@ravensspirit68 I suffer w/underlining chronic debilitating painful side effects, I lv in CA, where the best Urogynecologists/PM's are, no1 will treat pain patients, afraid of losing their medical license, abandoning us. I am not an opioid addict; I am Mesh Injured 4 life! #PainCareCrisis
I just heard experts say that encouraging bupe as first line for chronic pain helps people w OUD bc then pharmacies will stock up- so using pain pts once again. Who cares if bupe help pain pts or not right? So gross.
“90% of EDS patients report chronic pain according to research, with pain often being the first symptom. Yet, many are still told it’s ‘just anxiety’ or ‘in their head.’ Why isn’t this fact more widely known? EDS pain is real, complex, and deserves to be taken seriously.
I received a message from a mom whose son is battling brain cancer and the doctor is only willing to prescribe gabapentin
He said he won’t lose his license
We need everyone to vote on this policy
https://t.co/9bOmHqZqyC
#chronicpain how many of you with rare painful diseases have found pain to be so extreme that you found yourself screaming, some say screaming into your pillow, but screaming in general. please retweet
This might be the most tone-deaf post I've seen in a while.
Stanford, patients lost access to analgesics, so some began drinking alcohol to survive. I've met patients that measure out shots of alcohol to *dose* themselves so they can sleep a little.
Treat pain appropriately again, & alcohol use in pain patients will evaporate.
Our problem isn't drug use or alcoholism. It's severe, longstanding pain.
To those of you who have lost access to appropriate pain treatment, & you feel forgotten & alone:
You aren't alone. There are thousands of us. I know it's cold comfort, but we can remember each other, if nothing else.
Try & hang on to an ember of hope, if possible. There are people fighting just for us. 💪❤️