Research Fellow in Statistics @CTRCardiffUni; @researchwales Next Steps Awardee; Rasch measurement theory, psychometrics, PROMs and Rheumatoid Arthritis
🌟 Announcing ESTEEM!
The ESTEEM trial is investigating if adding testosterone to HRT can reduce menopausal symptoms including confidence levels, mood and energy.
🔗 https://t.co/kP2IA8SJ7N
@ResearchWales@UKCTUNetwork@NIHRresearch@HywelDdaHB 🔬💡
We are delighted to announce that we are now collaborating with @proteuspros in order to share best #PROMs practice and learn from each other.
You can find out more about their work here: https://t.co/D0aL59V5fj
GET INVOLVED! Are you over 18, living in Wales with Inflammatory Arthritis? 🤔🏴
We are completing a survey to feedback on Welsh Rheumatology Services and the services IA patients receive. Take part here 👉 https://t.co/EZhoEIaA74
Looking forward to presenting parts of my PhD alongside my examiner Jon Evans @jon_evans_uk
Come along to find out all about current concepts of using PROMs to measure outcome.
Might be a bit geeky!
We’re proud to publish our annual report today.
A reflective look back on the last 12 months and a look forward to the future.
Read it on our website here https://t.co/8PsmBJ4asR
Great news! The PRISMA-COSMIN #ReportingGuideline for #SysReviews of outcome measurement instruments #OMI is now co-published in 4 leading journals! Kudos to Cathie Hoffsteter, Dorcas Beaton, and all co-authors for advancing the field. #PRISMACOSMIN https://t.co/t330K8GmnV
Do you have inflammatory arthritis?
Received your diagnosis since 2009?
We want to hear your experience of diagnosis at our informal in-person workshop in Cardiff on 25 June 2024.
For more info/register your interest in taking part, email: [email protected]
So proud of the opportunity to meet and speak with Baroness Cumberlege at the 8th National PROMs conference in Exeter about the @Appraise study and putting patients first in PROM development @RuthMacLeod20@MeshCampaign. Thank you @abuisman & @jon_evans_uk for this opportunity.
Delighted to share: Measuring Health-Related Quality of Life in Amyotrophic Lateral Sclerosis | Neurology https://t.co/Grguz8fZ2K Thanks to our collaborators who worked with us to finalise the framework. @profcjmcdermott@philapowell@mndassoc@SCHARRSheffield@alysgriffiths_
.@PicklesTim@ErnestChoy1@CTRCardiffUni@CUmedicengage are looking for people living with Rheumatoid Arthritis to complete a survey about a proposed weekly disease activity monitoring tool: https://t.co/gqpYSEZtN1
📊 We’re looking for input on a proposed weekly disease activity monitoring tool for RA.
Researchers based in Cardiff hope to develop this through future funded research for the PLAN-HERACLES study.
Please complete this survey by 30 June to take part https://t.co/OPzkDZQH9V
Only 15 more days until the 8th annual PROMs conference here in Exeter where we will be hosting an exciting day for academics, industry and NHS. Last day to register is THURSDAY 6th JUNE! https://t.co/CCldGKFVQ8
Are you a Welsh-speaker? Help the NHS by giving feedback on Welsh translations of PROMs (Patient Reported Outcome Measures).
Scan the QR code to sign-up or visit our website: https://t.co/rOBZxtBqt4
#PROMs
Thrilled to share the development of a new #PROM to measure the impact of #hypos on #HRQoL. Developed with people who experience hypos to ensure we measure what matters as part of @HypoResolve project. PROM is available now for use in research & clinical care. @DiabetologiaJnl