PSC Partners Canada

Mission: to drive research to identify treatments and a cure for PSC, while providing education and support for those impacted by this rare disease.

[PSC Partners Canada @PSCPartnersCa]

Support & Community available for those affected by #PSC in two @PSCPartners Facebook Groups! Find out more at
https://t.co/6yXMWsSEPO
https://t.co/t394sDlrP8
Join the conversation and welcome to the best family we wish you didn't need.

[Jesus Bañales @JesusMBanales]

20 Years International Research Experience in PSC: What Have We Learn?

👉International Collaborations matters & make the difference
@ipscsg @CcaEns

👉Patient Associations play a central role @PSCPartners @PSCSupportUK

@tomhemmingk at the stage, who better than him! 👏

[biohub @biohub]

Community-driven research is critical to advance scientific discovery

Science in Society meeting attendees share posters on their work to push for treatments or cures in their rare disease areas, emphasizing the critical role that patients & communities play in driving discovery

[PSC Partners Canada @PSCPartnersCa]

Last call to register: Sat Paeds PSC Day webinar for patients & families w amazing expert speakers Gideon Hirschfield, @amandaricciuto, @MacparlandSonya, @garybader1, Sarah Kohut, Amrita Mundh, & Albert Fung fr @UHN @UofTGastroH @SickKidsNews @TVASurg https://t.co/qreA4zT3sV

[PSC Support @PSCSupportUK]

People with #PSC can experience an infection of the bile ducts (called “PSC flare” or “cholangitis attack”). If you're a PSC patient who's had an attack or flare consider filling in this survey, helping us improve care and develop treatments. https://t.co/43ubpu1oBZ @PSCPartners

[PSC Partners Canada @PSCPartnersCa]

@tomhemmingk @PSCPartners Thank you all!!!

[PSC Partners Canada @PSCPartnersCa]

Help us reach paediatric PSC families w news of Canadian Paediatric PSC Day on June 1 @ Toronto. Full day educational programming & peer support. Register @ https://t.co/u89eVQGUlm
@CASLupdates @amandaricciuto @MacparlandSonya @BinitaKamath @DrSimonLing @AASLDtweets @NASPGHAN

[PSC Partners Canada @PSCPartnersCa]

Patients & families: Today & Tomorrow: Event for paeds autoimmune liver @ Center for Autoimmune Liver Disease at Cincinnati Children's Hospital & ALiNK.

Reg open through noon tomorrow for online attendance.

1.Register: https://t.co/U698uHyU4E...
2: instructions to join online

[Trillium Gift of Life Network (Ontario Health) @TrilliumGift]

Tonight, the @TourCNTower will be lit green to kick off National Organ and Tissue Donation Awareness Week (#NOTDAW). Remember to check that you’re a registered organ and tissue donor at https://t.co/zbQiaLn1aL

[PSC Partners Canada @PSCPartnersCa]

Stephanie Azzarello is 39, she lives in Toronto and works at the University of Toronto in the art history department as a researcher and lecturer. She also has PSC and is on the transplant wait list hoping to find a living donor.
Read her full story here:
https://t.co/BezBUxlfzm

[PSC Partners Canada @PSCPartnersCa]

2024 Canadian Paediatric PSC Day for patient families! Registration is open for this June 1 event to be held in Toronto, Ontario.
Full information at https://t.co/THTnOw9TUR @PSCPartners #PSCAware

[PSC Partners Canada @PSCPartnersCa]

PSC Partners Canada is happy to announce that registration is NOW OPEN for the first Canadian Paediatric PSC Day happening June 1 at the Arts and Letters Club in Toronto.
Register here 👇 https://t.co/Xf9yqJOyk2
@PSCPartners #PaediatricPSCday #pscaware

[PSC Partners Canada @PSCPartnersCa]

Save the date for the first ever Canadian Paediatric #PSC Day on June 1st at the Arts & Letters club in Toronto, Ontario, Canada! Registration will open in March and travelships will be available on a first come first serve basis. Stay tuned for updates! #pscaware @pscpartners

[PSC Partners Canada @PSCPartnersCa]

Calling all Canadian #PSCers and family members of a #PSCer who transitioned to adult care during the past few years. Please join this virtual town hall on Feb 8! #PSCAware

[PSC Partners Canada @PSCPartnersCa]

This cost-free research program is open to #PSC'ers in Canada and US! Check it out!

[EMPOWER Program @program_empower]

🎉 New Year, New You! 🌟 Kick off 2024 with our 12-week Online Wellness Program tailored for adults managing chronic conditions. 💪💙 Empower your journey with wellness, mind-body connection, & a supportive community. Click https://t.co/FwMvfJ4Z3Y

[Sonya MacParland @MacparlandSonya]

Rare liver disease research made possible through teamwork, collaboration, open science with the patient experience and voice at the heart of the whole process.
https://t.co/WSTTAl5UeW

[PSC Partners Canada @PSCPartnersCa]

Teamwork Science! New publication with insights on what is going on at a cellular level in #PSC. So grateful for this team and the CIHR funding making this type of discovery possible! @PSCPartners

[Sonya MacParland @MacparlandSonya]

Thrilled to share our team's newest paper examining the cellular ecosystem of Primary Sclerosing Cholangitis, a rare liver disease that has no current treatments, a fact that we hope to change with our single cell, single nuc and spatial atlasing efforts! https://t.co/uXRZuYbTwb

[PSC Partners Canada @PSCPartnersCa]

Patients, families, clinicians, & scientists gathered for #PSC @PSCPartners What the Cell?! Toronto event. Videos at https://t.co/pilKXCnbph
News release at https://t.co/T20P407rHW
@MbD_UofT @UHNTransplant @MacparlandSonya @amandaricciuto @DianaNakib @garybader1 @AutoImmuneLiver

[PSC Partners Canada @PSCPartnersCa]

The Quality of Life in PSC conversation w liver experts from Australia, Belgium, and UK for this global #pscaware day.

[European Liver Patients' Association @EuropeLiver]

Extraordinary ELPA High-Level Roundtable Discussion on this #GlobalPSCDay
Unlock the Secrets of PSC Symptoms, Treatment & Life with Leaders like Sindee Weinbaum, Mary Pressley Vyas, Prof. Dr. Doug Thorburn, Dr. Kate Lynch, and Prof. Dr. Thomas Vanwolleghem
https://t.co/Za5anHZmAF

[European Liver Patients' Association @EuropeLiver]

Primary Sclerosing Cholangitis (PSC): A #RareLiverDisease That Needs Our Attention!

Do you know what PSC is? It's a rare condition that affects the bile ducts, causing scarring and narrowing. This can lead to liver damage and impact digestion.
#LiverCancerAwarenessMonth #PSCDay

[PSC Partners Canada @PSCPartnersCa]

@sjhatch_joanne @amandaricciuto @AutoImmuneLiver @PSCPartners @PSCSupportUK @pscsupportau @EuropeLiver @AASLDtweets Yes! The videos will be posted as soon as possible. Please stay tuned! Thank you to all of the amazing speakers providing much needed #hope based on science & #support based on human connection and access to information. #grateful #PSCAware