Int. PKU Day

[ESPKU @official_espku]

🎀 October is #BreastCancerAwarenessMonth 🎀

Women with #PKU — remember:
🔹 Regular check-ups (USG or mammography)
🔹 Self-exams 👐
🔹 Inform your PKU doctor if anything unusual is found

💪 Early detection saves lives!

[ESPKU @official_espku]

It's World Mental Health Day! We use #WMHD2025 to emphasize the influence of PKU on mental health of patients & their families. This year in accordance with the theme 'Mental health in humanitarian emergencies' we urge everyone to remember about patients that experience them.

[Int. PKU Day @PKU_Day]

Happy International PKU Day! 🌍 Add #IPKUDAY2025 and show us how you're celebrating! 🥳

Read @official_espku statement about how patients and families inspire their advocacy:

https://t.co/ZyrhmtAhCi

[ESPKU @official_espku]

At this year's #ESPKUConference2025 the first revision of the European Guidelines on PKU diagnosis and treatment will be discussed!

Read it here: https://t.co/u89xw7gr8t 📖

You`ll have a unique chance to ask experts your questions! 🙋‍♀️🙋‍♂️ Read them to maximize the discussion.

[ESPKU @official_espku]

✈️ Traveling with PKU or allied disorder treated like PKU? Get your E.S.PKU Metabolic Passport! 😃 It eases security checks & provides vital info abroad.

📞Contact your local E.S.PKU member PKU association to get yours.

Already used it? Share your story: 📩 [email protected]

[ESPKU @official_espku]

Our #shadesofpku campaign is wrapping up! We've highlighted #unmetmedicalneed in PKU, from food access to adult care. Your engagement on #shadesofpku made a huge impact. Thank you for raising your voices! #IPKUDAY2025

[Anita MacDonald @macdonj]

International PKU Day - its time to remember our heroes!

[ESPKU @official_espku]

Today, for #shadesofpku & #IPKUDAY2025, we celebrate the immense power of the PKU Community! 💪 It's where patients & families find unwavering support & understanding. We unite to raise PKU awareness. It`s one of the lightest shades of PKU.

[Int. PKU Day @PKU_Day]

Thank you for celebrating #IPKUDAY2025 🙂We love seeing the PKU Community getting together to celebrate and raise awareness.

[ESPKU @official_espku]

Thank you to patients, families, organizations 🤝, professionals 👩‍⚕️👨‍⚕️, and companies 💊 and their employees for making #IPKUDAY2025 special! Your engagement showed the shades of PKU. Together, we're raising awareness and making a difference! 💪

[Anita MacDonald @macdonj]

Together the contributions of Horst Bickel and Robert Guthrie were two visionary pioneers who started early diagnosis and early treatment of PKU. Their shared birthday, 28 June, is now celebrated as International PKU Day, honouring their legacy.

[当事者・家族のための「希少疾患オンラインコミュニティ」【QLife】 @QLifePAT]

【明日6月28日は #国際PKUデー】
#フェニルケトン尿症（#PKU）に深くかかわる2人の誕生日なんです🎉

PKU当事者・ご家族の皆さま、
この機会にオンラインコミュニティに参加してみませんか？😉

⏬参加はコチラから⏬
https://t.co/Xdhxvf371u

#今日は何の日
#InternationalPKUDay #IPKUDAY2025

[Skat @PavelMichek]

Dnes je mezinárodní den #PKU. Vzácné nemoci, kdy člověk nesmí většinu dostupných potravin, protože bílkoviny. Pacientská org. @NSPKUcz se rozhodla šířit povědomí o této nemoci pomocí putovního předmětu TB (travel bug). Díky @Klub_CF za inspiraci! #IPKUDAY2025 #geocashing

[NPKUA @NPKUA_Info]

Today is International PKU Day! 🌍 We're joining @official_espku and the global PKU community to raise awareness, share stories and celebrate PKU progress.

Join today's movement by making your own posts using the hashtag #IPKUDAY2025

[Int. PKU Day @PKU_Day]

Happy International PKU Day! 🌍Add #IPKUDAY2025 and show us how you are celebrating. 🥳

Read @official_espku statement about how patients and families drive our advocacy actions:

https://t.co/ZyrhmtAhCi

[ESPKU @official_espku]

We're amplifying the call for more research on adults with PKU! Their experiences and health status need to be better understood
As part of our #shadesofpku campaign for #IPKUDAY2025, we're raising #adultpkuawareness. Let's push for studies that truly reflect adult life with PKU.

[ESPKU @official_espku]

Two Days Left! Nominate a candidate for the Sheila Jones Award! 🏆 🗝️

This is a fantastic opportunity to honor an unpaid individual, group, or patient organization that has made a significant difference.
Go to:

➡️ https://t.co/M7AiOPBb1S

[ESPKU @official_espku]

Today during our #shadesofpku campaign for #IPKUDAY2025 we highlight the inequality in access to various methods of therapy for adults with PKU. 🧐 We emphasize that adults should have access to all methods of therapy including the newest pharmaceutical options. 💊

[Int. PKU Day @PKU_Day]

PKU acossiaton in Ireland 🇮🇪 is organising an online meeting in celebration of this year's International PKU Day! #IPKUDAY2025 Details below👇

[ESPKU @official_espku]

#IPKUDAY2025 #shadesofpku highlights crucial PKU healthcare transition. EU Guidelines Rec. 25 demands specialized adult care. This #pkuunmetmedicalneed means planned, patient-collaborative transitions are key to avoid lost follow-up. We urge adherence for patient quality of life.

[Int. PKU Day @PKU_Day]

Register now! #ESPKUConference2025

[ESPKU @official_espku]

🚨 Registration is NOW OPEN for the European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria (E.S.PKU) Conference 2025! 🚨

👉 Click here to register: https://t.co/d5pJdkcXzY

See you in Hamburg! 🇩🇪 #ESPKUConference2025 #ESPKU2025 #PKU