@PMOIndia
Pls save our kids suffering from DMD. Day by day they are losing their life & dream. Not only them but their entire family is in a state of disarray. Make way for our children to be healed from this deadly disease.I beg you to help me in my quest to find medicine. 🙏
The Supreme Court today (August 9) today heard a batch of petitions filed by parents of children suffering from Muscular Dystrophy who seek a policy for free treatment of the disease.
Read more: https://t.co/FKztRZyTSV
#SupremeCourtOfIndia#MuscularDystrophy
#SupremeCourt hears PIL seeking to commence a national programme for treatment of children with muscular dystrophy
Adv : 5 of the petitioners are dead, 10 are critical as of now. We are living in rule of law, how can we have a situation
CJI: file a short response
@PMOIndia
Pls save our kids suffering from DMD. Day by day they are losing their life & dream. Not only them but their entire family is in a state of disarray. Make way for our children to be healed from this deadly disease.I beg you to help me in my quest to find medicine. 🙏
@barandbench Duchenne Muscular Dystrophy (DMD) is very dangerous diseases, after 10 years he can not earn without parents help. There is no treatment in our india. I request PM to save our child of DMD awareness.
@barandbench#SupremeCourt
Please save our sons. We are helpless to save a person please look at it, dekhiae bacchon ke aankhon mein ek chalne ke liye kitni badi asha hai ki ham bhi Apne kadmon per chalenge. Aap hamari is muhim mein hamari sahayata Karen hamare bacchon ki jivan pradan Karen
Supreme Court hears a plea seeking a national scheme for treatment of patients of advanced stage muscular dystrophy after entertaining a petition by parents of 251 children afflicted with this near fatal rare disease
Adv: since the filing of petition, 4 have already died
ASG Aishwarya Bhati: we will file a report showing measures that we will be taking.
CJI: Let it be filed
#SupremeCourtOfIndia
@SCofIndia
I request to Honorable CJI that there are millions of children are suffering from Muscular Dystrophy disease in India. They are going to death. We request to Central government via tweet and letter for the treatment & research, but no result. So I request to Honorable
BharathMD foundation express gratitude to Dean Sir Dr.Srinivas ESIC,Dr. Kodandapani,Professors , Dr. Santosh Kumar,Dr Vijayasardhi from NIMS, Dr.Varun ,Dr.Subramanyam ,CCMB, CSIR a special mention of Dr. Sudha, Dr Arkasubhra Gosh,SAKSHAM,TMDA for their participation .🙏🙏🙏
மாண்புமிகு முதலமைச்சர் @mkstalin அவர்கள், மாண்புமிகு ஒன்றிய வெளியுறவுத் துறை அமைச்சர் டாக்டர் @DrSJaishankar அவர்களை தொலைபேசி மூலம் தொடர்பு கொண்டு, இலங்கையில் நிலவும் பொருளாதார நெருக்கடி காரணமாக பாதிக்கப்பட்டுள்ள இலங்கைத் தமிழர்களுக்கு உதவிட வலியுறுத்தினார்.
தசை சிதைவு நோயானது ஒரு பரம்பரை நோய். ஒரு குழந்தை பாதிக்கப்பட்டால் அடுத்த குழந்தையையும் தாக்கும்.
அடுத்த தலைமுறையை தாக்காமல் தடுக்க கருவுற்ற தாய்மார்கள் கருவுற்ற மூன்று மாதத்திற்குள் மரபணு சோதனை செய்வது கட்டாயம்.
🙏🙏
@Boomi44516601#MuscularDystrophy#SaveTheChildren