PKUhub

PKUhub... The virtual meeting point for PKU's...such a big part of a small number of peoples' lives...Est'd 2004. It's all in our genes! 🧬

[PKUhub @PKUhub]

⚠️⚠️Random Poll Alerrt! ⚠️⚠️

Have you or do you often have a Zero soft drink if you can’t get hold of full sugar? #PKU

[Anita MacDonald @macdonj]

Coming soon........

[PKUhub @PKUhub]

Why do we say ‘oh’ instead of ‘zero’? Oh is a letter…! 🤔

[Annabelle Skidmore @AnnieSkidmore2]

WE NEED THE RESEARCH BUT I NEED YOU...
For the next study of my PhD to take place and get this much needed research, I need YOU! If you have PKU, are aged 18 or over (UK based) and do regular activity please give me a message or email [email protected] Thank you!

[Anita MacDonald @macdonj]

Sainsbury's Gingerbread Chutney with Cinnamon & Nutmeg, Taste the Difference: low protein/exchange free

[PKUhub @PKUhub]

Great to see my secondary school on tv tonight in #questiontime 😊

[PKUhub @PKUhub]

@PKUFamily @NSPKU So what's the answer then? 🤔

[PKUhub @PKUhub]

@macdonj I need to get this ordered! 😊 💚

[Kate Learoyd @PKUFamily]

Imagine how annoying it is if the “bottomless” refills all contain phenylalanine sweetener so you can’t drink them because you have pku and you can’t eat most of the food on the menu because you have pku. @nspku

[Annabelle Skidmore @AnnieSkidmore2]

I NEED YOUR HELP...
For the next study of my PhD to take place and get this much needed research, I need YOU!

If you have PKU, are aged 18 or over and do regular activity please give me a message or email [email protected]
Thank you so much! @macdonj @lewisgough

[PKUhub @PKUhub]

https://t.co/XoeWXw5EMU - time to start practicing! #Halloween2025 #pku

[Anita MacDonald @macdonj]

Sainsbury's Free From Chocolate Brioche Rolls: 1 finger = 1.8g protein (2 PKU exchanges)

[PKUhub @PKUhub]

@VitafloRDs Looks good! 👍. Makes things a lot easier to find, sometimes it’s all people need, let us know once it’s done!

[PKUhub @PKUhub]

The @BACScargo committee I sit on, are fundraising for @NSPKU this year. Check out their @JustGiving page and please share & donate if you can. Thank you! 💚 😊 #JustGiving https://t.co/cwRjTWJani… #PKU #NSPKU

[PKUhub @PKUhub]

@simon_reeve Must be so peaceful ☺️

[PKUhub @PKUhub]

@macdonj Yum! 😋

[Anita MacDonald @macdonj]

Mutti Pasta Sauce with Basil: low protein/exchange free

[Promin Metabolics @ProminMetabolic]

Promin Low Protein Rice Puddings are creamy, satisfying and made for moments of pure joy! ❤️🍚

Samples can be requested via this link https://t.co/y3IZZDGJlI

#MadeWithPromin #lowproteindiet #lowprotein #PKU

[Anita MacDonald @macdonj]

Some amazing low protein savoury delights by Chef Derek at the #DMIMD25