AutonomicFailure✰ETS Survivor✰Primary Erythromelalgia & Raynaud's Expert✰RSD/CRPS✰Audiogenic/Sensory Reflex Epilepsy w/NCSE✰Educating all on these rare diseases
Are you one of the estimated 25 million Americans affected by #RareDiseases? Join us on Feb. 23 from 1:00 - 2:00 pm ET for a Twitter chat on rare diseases. @NIHDirector, @ncats_nih_gov Director Dr. Christopher Austin, & many more will be there. Ask questions using #NIHchat!
If you’ve followed me long enough you know by now I will always SUPPORT #PatientRights humane treatment for #ChronicPain & OPPOSE the real epidemic of illegal drug distribution by the criminals we should be focused on - not vulnerable law abiding patients.
W/disclosing what they’ve been doing, if you see any odd tweets/threats here, please alert me ASAP. B/f the stalking escalated, the criminals broke into my home, stole/hacked electronics/accounts, spoofed calls, impersonated others (even the fuzz), etc. Seriously alarming & sick.
No surprise they target physically vulnerable citizens (& I’m sure those w/all types of disabilities). They behave v similarly to those w/behavioral disorder NPD & falsely believe the are above everyone including the law. So why is nothing being done to stop these crimes???
To discover what they’ve been doing all this time has an actual name (OrganizedGangStalking) describing their crimes against me & others EXACTLY & the fact that authorities tend to ignore it - equally disturbing.
I remember when the hardest part of life was managing rare diseases like #Erythromelalgia & my #ETS caused physical disability. Never imagined I’d have to add harassment by paranoid criminals to the list. Their obsessive & dangerous behaviors are highly alarming & disturbing.
It’s gotten so bad I feel like I have to put it out there in case they try to harm me more. If anything happens to me, know I’m a law abiding citizen, would NEVER harm myself/others, & of don’t suffer from loss of consciousness or mental deficits. Video doesn’t lie. Neither do I.
I can’t believe what I’m about to share is an actual thing, but it apparently is. I don’t know if its b/c I’m physically #disabled or what, but I’ve been being #gangstalked by area criminals particularly since reporting it to the authorities who’ve done NOTHING.
Hour 3 of #Audiogenic NC #StatusEpilepticus from depart. aircraft w/jaw #automatism & H/A. Awful since last tweet being trapped back in the toxic env’t that caused the audiogenic seizures. Cue sudden onset of major ictal fatigue & arrhythmia. More later. Must close my eyes.🛌🤯
Day 2 Home: How much time do I have left? #Audiogenic Non-Convulsive #StatusEpilepticus Miraculously alive 7hrs in NCSE; min of 4 unique prolonged #Seizures w/no recovery b/t; 3 w/Arrhythmia; 2 w/Respiratory Depression; 4 w/jaw motor #Automatism. Now ictal fatigue🤯😴#Epilepsy
I put myself through the physical trauma of getting home to where my unliveable house & dr are, & now even my temp unsafe room is being sold out from underneath me as I remain mostly bedridden. This nightmare is never-ending. IDK how to get by anymore! #Disabled#EM#Epilepsy
Want to start your New Year off right? Follow #NIHHealthy2018! On Jan 16. at noon ET, @NIH is hosting a Periscope Live with a panel of experts from @NIH_NHLBI @NIMHgov and @NIDDKgov. Tweet us your questions about health, wellness & kicking bad habits. Twitter-a-thon to follow!
@TheSeatedView Agreed! Old Dr - KNOWING I had adverse reactions to it - caused my heart condition w/#Prednisone, b/c he didn’t feel like doing the paperwork my new Medicare insurance req for my safe established locally injected treatment. #malpractice#PatientDiscrimination
Not shocked in the least. Right up there w/the local police corruption & criminals that’ve been harassing me for nearly 2yrs whom the fuzz protects. https://t.co/c29JFPRhSF