Please spread the word about this online HMV patient support group! It's an ideal opportunity for HMV patients and their carers to talk about the treatment and the challenges it brings!
#addinglifetoyears
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Celebrate #WorldHMVDay with us today! Share the hashtag #HMVcareiskey to help us highlight the essential role that carers play in HMV users living their lives to the full. #addinglifetoyears#HMViP
https://t.co/LOehyckXYV
We are looking for healthcare professionals who work with people with #MND have cough and secretion issues to take part in online co-design workshops to develop a clinical tool to support practice.
Let us know if you would like to participate!
https://t.co/tvKzYXvobl
As a national group of MND healthcare professionals, patients and MND charities we have written to NICE requesting an urgent review of their decision about Tofersen. @NICEComms#MND@UKMNDRI@UK_mnd_CSG@mndassoc https://t.co/rrJ9mjce8h
Thank you to everyone who completed our survey 🙌🏼
We are looking for any #HCPs working with cough and secretion problems in #MND who would be willing to take part in focus groups.
Face to face and virtual dates available. See below for more info ⬇️
@mndresearch
More exciting job opportunities. 🚨 🚨
Clinical specialist (B7) working across a regional cardiology centre in Sheffield!
Come and join in our amazing, dynamic forward thinking teams!
@TheACPRC@STH_AHPs@SYB_ICS_AHPs@STH_AHPs
https://t.co/qAdua0gi46
Exciting job opportunities!! 🚨🚨🚨
Band 6 Physiotherapist working across Critical care, Surgical & Respiratory medicine areas in Sheffield.
Come and work in dynamic and forward thinking teams! Click on the link to Apply. @STH_AHPs@SYB_ICS_AHPs
https://t.co/c0XOAInGpO
We are still looking for healthcare professionals in the UK who care for people with #MND who have #cough and secretion issues?
Please fill in this survey to share your views via link or QR code.
https://t.co/Pqi0oOzmD4…
"I really believe that we need a film that talks about ableism head-on..."
Ahead of her new documentary airing @josierones shares why tackling discrimination against disabled people in society is so important.
Spread the word – tomorrow is the first-ever World HMV Day! If you or someone you know wants to learn about home mechanical ventilation, and how you can help improve awareness and equity of therapy, visit https://t.co/SYDPw6Hn0Z & share this post. #addinglifetoyears#WorldHMVDay
Really exciting to see #tofersen has been FDA approved in pwMND who have SOD-1 mutation. I was involved in the clinical trial and spent many hours with brave patients willing to have monthly lumbar punctures in the name of science. hard work and their generosity and bravery.. 1/n
The approval of Qalsody demonstrates that we are on the pathway to ending #MND#ALS. I am always full of admiration for those facing the challenges of living with MND who take on the additional burden of trial participation. Thank you. You make this happen. #united2endMND