POWIPF

specialist nurse at princess of wales hospital. This account is to tweet and network with others regarding ipf.views are my own and not of my employer

[SPH- Respiratory electronic health records @RespEpi]

New publication from our team: investigating palliative care in IPF. Palliative care referral too little too late https://t.co/VVdwVcxgG6 @DrPeter_George

[POWIPF @POWIPF1]

@JustGiving shame on you just giving, paid £282 from charity run into my bank to donate to the just giving page and you charged me to process this. You charged me over £50.

[PF Trust @PFTrust]

Please join us in congratulating the Princess of Wales Hospital team for completing their run and raising an absolutely incredible £800 for far!! #PFAM #EveryBreathEveryStory

[POWIPF @POWIPF1]

This is my support group members. Look at these lovely faces, couldn't do this without the support of @SandvilleSHF

[POWIPF @POWIPF1]

Just a few pics of our September activity . We have raised a massive amount for @PFTrust .
We raise money every year for a chosen charity that supports pf.
@ActionPFcharity
@ild_inn @asthmalungcymru @CwmTafMorgannwg

[POWIPF @POWIPF1]

Here we are again! Powh ipf support group

[Action for Pulmonary Fibrosis @ActionPFcharity]

We have an exciting new launch of the Salisbury #pulmonaryfibrosis support group tomorrow:

📅Wednesday 25 September
⏰11:00am - 1pm
🗺️Wilton Community Centre

More details on our website:
https://t.co/hx0q48Riji

Find your local support group here:
https://t.co/jSCwDif0js

[POWIPF @POWIPF1]

All going well #pf2024 @ActionPFcharity @PFTrust

[POWIPF @POWIPF1]

Raising awareness for PF month. Stand at Princesse of Wales Hospital.. come and say hello #ipf @PFTrust @ActionPFcharity @CTMAcuteMed @CwmTafMorgannwg

[POWIPF @POWIPF1]

@kbrespresearch @HullHospitals @Sykesy5 @Helena266614472 Would really love to talk to you about the gefipixant poster.
I have just completed my dissertation MSc for cough in ild patients.
Read the research papers

Could you drop me your email so I can ask a few more things?

[ERS @EuroRespSoc]

New Coffee talk available now!

Watch episode 12: ‘An update on pulmonary hypertension associated with interstitial lung disease’ now on the ERS Respiratory Channel: https://t.co/j0ctiXv9pE

[POWIPF @POWIPF1]

@josouzakings That's a great thought!

[POWIPF @POWIPF1]

@ShazzaHudson @ClareFuller17 I have faced this repeatedly for my patients, referred but relayed as inappropriate as the patients are not deemed to have a "specialist palliative care need" but are close to end of life. Very frustrating

[POWIPF @POWIPF1]

Times need to change, we are entitled to voice concerns regarding competence, patients treatment, behaviours and values. This is similar to patients relatives concerns that need investigating. lets level it up.

[POWIPF @POWIPF1]

https://t.co/IFEYybBqBE

[POWIPF @POWIPF1]

Interesting, the statement if recommendation for oxygen therapy isn't particularly clear though
?

[ERS publications @ERSpublications]

ERS task force report: recommendations on symptom management in adults with serious respiratory illness, including multicomponent services, graded exercise therapy, fan therapy, breathing techniques, supplemental oxygen, opioids and needs assessment https://t.co/l3h9HuKqPv

[POWIPF @POWIPF1]

Thus is a thoughtful quick read, I'm guilty of the complaint of! I will reflect in this #bad words

[The BMJ @bmj_latest]

What are the well intentioned phrases that doctors use in their everyday work that can hurt patients?

@dr_mattmorgan looks at some examples and explains why he particularly objects to the term “ceiling of care”
https://t.co/N53kbbE9m6

[POWIPF @POWIPF1]

@Shola_timi I only wish I had more guidance from my supervisor.... 8 weeks left till my submission date and had a mini wobble today, tears and defeat is how I'm feeling 🥲

[POWIPF @POWIPF1]

Question.
What does your local community 02 team do with regards to prescribing 02 for pf patients who has family members that smoke or vape outside their property.... is it a no way or a mitigated risk assessment. Asking for a friend 😉

[POWIPF @POWIPF1]

I agree, from novice to expert. There's also the gift of intuition 😌