UK National Haemoglobinopathy Panel

A network providing strategic leadership, oversight, & clinical decision-making for haemoglobinopathy patients. Chair: Prof. Baba Inusa @PdbInusa

[UK National Haemoglobinopathy Panel @PanelNational]

Our website now includes a page which will contain guidance and information related to the COVID-19 vaccine for patients with haemoglobinopathies. We'll keep it updated in line with new developments. https://t.co/LB2GLwBHwG #COVID19Vaccination #COVIDVaccine #teamhaem

[DBAS UK @DBA_UK]

Thank you to all our #blood-donors @NHSBT
Thank you to @PanelNational
Thank you to all our families

[UK National Haemoglobinopathy Panel @PanelNational]

Big day tomorrow for all our excellent clinicians and experts in haematology and #SickleCell and of course their patients. Awareness and advocacy are vital. #SickleCellAwarenessDay

[UK National Haemoglobinopathy Panel @PanelNational]

...and as the NHP's very own Deputy Chair, Prof. Porter provides invaluable expertise for our monthly complex patient MDTs.

[UK Thalassaemia Society @teamukts]

Third to present is Prof John Porter, Consultant Haematologist at University College London Hospital and lead for the joint red cell service with the @WhitHealth @HCC_UCLH on clinical trials

Prof Porter is also the Vice Chair of the @PanelNational for #thalassaemia!

#uktsconf

[UK National Haemoglobinopathy Panel @PanelNational]

Well done and congratulations @gpadmore1

[UK Thalassaemia Society @teamukts]

Incredibly proud of Giselle Padmore-Payne ,Senior CNS who dedicates her all to improve the lives of those with #thalassaemia & #SCD

HRH "Whenever I have the great pleasure of meeting Roald Dahl Specialist Nurses,I'm always struck by kindness, resourcefulness & boundless energy"

[UK National Haemoglobinopathy Panel @PanelNational]

Important research on #COVIDVaccination in cancer patients from @KingsCollegeLon

[BSH - Haematology @BritSocHaem]

Cancer patients may need their second dose of COVID-19 vaccine in three weeks, not 12 weeks, British researchers reported last week. https://t.co/5iVllWe6Xv

[UK National Haemoglobinopathy Panel @PanelNational]

Our friends at West London HCC have produced an informative FAQs guidance sheet on the #CovidVaccine. Find it along with other guidance on COVID-19 vaccines in haemoglobinopathy patients on our website. Thanks @docesr and colleagues. https://t.co/LB2GLwBHwG

[UK National Haemoglobinopathy Panel @PanelNational]

Interested in learning more about 'transfusion challenges in haemoglobinopathy'? You can view the video of this event hosted by @STSTNetwork & the papers given by @redcellsara & Dr Stella T. Chou of the Children's Hospital of Philadelphia via our website: https://t.co/fqiDXPKWKi

[UK National Haemoglobinopathy Panel @PanelNational]

The Sickle Cell Disease Association of America Medical and Research Advisory Committee (MARAC) has issued a statement regarding the temporary suspension of bluebird clinical trials of LentiGlobin Gene Therapy for Sickle Cell Disease. Read via our website: https://t.co/OPlArtSedA

[UK National Haemoglobinopathy Panel @PanelNational]

We have recently published information on COVID-19 in haemoglobinopathy & rare anaemia patients, dealing with case numbers, hospitalisations & clinical outcomes. It can be found with other resources on COVID-19 on our website https://t.co/joDR6fTemF

[UK National Haemoglobinopathy Panel @PanelNational]

Our NHP clinicians are at the forefront of treating patients with rare anaemias and helping them to live healthy and fulfilling lives. Long may it continue. #RareDiseaseDay2021

[DBAS UK @DBA_UK]

#RareDiseaseDay2021

[UK National Haemoglobinopathy Panel @PanelNational]

Lets continue looking out for each other. #OneTeam #mentalhealth #MentalHealthAwareness

[Imperial NHS 💙 @ImperialNHS]

Asking twice can make all the difference.

Here are some tips on how to start conversations about mental health with your friends, family or colleagues.

#TimeToChange #MentalHealth ⬇️

[Imperial NHS 💙 @ImperialNHS]

Asking twice can make all the difference.

Here are some tips on how to start conversations about mental health with your friends, family or colleagues.

#TimeToChange #MentalHealth ⬇️

[UK National Haemoglobinopathy Panel @PanelNational]

Thanks to all those who attended yesterday's monthly MDT for February, some excellent and thought-provoking discussions on pregnancy in #sicklecell patients, management of extramedullary haematopoiesis, and other issues.

Next MDT is Monday 29th March.

[UK National Haemoglobinopathy Panel @PanelNational]

NHP clinicians! One for the calendar. #sicklecelldisease #thalassaemia

[Sara Trompeter @redcellsara]

Really interesting sequence of talks with experts in genomics and blood transfusion. A must for people interested in blood transfusion #sicklecelldisease #thalassaemia @PanelNational

[UK National Haemoglobinopathy Panel @PanelNational]

Hello NHP clinicians - who's interested? Please pass on to all who may be interested in this opportunity. #haemteam #clinicalscience

[BSH - Haematology @BritSocHaem]

BSH is looking for a clinical scientist to represent haematology at the ACS. The BSH representative is nominated as an ACS Director/Trustee and is considered the lead for the haematology within the ACS. To apply go to our website. https://t.co/pyY8NRnjv1

[UK National Haemoglobinopathy Panel @PanelNational]

Rebecca Sekyere, a Haemoglobinopathy CNS in Leicester, talks about her experience of getting the #COVID19Vaccine

[Rebecca Sekyere @RebeccaSekyere]

https://t.co/UUlKsGJNa5

[UK National Haemoglobinopathy Panel @PanelNational]

Please circulate among South London-based patients, families, and clinicians, and encourage them to take part in this important initiative. It's a brief survey, will only take 5 minutes to complete. #sicklecell

[UK National Haemoglobinopathy Panel @PanelNational]

Another important piece of work from clinicians involved with the NHP. Kudos!

[Sara Trompeter @redcellsara]

If you are interested in our plans to improve transfusion for people with sickle cell you may find this interesting #SickleCell @SickleCellUK @RedCellsrus @PanelNational @NHSBT_RD

[HCC_UCLH @HCC_UCLH]

"HCC is looking forward to the new Grafton Way Building, with our fantastic art installation, by Dryden Goodwin, giving us an amazing presence and featuring some of HCC’s heroes."
Stephen Rowley
HCC Chair
Senior Matron Haematology @uclh

[Sara Trompeter @redcellsara]

If you are interested in our plans to improve transfusion for people with sickle cell you may find this interesting #SickleCell @SickleCellUK @RedCellsrus @PanelNational @NHSBT_RD