PIDs Kenya

Patient organisation dedicated to creating awareness, improving diagnosis, treatment and quality of life of persons with primary immunodeficiencies in Kenya.

[Syoks @anniesyox]

Join the @PIDsKenya and @KnhResearch webinar on 25th April 2024 commemorating the #WorldPIWeek as we continue advocating for early diagnosis and access to care for PID patients. @AfricanAsid @ipopi_info. Registration link: https://t.co/7qdjBRwxb6

[IPOPI @ipopi_info]

🌟IPOPI's second video of our celebration of the World PI Week 2024! 🎥🌎

In this second video, we'll hear from Giang Houng, a representative from our patient organisation in Vietnam (#VietPIPS), sharing their journey on the challenges and developments in accessing early diagnosis for PID patients.

Get ready to be inspired and connect with real stories that raise awareness about the importance of early PID diagnosis and optimal treatment!

❓In the comments, we invite you to share the challenges you faced to access PID diagnosis in your country.

Together, we can make a difference!

#WorldPIWeek #PIDAwareness #VietPIPS #Vietnam #wpiw

[IPOPI @ipopi_info]

NEW IPOPI MINI DOCUMENTARY

A Closer Look at Primary & Secondary Immunodeficiencies!

🟰 Explore similarities & differences
🩺 Importance of early diagnosis
🏥 Diagnosing PID in patients with cancer
🌏 Unique LMIC challenges
❤️ Patient journeys

https://t.co/1UGs3ySkbe

[PIDs Kenya @PIDsKenya]

“I am not alone”- parting shot from @PiNSA_ZA at the 8th African PID Patients Meeting held in Casablanca, Morocco on 14-15 June, 2023. Umoja ni nguvu. @ipopi_info

[IPOPI @ipopi_info]

It's a wrap!

Our 8th African PID Patients Meeting has concluded, and what an incredible gathering it was! 🌍✨

Thank you to all the attendees, speakers, and supporters for making this meeting so successful.

📣 Stay tuned for future initiatives in Africa and beyond.

[IPOPI @ipopi_info]

Our African PID Patients Meeting in Morocco is only five days away! 📆

🔊 We're honoured to share this crucial message from Dr Leïla Jeddane, President of the African Society for Immunodeficiencies.

More info: https://t.co/Hs3qBNjbjp

[IPOPI @ipopi_info]

“In Africa, where medical care is often limited, early diagnosis is crucial to ensure people with primary immunodeficiencies receive much needed treatment and care.”

Valuable insights shared by @CynthiaOlotch, IPOPI Board member from Kenya.

https://t.co/Hs3qBNjbjp

[IPOPI @ipopi_info]

Collaboration is crucial in improving the conditions for patients with #primaryimmunodeficiency in Africa.

We are pleased to collaborate closely with @AfricanAsid and other stakeholders to promote the advancement of diagnosis and care in the region. 🤝

https://t.co/Hs3qBNjbjp

[IPOPI @ipopi_info]

#IPIC2023 is coming to Rotterdam on 8-10 November! 🎉

Join experts in the field to discuss clinical updates, the latest research, and best practices for managing primary immunodeficiencies.

Expand your knowledge and network with peers.

Register now https://t.co/tg7PC5OJXX

[IPOPI @ipopi_info]

"Seeing the numbers makes me feel less alone."

Hear from Hellen Ayaga, a mother from Kenya, in our 2nd video for #WorldPIWeek.

Learn why collecting PID data is crucial for improving patient care.

https://t.co/3EJiNhh4uA

@PIDsKenya
#PIDLifeIndex

[IPOPI @ipopi_info]

African PID patient leaders & healthcare professionals! 📣

Join us for the 8th African PID Patients Meeting in Casablanca, Morocco, June 14-15.

Organised in parallel with the ASID Congress, this is a great chance to share PID knowledge! 🧬

👉 https://t.co/Zb1ZbbC9JR

[IPOPI @ipopi_info]

In search of a free and easy way to monitor your immunodeficiency? 4ID is here for you.

👩‍⚕️ Immunodeficiency parameters
🤒 Symptoms
💊 Prescription and treatments
🗓️ Appointments and absences
🔔 Reminders

Sign up now https://t.co/57ImKZiPBt

#4IDHealthAgenda

[IPOPI @ipopi_info]

We are at the #AHAIC2023!

How does regulatory reliance work? How can its implementation accelerate access to medicines for patients?

This afternoon, Cynthia Olotch from IPOPI participated in a session devoted to this topic, organised by @IFPMA!

👉 https://t.co/T3vO5rHawB

[IPOPI @ipopi_info]

Share your #MyPhysicianAndI stories today! The IPOPI #WorldPIWeek Photo Campaign 2022 aims to encourage conversation about this collaboration, increase connectedness as well as celebrate the close collaboration we know you have with your medical advisors.

https://t.co/X63ta9nnb5

[Nizar Mahlaoui M.D., M.P.H., Ph.D. @MahlaouiNizar]

Welcome ⁦@ipopi_info⁩ #IPIC5 biennial conference on #PrimaryImmunoDeficiencies #PID starting tomorrow in #Algarve #Portugal
Lots of education material along with 3 days of medical 🏥 👩🏽‍⚕️ 🧑‍⚕️ 👨🏻‍⚕️ and scientific conferences from experts around the world 🌍 🌎

[IPOPI @ipopi_info]

IPOPI warmly welcomes all #IPIC5 Edition delegates to Vilamoura. We are very much looking forward to the various congress program sessions, poster presentations and in-person networking.

#primaryimmunodeficiencies #PID #IEI

[IPOPI @ipopi_info]

Ready to make plans to travel? Got new research to present?
We look forward to welcoming you at #IPIC5 and are overjoyed to inform that application for #travelgrants is now open!
All details: https://t.co/ldiMVkElBu

[PIDs Kenya @PIDsKenya]

IPIC 5th Edition - Travel grants for junior doctors now available: https://t.co/Q96sHKRG82

[IPOPI @ipopi_info]

Less than 24h away⏰IPOPI Webinar on #CalculatedGlobulins usage in #PrimaryImmunodeficiency diagnosis!
Register here https://t.co/jxtlm6PLiT
Prof Condino Neto & @ProfSteveH will detail clinical benefits for #earlydiagnosis and lab perspective of the technique.
Sep 16, 15h CEST