I'd like to urge the federal government @GovCanHealth and Health Minister @PattyHajdu to please fast-track the approval process of such treatments so people hopefully don't have to live with this unforgivable disease and get a chance to spend more time with their loved ones.
Unlike other illnesses, ALS patients don't have the luxury of time to wait for potential life-saving drugs to be approved. My dad went from being perfectly healthy to his diagnosis in about a year & a half, & from his diagnosis to his final days on a hospital bed in only a month.
In Canada, there are currently only 2 approved treatments, Riluzole and Radicava, which can only slow down the progression of the disease and is not effective in every single patient. Radicava has only been available since 2020.
6 years ago on this day was my father's funeral. He died from ALS/Lou Gehrig's Disease.
Despite tens of millions of dollars and a lot of awareness being raised this past decade, there is still no cure or effective treatment for ALS.
Its my birthday, and @CartelMadras just announced their tour with @clppng . Lets celebrate. Here is a Kollywood mix of our single "GOONDA GOLD." Play this one live pls?
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Link : https://t.co/chOWwruBxR
‘Goonda Gold’ by @CartelMadras directed by @BhaveekMakan and Jashan Makan is a #PrismPrize Top 20 finalist! Congrats to the whole team including producers Tesh Guttikonda and @sumeetkumar.
Watch the video here: https://t.co/SDPCKkPHJp
Sadly can't make it to the Bonavista Film Festival 'cus domestic flights are WACK, but, if you're on the island, be sure to check "Lovely Mummers" out! July 6th! https://t.co/ojyiD4N24Y