The RBCD Hub

🩸A space to connect about #SickleCellDisease, #Thalassemia, & other #RedBloodCellDisorders🌙 🌊|✨Official Blog of @UHN’s RBCD Clinic✨ | Stories that Matter 🗞

[The RBCD Hub @RBCDhub]

Introducing the RBCD Hub: An online space to connect about #SickleCellDisease, #Thalassemia, and other #RedBloodCellDisorders!

♥️🌙🩸

Official Blog of @UHN’s RBCD Clinic

Launched November 7, 2023 🚀

https://t.co/dfHtqI9eYT

[The RBCD Hub @RBCDhub]

Bethany’s 5 Tips for Dating as a Woman with #SickleCellDisease!

What are some of yours?

Self-love is first love 💕

https://t.co/cOTCbJjhvf

[University Health Network @UHN]

This week marks #CanadianPatientSafetyWeek.

UHN is advancing its patient safety journey beyond prevention of physical harm. #TeamUHN @chartierlucas speaks to importance of addressing emotional, cultural and community harm.

@HE_ES_Canada

Read more 👇 https://t.co/xvQ5uHrlir

[Jacob Pendergrast @apothecaryman]

Bittersweet day today @UHN as we said goodbye do Dr. John Aneke, who first came to Toronto from Lagos in 2017 as a hemoglobinopathy fellow and went on to become an invaluable member of our team. We’ll miss you, John, but know a successful career awaits @OttawaHospital 🙂👋

[The RBCD Hub @RBCDhub]

Representing Team RBCD @UHN at @CanHaem 2024!

@sinthusized, @scholarlyvans, and @CaptainAV

#sicklecelldisease #thalassemia

[Jacob Pendergrast @apothecaryman]

@CaptainAV (Kevin Kuo) presenting a very impressive overview of the research performed to date in the RBCD program @UHN. With ~2000 patients, one of the largest hemoglobinopathy programs in NA, there is tremendous opportunity here for discovery and innovation

[The RBCD Hub @RBCDhub]

@UHN @KevinSmithUHN @akeithstewart @pmcancercentre

[The RBCD Hub @RBCDhub]

Thalatta! Thalatta! Today is #ThalassemiaAwarenessDay! A day dedicated to increasing  awareness of #Thalassemia and supporting impacted peoples 🌊🩸❤️ 

https://t.co/RJ6f2CjN6s

[Jacob Pendergrast @apothecaryman]

Happy World Thalassemia Day!

I thought I knew a lot about this disease but James and Sinthu, from @UHN and @RBCDhub, stumped me with this trivia question: what Ancient Greek epic inspired the name of this diagnosis?

(Answer in reply)

[The RBCD Hub @RBCDhub]

🚨Publication Alert 🚨

‘Whiteout: A Social History of Sickle Cell Disease in Ontario, Canada’ ⚪️🩸🌙🇨🇦

https://t.co/kg4HkF9KDT

[The RBCD Hub @RBCDhub]

Did you know that, in Ontario, the Trillium Drug Program can help pay for medications?

💊

https://t.co/8HS9Nf1AK0

You can apply online!

https://t.co/aoTfoQ0kao

Learn more about resources for people with #SickleCellDisease, #Thalassemia, and other #RBCDs on the hub!

[The RBCD Hub @RBCDhub]

It��s the one year anniversary of the RBCD Hub — a space to connect about #SickleCellDisease, #Thalassemia, & other #RBCDs!

Catch up on our 30+ blogs on:

🤎 Mental Health
🤎 School, Work, & Finances
🤎 Counter-Storytelling
🤎 Anti-Racism & Disability

https://t.co/dfHtqI8H9l

[Sickle Cell Awareness Group of Ontario (SCAGO) @SCAGOSCD]

Thanks, Sinthu | @RBCDhub Sharing how we can navigate income support with #SickleCell in Ontario. Know your rights to work accommodations and access vital benefits.Let's demand a system that truly supports our community. #HealthEquity #OntarioDisabilitySupport #SCAGOSummit2023

[The RBCD Hub @RBCDhub]

We look forward to discussing financial resources for people with #SickleCellDisease at @SCAGOSCD’s 2023 Sickle Cell Summit!

[The RBCD Hub @RBCDhub]

Did you know that #ODSP provides medical transportation, employment start-up, drug coverage, and physiotherapy benefits?

Check out our blog on ODSP and how it can be helpful for people with #SickleCellDisease, #Thalassemia, and other RBCDs in Ontario!

https://t.co/Xb7HcpWb9z

[UHN Foundation @uhnfoundation]

In recognition of #SickleCellAwarenessMonth, hear from @UHN experts in the latest health talk discussing what sickle cell disease is, lived experiences with sickle cell disease, along with helpful resources for patients and families ➜ https://t.co/eMseg81iid

@UHNPatientExp

[Sickle Cell Awareness Group of Ontario (SCAGO) @SCAGOSCD]

Going back to school is stressful, and it can be especially stressful for people living with Sickle Cell Disease. Join Us on September 23 to hear these health care professionals share helpful tips on how to deal with this stress. Click the link in our bio to register.

[University Health Network @UHN]

September is #SickleCellAwarenessMonth in Canada!

This year, #UHN welcomed Karen Fleming, clinical nurse specialist and life-long sickle cell advocate whose goal is to help close the care gap for sickle cell patients in Black communities.

Read more → https://t.co/ugbveZJPCc

[The RBCD Hub @RBCDhub]

#InternationalStudents with #SickleCellDisease, #Thalassemia, and other #RedBloodCellDisorders may have unmet needs that span across health, academics, finances, and settlement.

✏️🏫🍎

Read about connecting to vital supports in our blog below! ⤵️
https://t.co/lhI7yBAjoL

[The RBCD Hub @RBCDhub]

Here’s a throwback to Bethany’s “Down with Capitalism!” for this #LabourDay weekend

Reflect on the complex relationships between #capitalism, #labour, and #SickleCellDisease by reading the blog post below! ⤵️

https://t.co/DUliG1ZLuS