📢 Urgent reminder! Help us transform patients experiences into scientific evidence! If you haven't filled the survey on gastrointestinal symptoms in patients with PKU do it now! Go to:
https://t.co/AqfkhmEQ1I
We are excited to announce The PKU Life Stories Campaign that through the stories of people with PKU and their families will raise awareness of #PKU offer advice and show that with proper care people with Phenylketonuria can live their life to the fullest! #pkulifestories
The good old PKUBoard has been revived and set up on a new, modern platform. Even the feature to track your bloodlevels is back. You will need to register a new account on https://t.co/kBrUegHv2r - see you over there!
Wouldn't it be interesting to see when PKUs around the world have gotten their diagnoses? Questions like this are part of the first #patientdriven#worldwide#pku#survey https://t.co/mCygPs0SsP
Only 4 days left to submit your entry for the Sheila Jones Award! It's easy, just head over to our website and be the first to receive this patient advocate award! https://t.co/E9egsWUtQK