[eli @Eli_in_Brooklyn]

We were all so moved that @basbloem even took his hat off to @SaraRiggare after she became Dr. Riggare.

[Parkinson's Research Interest Group @PDresearchadvoc]

First of two retweets that I've broken my hiatus from research advocacy for.

Arguably this is by far the most important and relevant topic, that the annual @EdinburghParki2 lecture has had, for people with #Parkinsons today.

@julie_physio presenting on exercise research.

[David Breen @breenneurology]

Date for your diary! Very timely given the accumulating evidence showing wide ranging benefits of exercise (potentially even changing brain function). @ParkinsonsEN @ParkinsonsUKSco @CureParkinsonsT @ScienceofPD @PDresearchadvoc https://t.co/VJ92kWA3lr

[Neuro Heroes @theneuroheroes]

What’s on FREE this week?

05/01: 17:00, 30 min free workout incorporating sit to stands with Anna from Neuro Heroes.

06/01: 17:00 DJ Claire is back to support you in your challenge.

08/01: 10:30, 45 Min FREE Pilates taster session with Nuala from Neuro Heroes.

See you there

[Journal of Parkinson's Disease @journal_PD]

There's still time to sign up for our next webinar, hosted w/ @CureParkinsonsT & @VAInstitute! Our outstanding panel includes Prof. @BrundinPatrik, Prof. Tom Foltynie (@foltynie), Prof. Helen Bronte-Stewart (@HBSlab) & Advocate David Jones. Sign up here: https://t.co/TWsfo6KKPv

[Emma Lane @dyskochick]

Want to hear about cell and gene therapy for Parkinson's and huntington's? Want to hear what the participant experience is like on these trials and their thoughts as move forwards? Come to this free public event and ask our panel! https://t.co/iUbclZj48O Pls Retweet @PdAvengers

[Alfonso Fasano @DrAlfonsoFasano]

This is an event open to anyone interested in knowing what #deepbrainstimulation (#DBS) can do for them. It's also open to people who already had it and want to share their stories. We know some have happy endings, some others not so much. We're interested in them all.

[topdresearch @topdresearch]

Can the damage from PD in the Brain be repaired? Full recording on you tube of this year’s Edinburg Parkinson’s Research Interest Group lecture https://t.co/w0Vt2tQND5

[Cure Parkinson's @CureParkinsonsT]

Congratulations to Dr. @CamilleBCarroll who has been awarded the 2021 Tom Isaacs Award in recognition of her work involving patients. Her dedication has had an incredible impact on the lives of many people with Parkinson’s; such a well-deserved winner! https://t.co/c5dos2UGzf

[Parkinson's Research Interest Group @PDresearchadvoc]

Proud to have played a small part in the success of @EdinburghParki2 Research interest group.

[Claire Bale she/her @Ladybale]

Lovely piece by Alison Williams, member of the @ParkinsonsUK Edinburgh Research Interest Group.

It's amazing to reflect on what the group have achieved since they formed following the World Parkinson Congress in Glasgow in 2010.

https://t.co/RV8SnBC1BJ

[The Science of Parkinson's @ScienceofPD]

A useful new review from @dr_mdsmith @physiodani & @DrEmHenderson exploring the current perspectives on the assessment & management of gait disorders in #Parkinsons; from cholinesterase inhibitors to spinal cord stimulation - it's all here!
https://t.co/OzX88mCq9O

[Cure Parkinson's @CureParkinsonsT]

New treatments will only become available by testing them in people.
We fund and support clinical trials which seek to slow, stop or reverse Parkinson’s.
Find out about the trials that are recruiting now…
https://t.co/ISqer8AR8D
#clinicaltrials #parkinsons #cureparkinsons

[David Breen @breenneurology]

Online event for anyone affected Parkinson’s. The one and only Roger Barker - is it possible to repair the Parkinson’s brain? Register (for free) and join us! @PDandHDLab @ParkinsonsUK @RachelDolhunMD
@euparkinsons @MichaelOkun @CureParkinsonsT @AlbertoEspay @PdAvengers

[Journal of Parkinson's Disease @journal_PD]

Our new supplement, "Repairing the Parkinsonian Brain,” highlights current strategies being pursued to restore function & replace what is lost in the #PD brain. It was edited by Anders Björklund, @basbloem, @BrundinPatrik & Howard Federoff. Read more: https://t.co/DSxZcxqSX9

[Cure Parkinson's @CureParkinsonsT]

Join Dr @CamilleBCarroll on 27 September at 6pm BST to learn about Accelerating Clinical Trials in Parkinsons (the EJS-ACT-PD initiative) and the advantages of trialing several therapies at the same time as part of a multi-arm multi-stage (MAMS) trial - https://t.co/JyozsRG2Kb

[Josefa Domingos @DomingosJosefa]

Given the variety of exercise programs available for people with Parkinson’s disease (PD), people may struggle to make decisions about what exercise to perform. Personalised exercise prescription may be key.

[Julie Jones @julie_physio]

Greater Glasgow Research Interest Group ‘meet the researcher’ online event with Professor Doreen McClurg on Bladder and bowel problems in Parkinson’s. Open to anyone with an interest in Parkinson’s. @ParkinsonsUKSco @nosprig
https://t.co/4zExKy1lQ7

[Julie Jones @julie_physio]

Large scale survey (n=1333) reports that Rock Steady Box has a positive impact on QoL, and Parkinson's Motor Symptoms. @ParkinsonsEN @ParkinsonsUKSco @ParkinsonsUK
https://t.co/NkoFQqJSzR

[Parkinson's Research Interest Group @PDresearchadvoc]

@PD39dontpanic Then I'd politely suggest that you have still to experience 'off'.