Pattern is an initiative of the @RareCancerRF that empowers patients by enabling them to directly donate their cancer tissue/fluid and medical data to research.
ICYMI: Last night, the US House passed #PCHETA, a bill that would improve access to #PalliativeCare. Thanks to our advocates for sharing their stories and to the House for recognizing the importance of palliative care for brain tumor patients and families. On to the Senate! #btsm
The International Brain Tumour Alliance has been building bridges between brain tumour organisations across the world since 2005. Greater collaboration leads to greater knowledge which leads to greater hope. #internationalbraintumourawarenessweek2019#IBTAWeek#btsm
Researchers found that almost a third of adolescent and young adult cancer patients showed cognitive impairment. The largest group of patients in this study had #sarcoma. #AYAcancer#cancerbrain#cancercognitiveimpairment https://t.co/2jJxvTdfIw
Thanks to our @CureNETs partnership, we're enabling patients anywhere to donate living tissue for the derivation of neuroendocrine organoids to be shared broadly as a public resource. Watch video to learn more: https://t.co/HMZMB44wJd @meyersonlab @RareCancerRF@Pattern_org
Excited!! https://t.co/MJ5vnSpfnv delivered another fibrolamellar tissue sample to @broad today! So proud to be working with @FibroFoundation to create new cancer models!
We hear from Dr. Adrian Fairey as he answers “What surgical options do I have for treating a tumour?” in the KC Video Knowledge Library.
The library is a depository of hundreds of Q&A videos of #kidneycancer symptoms, diagnosis, and treatment options.
https://t.co/T4Gm63yM6p
ICYMI: Our Q3 quarterly report on new clinical trials that have opened/started or begun recruitment for patients in the U.S. with primary brain tumors (since the last report at the end of Q2) is now out:
https://t.co/Z2U716SvMa
The impact of partner support and comfort level in assisting #melanoma survivors with skin self-examination may be perceived differently by melanoma survivors and their partners, according to results of a study published in @Oncologynursing https://t.co/TGfMgHfady
How https://t.co/MJ5vnSpfnv works! If you or someone you know has an upcoming surgery visit https://t.co/12OmC4zKfu to learn how you can help rare cancer research. #share#CancerResearch
The earlier an accurate #hATTR#amyloidosis diagnosis can be determined, the better. #hATTRCompass offers free, confidential genetic testing to patients who have been diagnosed with #hATTR#amyloidosis with polyneuropathy and can be accessed by both patients and their physicians.
Registration Open For November Living With #Melanoma Symposiums at Mass General and University of Michigan Health Systems. Agenda and registration info:https://t.co/PZMxRBd9it
THANK YOU to our top DTRF @RunforAnswers fundraisers! Top Team: #TeamRachel; Top Individual: Rachel Sitta; Participation: #UnicornSquad; Top Virtual: Anna Gladstone. Thank you to ALL who fundraised for desmoid tumor research! Your fundraising pages are still accepting donations!
It’s breast cancer awareness month, help us accelerate research be spreading awareness of our project in Metastatic Breast Cancer https://t.co/IBtO9DPjaa #mbcproject#CountMeIn
THANK YOU to the nearly 600 #raredisease advocates who participated in #RareAcrossAmerica! YOU made the #rarevoice heard around the country this summer & the results show that your stories had a huge impact on Policymakers. See/celebrate your success here: https://t.co/0xssBK1ngu