Georgina Jones

Professor of Health Psychology, Leeds Beckett University, UK. Speciality Chief Editor - Frontiers in Global Women's Health (Quality of Life Section).

[Danielle Musson @DanielleMusson4]

Interested or want further information? Contact [email protected]

Please share!!

@Profgljones @RodTMitchell @CFMyoungmen @drbobphillips @LymphomaAction @emctrust

[APPRAISE study @APPRAISE_study]

Have you had surgery for pelvic organ prolapse, stress urinary incontinence or mesh complications? Are you a UK adult aged 16+? We are recruiting women to complete a questionnaire about the impact of this surgery upon their quality of life: https://t.co/Lk5UrqLLC7

[Danielle Musson @DanielleMusson4]

We are recruiting adults with primary and secondary antibody deficiencies to provide feedback on our questionnaire! Please share ☺️ @ImmunoUK @Profgljones @TrishHolch

[Georgina Jones @Profgljones]

@DanielleMusson4 @Channel4News @victoriaefisher @KirstyBudds @psycenLBU Thank you @Channel4News for covering our research @EndometriosisUK @DanielleMusson4 @victoriaefisher @KirstyBudds @profskennedy and highlighting the impact of #endometriosis on quality of life. There is so much more to be done to better support those living with the condition.

[Georgina Jones @Profgljones]

It was lovely to see our PhD student @DanielleMusson4
present her systematic review as part of the development of a PROM for patients living with primary and secondary antibody deficiencies at the UK PROMs conference. Well done Danielle 😀 🌟! @TrishHolch @ImmunoUK @psycenLBU

[Georgina Jones @Profgljones]

So proud of the opportunity to meet and speak with Baroness Cumberlege at the 8th National PROMs conference in Exeter about the @Appraise study and putting patients first in PROM development @RuthMacLeod20 @MeshCampaign. Thank you @abuisman & @jon_evans_uk for this opportunity.

[Georgina Jones @Profgljones]

@FautMonica @Repro_Fertility @Elango1094 I'd agree @FautMonica but it's permissable to retrieve and use gametes in some countries e.g. some Australian states permit posthumous gamete retrieval because it's governed by the law on organ donation. But there is legal ambiguity and varied practice across the globe #RAFjc

[Georgina Jones @Profgljones]

@Repro_Fertility @FautMonica @Elango1094 This is an excellent article @Repro_Fertility @FautMonica and @Elango1094 - especially for considering the issues for same-sex couples and the more legal and regulatory complexities of this debate e.g. should gametes be taken from deceased people without their consent? #RAFjc

[Georgina Jones @Profgljones]

@FautMonica Sometimes it's argued that FP should not be offered to any #cancerpatient with a poor prognosis because any resultant child will be harmed by only having one parent. We @profdicanderson @am_folan @drbobphillips @ProfJonIves are not convinced by this. What do others think? #RAFjc

[Georgina Jones @Profgljones]

@Repro_Fertility @FautMonica In response to the second question about time, there will be inevitable time pressures. But, in my opinion 'time pressure' is not a valid reason for withholding the discussion and offer of FP treatment in #cancerpatients with a poor prognosis #RAFjc

[Georgina Jones @Profgljones]

@Repro_Fertility @FautMonica Interesting questions! In relation to the first question, some will and some won't. As capacity is person and decision specific though, it should not be assumed that all #cancerpatients with a poor prognosis are not capable of making autonomous, informed FP decisions #RAFJC.

[Georgina Jones @Profgljones]

@Repro_Fertility Yes #cancerpatients with a poor prognosis report benefits to pursuing #fertilitypreservation other than having a possible parenting experience e.g. the hope FP gives, fulfilling an imagined future, gifting, leaving a genetic legacy. Could there be other benefits though? #RAFjc

[Georgina Jones @Profgljones]

@Repro_Fertility @FautMonica @norahspears @horne_research @DrSAWilliams @RodTMitchell Fertility loss is very distressing to cancer patients but also to many others living without cancer. Thinking about fertility preservation, it is often argued that it is not a good use of scarce resources as fertility is a desire but not a need. What do others think? #RAFJC

[Georgina Jones @Profgljones]

@Repro_Fertility @FautMonica @norahspears @horne_research @DrSAWilliams @RodTMitchell Excited to see our paper @profdicanderson @drbobphillips @ProfJonIves @am_folan being discussed online. Should cancer patients with a poor prognosis be offered fertility preservation treatment? We think so, but it would be great to hear others views on this complex issue #RAFJC

[Georgina Jones @Profgljones]

@Repro_Fertility Yes, fertility loss is very distressing to cancer patients but also to many others living without cancer. Thinking about fertility preservation, it is often argued that it is not a useful use of scarce resources as fertility is a desire but not a need. What do others think?

[Reproduction and Fertility @Repro_Fertility]

⏰In just 24 hours we will be starting our journal club.

Join in but using #RAFjc

Read the article being discussed here: https://t.co/UldGHEmntq

@FautMonica @norahspears @horne_research @DrSAWilliams @RodTMitchell

[Georgina Jones @Profgljones]

@kieran_walshe So sad to hear that Ray has passed away. He was so kind and supportive to me when I was a postgraduate student and as my D.Phil internal examiner. He was a real inspiration and leader in the field of quality of life measurement and health outcome research. It's such a loss.

[Georgina Jones @Profgljones]

@wannabehawkeye Well done @dmbaker13 !! Such wonderful news and it is great to see your career progress the way it has 😀

[APPRAISE study @APPRAISE_study]

Thank you to everyone from Sling the Mesh interested in taking part in work package 2 of the APPRAISE study. We are delighted to have already received such an overwhelming response and support for the PROM. We will be responding to everyone 🩷 @MeshCampaign @SlingtheMeshNI

[Rod Mitchell @RodTMitchell]

🚨 We are looking for males (or their parent) who have had #ChildhoodCancer 🚨to help us design a new resource to help other young males to make decisions about their future #Fertility. If you are interested in joining the group please contact Carol using the details below 👇