PKU-Board

[PKU-Board @PKUBoard]

The Expanding #PKU Toolkit - join the discussion now: https://t.co/FyCKkh4U4l

[PKU-Board @PKUBoard]

What are your thoughts on adult treatment for Phenylketonuria. Join the discussion on PKuBoard https://t.co/LR1eAwjNt9

[ESPKU @official_espku]

📢 Urgent reminder! Help us transform patients experiences into scientific evidence! If you haven't filled the survey on gastrointestinal symptoms in patients with PKU do it now! Go to:

https://t.co/AqfkhmEQ1I

[PKU-Board @PKUBoard]

What’s your key takeaway on the @official_espku #Phenylketonuria Life Stories Interview Series? Join the discussion on PKUBoard https://t.co/rN64hDZU8u

[PKU-Board @PKUBoard]

@official_espku Something to look forward for the conference in autumn!

[PKU-Board @PKUBoard]

What are your thoughts on new emerging PKU therapies? Share your thoughts in our latest blog post: https://t.co/d0dhubTNDl

[ESPKU @official_espku]

We are excited to announce The PKU Life Stories Campaign that through the stories of people with PKU and their families will raise awareness of #PKU offer advice and show that with proper care people with Phenylketonuria can live their life to the fullest! #pkulifestories

[PKU-Board @PKUBoard]

The good old PKUBoard has been revived and set up on a new, modern platform. Even the feature to track your bloodlevels is back. You will need to register a new account on https://t.co/kBrUegHv2r - see you over there!

[PKU@ @pku_at]

Wouldn't it be interesting to see when PKUs around the world have gotten their diagnoses? Questions like this are part of the first #patientdriven #worldwide #pku #survey https://t.co/mCygPs0SsP

[ESPKU @official_espku]

Only 4 days left to submit your entry for the Sheila Jones Award! It's easy, just head over to our website and be the first to receive this patient advocate award! https://t.co/E9egsWUtQK

[PKU-Board @PKUBoard]

Countdown to christmas is starting on December 1st! Be sure to check our advent calender every day: https://t.co/GP9b9Xmutu

[PKU-Board @PKUBoard]

#ESPKU2016 discussion on PKUBoard! https://t.co/0UfLcaYAMT

[ESPKU @official_espku]

Join the discussion about #ESPKU2016 on @PKUBoard! https://t.co/PrWhahJeKn

[ESPKU @official_espku]

Get ready for some very interesting days and a great program at the #ESPKU2016 starting tomorrow! https://t.co/XRPQhPRzhC

[ESPKU @official_espku]

Only one week left until #ESPKU2016? Don't forget to check the conference website for the latest updates: https://t.co/PgcQj4nEhX

[ESPKU @official_espku]

Wondering what's planned for the #ESPKU2016 in Dublin? We have published the preliminary program on our website: https://t.co/XRPQhPRzhC

[ESPKU @official_espku]

Did you ever think that refugees are having children with metabolic disorders? Only if we act we can avoid damages: https://t.co/0dO0RTEIiE

[ESPKU @official_espku]

#ESPKU2016 registration deadline is September 16th. If you haven't yet go check out our conference website: https://t.co/PgcQj4nEhX

[Int. PKU Day @PKU_Day]

June 28th! International #PKUDay is TODAY!
Share this message to support! https://t.co/Jo9s2fDcce

[PKU-Board @PKUBoard]

Join the #GuthrieMemorialDinner on June 28th
- https://t.co/hfaf9W62y1