ex Purple Day España

Cualquiera con cerebro puede tener una crisis..Apoyando a personas con epilepsia

[ex Purple Day España @PurpleDaySpain]

Debido a problemas de salud, la fundación madre ha tomado la decisión de extinguir la Delegación en España y ya está en proceso. GRACIAS a todos por su apoyo y ayuda durante tantos años, las personas con epilepsia y familiares de personas con epilepsia lo agradecemos. 💜💟

[🏴󠁧󠁢󠁳󠁣󠁴󠁿Eva🏴󠁧󠁢󠁳󠁣󠁴󠁿 @EvaCCF]

Conoce la historia de Iskian..un niño con #POCS Ayúdanos a compartir 🙏🏻 necesitamos difundir,que se conozca el POCS, necesitamos investigación.. #EnfermedadesRaeas #ESES #SWASS @aneeas_pocs @fedeepilepsia @FEDER_ONG @SindromePOCS https://t.co/qSFsJeILvE

[LGS Foundation @LGS_Foundation]

Taking care of yourself is not selfish. It’s necessary.

The LGS Foundation has caregiver support resources, support groups, and community connections designed specifically for families navigating LGS.

Find them here: https://t.co/zkivuiZDRQ

[Vivir con Epilepsia @vivirepilepsia]

👉 Hasta un 10 % de las personas tendrá al menos una crisis epiléptica a lo largo de su vida. Tener una crisis no siempre significa tener epilepsia. 🧠

Entender esta diferencia es clave para dejar atrás el miedo y los prejuicios.

La #epilepsia es parte de la vida de muchos, pero el desconocimiento es lo que realmente nos frena. 💜

¿Nos ayudas a que este mensaje llegue más lejos? Deja un 💜 si tú también pides más visibilidad. #26M #PurpleDay

[Fedeepilepsia @fedeepilepsia]

💜 26 de marzo | Día Púrpura
Hoy nos unimos al #PurpleDay para visibilizar la epilepsia, que afecta a millones de personas en el mundo. Rompamos mitos, informemos y apoyemos a quienes conviven con esta condición. 💜

#Epilepsia #Concienciación #FedeEpilepsia

[LGS Foundation @LGS_Foundation]

April is Walk Month for Lennox-Gastaut Syndrome (LGS)! 💜

Whether you walk, host, fundraise, donate, or share, every action brings us closer to precision diagnoses, precision treatments, and whole-life care.

🔗 Learn More Ways To Get Involved Here: https://t.co/0m31tCuuJC

[Fedeepilepsia @fedeepilepsia]

Hoy alzamos la voz por los más de 50 millones de personas que conviven con #epilepsia.
Desde FEDE trabajamos para visibilizarla, combatir el estigma y acompañar a las familias.

Hablemos, comprendamos y avancemos juntos. 💜
#DíaInternacionalDeLaEpilepsia #FEDE

[LGS Foundation @LGS_Foundation]

💜 Today We Stand Together:
International LGS Awareness Day™ Is Here!

More than one million children and adults worldwide live with Lennox-Gastaut Syndrome (LGS). Today, we come together as a global community to shine a light on this complex form of epilepsy.

To every family navigating this journey: you are not alone.
To every advocate, researcher, and supporter: your voice matters.

Together, we're raising awareness, sharing stories, and taking action!

💜 Join Us Today:
- Wear purple and post using #LGSawareness #IlluminateForLGS
- Share your story and tag @lgsfoundation
- Illuminate your space in purple or green
- Create a fundraiser or donate to support research and families
- Spread the word with our free social media graphics

📢 NEW: Our first-ever Online Auction will be live TODAY at 12 pm ET through November 7th at 9 pm ET!
Bid on unique items and experiences to raise awareness, support, and research for LGS.

100% of proceeds support our mission to find better treatments and cures for LGS.

Let's illuminate the world for LGS today and every day! 💜💚

🔗 Learn more: https://t.co/TvDVtmxYIQ

✨Thank you to Jazz Pharmaceuticals, UCB USA, Assertio, Harmony Biosciences, Neurelis, and Lundbeck for being International LGS Awareness Day™ national sponsors ✨

#BiddingForHope #LGSFoundation #LennoxGastautSyndrome #LGSAwarenessDay #EpilepsyAwarenessMonth #LGSAwareness #onlineauction #TogetherForABreakthrough #IlluminateForLGS

[Pediatric Epilepsy Research Consortium @PERCepilepsy]

Thanks to a generous grant from PERF, we’re hiring for the part-time position of SIG Coordinator to support the SIGs’ critical work!

Please send your resume to [email protected] if you are interested!

[Pediatric Epilepsy Research Consortium @PERCepilepsy]

Pediatric SUDEP research is critical and the focus of one of our newest SIGs. Collaboration is the key to advancing pediatric epilepsy care and research, and PERC’s members collaborate here to advance research, clinical practice, and education related to pediatric SUDEP.

[Sandor Beniczky @SBeniczky]

Learn how to apply the updated ILAE #SEIZURE classification in clinical practice. This open access practical guide provides useful tips and many cases and videos to optimize educational output.
https://t.co/E0RLEYojlX
#epilepsy @yesILAE @EpiDisorders @FilaResearch @IlaeWeb

[LGS Foundation @LGS_Foundation]

We invite healthcare professionals to join our upcoming CME-certified webinar, a valuable opportunity to explore evidence-based strategies for managing patient care.

📅 Date: Thursday, October 9, 2025
⌚ Time: 6:00 PM ET / 5:00 PM CT / 3:00 PM PT

🔗 Register now to be part of the conversation: https://t.co/nRQiOtJblG

[San José del Parque @sjpmaristas]

Te gustaría formar parte del equipo de SJP?

Buscamos profesor TIC para secundaria y Bachillerato

Si estás interesando contacta con nosotros

[LGS Foundation @LGS_Foundation]

👉 FREE CME ACCREDITED HCP WEBINAR 👈

Earn up to 1.00 AMA PRA Category 1 Credit™ as you gain actionable strategies to:

✔️Improve diagnostic accuracy for LGS by recognizing diverse seizure types
✔️Integrate emerging therapies into individualized treatment plans
✔️Coordinate multidisciplinary care across pediatric and adult populations
✔️Support caregivers through diagnosis, treatment, and long-term care transitions

Help shape the future of LGS care by engaging in a collaborative learning experience spanning diagnosis, treatment, and long-term support.

✔️Fri. Sept 26 – 4:00 PM ET / 3:00 PM CT / 1:00 PM PT
✔️Wed. Oct 1 – 5:00 PM ET / 4:00 PM CT / 2:00 PM PT
✔️Thurs. Oct 9 – 6:00 PM ET / 5:00 PM CT / 3:00 PM PT

🔗 https://t.co/7K4MszjWwT 🔗

[LGS Foundation @LGS_Foundation]

Our Adults with LGS section is designed to guide families and caregivers through the transition to adulthood. No matter where you are in the process, we have tools to help you plan for what’s ahead.

👉 Explore now: https://t.co/I1xdl0E2aa

[LGS Foundation @LGS_Foundation]

📣 Limited number of scholarships for LGS healthcare providers to participate in a unique opportunity! Be part of shaping the future of LGS care.

Email us at [email protected] by June 16th for more information.

🔗 View Agenda & Learn More at https://t.co/dmxpXwNY1w

[LGS Foundation @LGS_Foundation]

Our Epilepsy Surgery page offers comprehensive information on various epilepsy surgeries to help individuals and families understand their options.

👉 Learn more at https://t.co/ZH84TgDqX1

#LennoxGastautSydrome #Epilepsy #EpilepsySurgery

[Epileptic Disorders @EpiDisorders]

Our podcast series by @giocastellucci & @SheikhISMD Breastfeeding while on treatment with ASM is out now! Take a listen at all 7 episodes, now available on major streaming platforms.
🔗 https://t.co/uZhR1vOea7

@AnphyLab @SBeniczky

[Sociedad Española de Neurología Pediátrica (SENEP) @senep_es]

🟠 @EPNSnews  Congress 2025
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🗓️ 8-12 julio
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