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PKUnity
@PKUnity
Co-founded by @haggarty_claire & @katebucklandPT PKUnity supports patients w/
#phenylketonuria
RTs & recipe shares are not endorsements All views our own
England, United Kingdom
Joined August 2016
627
Following
191
Followers
616
Posts
PKUnity
retweeted
Rare Disease Day
@rarediseaseday
over 9 years ago
Be part of the change in February! Change your Facebook cover photo to the attached banner in order to create awareness of rare diseases!
PKUnity
retweeted
Rare Disease Day
@rarediseaseday
over 9 years ago
February is here! As well as the cover photo, change your profile photo and become a part of the international campaign!
#RareDiseaseDay
PKUnity
retweeted
Rare Disease Day
@rarediseaseday
over 9 years ago
THE OFFICIAL RARE DISEASE DAY 2017 VIDEO IS OUT NOW! Share the video to become part of the international
#RareDiseaseDay
campaign!
rarediseaseday's tweet video.
PKUnity
retweeted
Rare Disease Day
@rarediseaseday
over 9 years ago
'With research, possibilities are limitless'. What does this year's theme mean to you? https://t.co/72YxCtU4FM
Who to follow
Promin Metabolics
@ProminMetabolic
Family run company supplying low protein foods and meal solutions for people with #PKU
ESPKU
@official_espku
Official Account of the European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria
PKUnity
retweeted
PKUnity
@PKUnity
over 9 years ago
I said we'd do these more often! Interested to know ur opinions on this: Should
#PKU
diet be "Diet-for-life"?
PKUnity
@PKUnity
over 9 years ago
@Paul_van_Berkel personally as Claire I agree&will b diet4life.But I have met many people who disagree. As
@PKUnity
I have to be open to all
PKUnity
@PKUnity
over 9 years ago
@slneedleman you can get it online but I really wouldn't know about US shipping/customs laws. Canada wouldn't let me bring PKU milk in
PKUnity
retweeted
Gene People
@GenePeopleUK
over 9 years ago
During
#UKCharityWeek
we'd like to thank all those that support us,
@JeansforGenes
and children with
#GenetcDisorders
PKUnity
retweeted
BCH Metabolics
@MetabolicsBCH
over 9 years ago
Fate leek and sweet potato low protein soup - not just a soup for Xmas. Delcious and substantial!
PKUnity
retweeted
BCH Metabolics
@MetabolicsBCH
over 9 years ago
Another classic and easy low protein recipe- Fate low protein truffles.
PKUnity
@PKUnity
over 9 years ago
Not everyone shares that opinion @Paul_van_Berkel
PKUnity
retweeted
Med Student Genomics
@MedStudent100k
almost 10 years ago
If left untreated in pregnancy
#phenylketonuria
may lead to
#microcephaly
in babies
#PKU
#genomics
#100kGENOMES
PKUnity
retweeted
Nat Boyson
@NatBoysonPKU
almost 10 years ago
mevalia_lp rice with
#slowcooker
#veggies
#curry
#lowprotein
and
#phenylketonuria
friendly https://t.co/vZSB4PNF53
PKUnity
retweeted
Nat Boyson
@NatBoysonPKU
over 9 years ago
Festive cakes from mr Kipling only 0.7g protein per cake
#phenylketonuria
#treat
https://t.co/Qizo476iGN
PKUnity
retweeted
Nat Boyson
@NatBoysonPKU
over 9 years ago
Mmm that
#lowprotein
soup & bread combo hit the spot
#phenylketonuria
#timelapse
https://t.co/R2eVYFeiwC
PKUnity
@PKUnity
over 9 years ago
Looks very healthy https://t.co/gLrTRKS1qP
MAPKUF
@MDAllianceofPKU
over 9 years ago
Tonight's dinner 🍴.
#dietforlife
#pkustrong
#pkuproud
#phenylketonuria
#phenylalanine
… https://t.co/4UhU0LQFq5
PKUnity
retweeted
Nat Boyson
@NatBoysonPKU
over 9 years ago
#30minutemeals
style
#lowprotein
pizza with violife_foods
#vegan
cheese
#phenylketonuria
#pku
https://t.co/WfibBEdIrW
PKUnity
@PKUnity
over 9 years ago
Well done reading all that
@luke_nutrition1
I hope you had a cup of ☕️ to get you through all that! https://t.co/ABEc0jAQ6j
PKUnity
retweeted
PKUhub
@PKUhub
over 9 years ago
The most amazing thing about
#PKU
is the people who live with it and their stories... Who's got one they want to share?
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