Created to fund genetic testing for pediatric kidney disease. 2nd Annual BEANefit on May 18, 2017 at Harry's Savoy in Wilmington, DE! Register at our website!
@DrJAshton@GMA the price of the #cysticfibrosis is not bad compared to cost of other treatments, hospital stays and in-home care costs it can prevent. You’re SO right that insurance companies need to step up! Look at their profits and executive salaries. #RareDisease#advocates
Friday this boy was able to have genetic testing done to get answers thanks to our partnership with AI. So many sick children will get answers all because this one little girl got sick and… https://t.co/mM3Jo1XQwe
Timing couldn’t be better for this announcement. This month our mission of developing genetic testing for kids with kidney disease is officially accomplished!!! @AIDHC will be starting to test patients this month!!!! #genetics#kidneydisease