Patient Zero

AutonomicFailure✰ETS Survivor✰Primary Erythromelalgia & Raynaud's Expert✰RSD/CRPS✰Audiogenic/Sensory Reflex Epilepsy w/NCSE✰Educating all on these rare diseases

[Erythromelalgia Warriors @EM_Warriors]

#emwarriors

[Patient Zero @PatientZero0]

OPPOSE H.R. 620 https://t.co/bLQRUgSClj #Disability #Rights

[NIH @NIH]

Are you one of the estimated 25 million Americans affected by #RareDiseases? Join us on Feb. 23 from 1:00 - 2:00 pm ET for a Twitter chat on rare diseases. @NIHDirector, @ncats_nih_gov Director Dr. Christopher Austin, & many more will be there. Ask questions using #NIHchat!

[Patient Zero @PatientZero0]

If you’ve followed me long enough you know by now I will always SUPPORT #PatientRights humane treatment for #ChronicPain & OPPOSE the real epidemic of illegal drug distribution by the criminals we should be focused on - not vulnerable law abiding patients.

[Patient Zero @PatientZero0]

W/disclosing what they’ve been doing, if you see any odd tweets/threats here, please alert me ASAP. B/f the stalking escalated, the criminals broke into my home, stole/hacked electronics/accounts, spoofed calls, impersonated others (even the fuzz), etc. Seriously alarming & sick.

[Patient Zero @PatientZero0]

@EpilepsyFdn Wow - naturally envious but ecstatic for you - congrats!

[Patient Zero @PatientZero0]

No surprise they target physically vulnerable citizens (& I’m sure those w/all types of disabilities). They behave v similarly to those w/behavioral disorder NPD & falsely believe the are above everyone including the law. So why is nothing being done to stop these crimes???

[Patient Zero @PatientZero0]

To discover what they’ve been doing all this time has an actual name (OrganizedGangStalking) describing their crimes against me & others EXACTLY & the fact that authorities tend to ignore it - equally disturbing.

[Patient Zero @PatientZero0]

I remember when the hardest part of life was managing rare diseases like #Erythromelalgia & my #ETS caused physical disability. Never imagined I’d have to add harassment by paranoid criminals to the list. Their obsessive & dangerous behaviors are highly alarming & disturbing.

[Patient Zero @PatientZero0]

It’s gotten so bad I feel like I have to put it out there in case they try to harm me more. If anything happens to me, know I’m a law abiding citizen, would NEVER harm myself/others, & of don’t suffer from loss of consciousness or mental deficits. Video doesn’t lie. Neither do I.

[Patient Zero @PatientZero0]

I can’t believe what I’m about to share is an actual thing, but it apparently is. I don’t know if its b/c I’m physically #disabled or what, but I’ve been being #gangstalked by area criminals particularly since reporting it to the authorities who’ve done NOTHING.

[Patient Zero @PatientZero0]

Hour 3 of #Audiogenic NC #StatusEpilepticus from depart. aircraft w/jaw #automatism & H/A. Awful since last tweet being trapped back in the toxic env’t that caused the audiogenic seizures. Cue sudden onset of major ictal fatigue & arrhythmia. More later. Must close my eyes.🛌🤯

[Patient Zero @PatientZero0]

Day 2 Home: How much time do I have left? #Audiogenic Non-Convulsive #StatusEpilepticus Miraculously alive 7hrs in NCSE; min of 4 unique prolonged #Seizures w/no recovery b/t; 3 w/Arrhythmia; 2 w/Respiratory Depression; 4 w/jaw motor #Automatism. Now ictal fatigue🤯😴#Epilepsy

[Patient Zero @PatientZero0]

I put myself through the physical trauma of getting home to where my unliveable house & dr are, & now even my temp unsafe room is being sold out from underneath me as I remain mostly bedridden. This nightmare is never-ending. IDK how to get by anymore! #Disabled #EM #Epilepsy

[Patient Zero @PatientZero0]

Great to see more awareness being raised for our disease #Erythromelalgia! https://t.co/uogOJ3f7v2

[Erythromelalgia Warriors @EM_Warriors]

The Fire Inside Our Veins https://t.co/mAIP2hGdRo #fire 🔥 #burningpain #erythromelalgia #Awareness #raredisease #chronicillness #chronicpain #empathy #donate #redhandchallenge

[Patient Zero @PatientZero0]

@mefmbc Checking it out now!

[NIH @NIH]

Want to start your New Year off right? Follow #NIHHealthy2018! On Jan 16. at noon ET, @NIH is hosting a Periscope Live with a panel of experts from @NIH_NHLBI @NIMHgov and @NIDDKgov. Tweet us your questions about health, wellness & kicking bad habits. Twitter-a-thon to follow!

[Patient Zero @PatientZero0]

@TheSeatedView Agreed! Old Dr - KNOWING I had adverse reactions to it - caused my heart condition w/#Prednisone, b/c he didn’t feel like doing the paperwork my new Medicare insurance req for my safe established locally injected treatment. #malpractice #PatientDiscrimination

[Erythromelalgia Warriors @EM_Warriors]

#emwarriors

[Patient Zero @PatientZero0]

Not shocked in the least. Right up there w/the local police corruption & criminals that’ve been harassing me for nearly 2yrs whom the fuzz protects. https://t.co/c29JFPRhSF

[Steve Ariens @Pharmaciststeve]

possible for an individual to go to prison as a result of evidence the U.S. government has deliberately kept hidden… https://t.co/Fr0ghshNFC