Pattern.org

Pattern is an initiative of the @RareCancerRF that empowers patients by enabling them to directly donate their cancer tissue/fluid and medical data to research.

[Pattern.org @Pattern_org]

Today a Non-clear cell (Chromophobe) Kidney sample will be delivered to @broadinstitute for #CancerResearch! @RareCancerRF #share

[National Brain Tumor Society @NBTStweets]

ICYMI: Last night, the US House passed #PCHETA, a bill that would improve access to #PalliativeCare. Thanks to our advocates for sharing their stories and to the House for recognizing the importance of palliative care for brain tumor patients and families. On to the Senate! #btsm

[IBTA @theIBTA]

The International Brain Tumour Alliance has been building bridges between brain tumour organisations across the world since 2005. Greater collaboration leads to greater knowledge which leads to greater hope. #internationalbraintumourawarenessweek2019 #IBTAWeek #btsm

[Sarcoma Alliance @SarcomaAlliance]

Researchers found that almost a third of adolescent and young adult cancer patients showed cognitive impairment. The largest group of patients in this study had #sarcoma. #AYAcancer #cancerbrain #cancercognitiveimpairment https://t.co/2jJxvTdfIw

[Jesse Boehm @boehmjesse]

Thanks to our @CureNETs partnership, we're enabling patients anywhere to donate living tissue for the derivation of neuroendocrine organoids to be shared broadly as a public resource. Watch video to learn more: https://t.co/HMZMB44wJd @meyersonlab @RareCancerRF @Pattern_org

[Pattern.org @Pattern_org]

This morning another ACC (Adenoid Cystic Carcinoma) tissue donation AND an Angiosarcoma sample were sent to
@broadinstitute!! #BeatCancer #CancerResearch @CureASC
@accrf_org @RareCancerRF

[Pattern.org @Pattern_org]

Visit https://t.co/MJ5vnSpfnv to see how you can help today! #CancerResearch #share

[Pattern.org @Pattern_org]

Great News! Today https://t.co/MJ5vnSpfnv delivered a Pheochromocytoma/Paraganglioma (PPGL) sample to @broadinstitute @PheoPara

[Pattern.org @Pattern_org]

Excited!! https://t.co/MJ5vnSpfnv delivered another fibrolamellar tissue sample to @broad today! So proud to be working with @FibroFoundation to create new cancer models!

[Kidney Cancer Canada @KidneyCancer_Ca]

We hear from Dr. Adrian Fairey as he answers “What surgical options do I have for treating a tumour?” in the KC Video Knowledge Library.

The library is a depository of hundreds of Q&A videos of #kidneycancer symptoms, diagnosis, and treatment options.

https://t.co/T4Gm63yM6p

[National Brain Tumor Society @NBTStweets]

ICYMI: Our Q3 quarterly report on new clinical trials that have opened/started or begun recruitment for patients in the U.S. with primary brain tumors (since the last report at the end of Q2) is now out:

https://t.co/Z2U716SvMa

[AIM at Melanoma Foundation @AIMatMelanoma]

The impact of partner support and comfort level in assisting #melanoma survivors with skin self-examination may be perceived differently by melanoma survivors and their partners, according to results of a study published in @Oncologynursing https://t.co/TGfMgHfady

[Pattern.org @Pattern_org]

@RMCAwareness Thank you for spreading the word!

[Pattern.org @Pattern_org]

How https://t.co/MJ5vnSpfnv works! If you or someone you know has an upcoming surgery visit https://t.co/12OmC4zKfu to learn how you can help rare cancer research. #share #CancerResearch

[hATTR hope starts with diagnosis @hATTRguide]

The earlier an accurate #hATTR #amyloidosis diagnosis can be determined, the better. #hATTRCompass offers free, confidential genetic testing to patients who have been diagnosed with #hATTR #amyloidosis with polyneuropathy and can be accessed by both patients and their physicians.

[AIM at Melanoma Foundation @AIMatMelanoma]

Registration Open For November Living With #Melanoma Symposiums at Mass General and University of Michigan Health Systems. Agenda and registration info:https://t.co/PZMxRBd9it

[National Cancer Institute @theNCI]

In all types of cancer, some of the body’s cells begin to divide without stopping and spread into surrounding tissues: https://t.co/BqkyvRkmsr

[Desmoid Tumor Research Foundation @DTRFoundation]

THANK YOU to our top DTRF @RunforAnswers fundraisers! Top Team: #TeamRachel; Top Individual: Rachel Sitta; Participation: #UnicornSquad; Top Virtual: Anna Gladstone. Thank you to ALL who fundraised for desmoid tumor research! Your fundraising pages are still accepting donations!

[Dear Dr. Researcher, PhD @corrie_painter]

It’s breast cancer awareness month, help us accelerate research be spreading awareness of our project in Metastatic Breast Cancer https://t.co/IBtO9DPjaa #mbcproject #CountMeIn

[RDLA @RareAdvocates]

THANK YOU to the nearly 600 #raredisease advocates who participated in #RareAcrossAmerica! YOU made the #rarevoice heard around the country this summer & the results show that your stories had a huge impact on Policymakers. See/celebrate your success here: https://t.co/0xssBK1ngu