Rosie Dean

🩺 Clinical Specialist Neuromuscular Respiratory Physiotherapist 🫁

[Alison Armstrong @AlisonArmstron]

Please spread the word about this online HMV patient support group! It's an ideal opportunity for HMV patients and their carers to talk about the treatment and the challenges it brings!
#addinglifetoyears
⬇️⬇️⬇️

[Home Mechanical Ventilation in Partnership @HMViPGroup]

Celebrate #WorldHMVDay with us today! Share the hashtag #HMVcareiskey to help us highlight the essential role that carers play in HMV users living their lives to the full. #addinglifetoyears #HMViP

https://t.co/LOehyckXYV

[Charlotte Massey @Char_Massey]

We are looking for healthcare professionals who work with people with #MND have cough and secretion issues to take part in online co-design workshops to develop a clinical tool to support practice.

Let us know if you would like to participate!

https://t.co/tvKzYXvobl

[Emily Mayberry (she/her) @ejmayberry]

📢 Recruitment is open in Sheffield, Cardiff and Vale, Oxford, and Leeds! 📢

[Esther Hobson @DrEstherHobson]

Do you or someone you know have MND and live in the UK? Please help us take part in our research to improve the way we support people experiencing emotional distress. @ejmayberry @profcjmcdermott @Char_Massey @PaulWicks @SYMNDA @neuroshef @SheffieldBRC

[Chris McDermott @profcjmcdermott]

As a national group of MND healthcare professionals, patients and MND charities we have written to NICE requesting an urgent review of their decision about Tofersen. @NICEComms #MND @UKMNDRI @UK_mnd_CSG @mndassoc https://t.co/rrJ9mjce8h

[Sheffield Hospitals Charity @SHCFundraising]

It’s 1st December. This is where Christmas really begins ✨

A few kind words can make a big difference 💙

Watch, like, share and get involved:

https://t.co/zQirJursWA

#SheffieldSaysThanks #SHC #PeteMckee #NHS #Christmas #SheffieldActually

[SiLVaH @SiLVaH_UK]

With that being the close of another successful #SiLVaH2023. A huge thank you to all the speakers, @janey3693 @helen_ashcroft, Claire Hogg @NHS_HomeVentEdi, @Drbenmesser, Guy and Amy Ward, @DrElliWilson and @ICUdocX.

[Charlotte Massey @Char_Massey]

Thank you to everyone who completed our survey 🙌🏼

We are looking for any #HCPs working with cough and secretion problems in #MND who would be willing to take part in focus groups.

Face to face and virtual dates available. See below for more info ⬇️

@mndresearch

[Sam Dean @SamDean80656889]

More exciting job opportunities. 🚨 🚨

Clinical specialist (B7) working across a regional cardiology centre in Sheffield!

Come and join in our amazing, dynamic forward thinking teams!
@TheACPRC @STH_AHPs @SYB_ICS_AHPs @STH_AHPs

https://t.co/qAdua0gi46

[Esther Hobson @DrEstherHobson]

Are you a clinical psychologist? Come work with in a fab team at the Sheffield MND care centre. @ejmayberry https://t.co/AfONMdMtmn

[Sam Dean @SamDean80656889]

Exciting job opportunities!! 🚨🚨🚨

Band 6 Physiotherapist working across Critical care, Surgical & Respiratory medicine areas in Sheffield.

Come and work in dynamic and forward thinking teams! Click on the link to Apply. @STH_AHPs @SYB_ICS_AHPs

https://t.co/c0XOAInGpO

[Esther Hobson @DrEstherHobson]

Looking for MND speech therapists, nurses, physios, doctors in the UK to help with a survey. Please share! https://t.co/4LoiEPYhA2

[Charlotte Massey @Char_Massey]

We are still looking for healthcare professionals in the UK who care for people with #MND who have #cough and secretion issues?

Please fill in this survey to share your views via link or QR code.

https://t.co/Pqi0oOzmD4…

[Charlotte Massey @Char_Massey]

⭐️Are you a healthcare professions in the UK who cares for people with #MND who have #cough and secretion issues? ⭐️

Please fill in this survey to share your views via link or QR code.

https://t.co/qOLTWdJjrG

@mndresearch @TheACPRC @ACPIN_UK @RCSLT @SiLVaH_UK @mndassoc @uk_hmv

[BAFTA @BAFTA]

"I really believe that we need a film that talks about ableism head-on..."

Ahead of her new documentary airing @josierones shares why tackling discrimination against disabled people in society is so important.

[Home Mechanical Ventilation in Partnership @HMViPGroup]

Spread the word – tomorrow is the first-ever World HMV Day! If you or someone you know wants to learn about home mechanical ventilation, and how you can help improve awareness and equity of therapy, visit https://t.co/SYDPw6Hn0Z & share this post. #addinglifetoyears #WorldHMVDay

[Rachael Moses @NHSRachaelM]

Thank you for including people on home ventilators in this advert @scope it’s such a tragic situation for people who cannot breathe without machines at home @BTSrespiratory @SiLVaH_UK @uk_hmv @AlisonArmstron @VerityFord1 @NickHartGSTT @EB_clinic @liam_campbell85 @Drbenmesser

[Esther Hobson @DrEstherHobson]

Really exciting to see #tofersen has been FDA approved in pwMND who have SOD-1 mutation. I was involved in the clinical trial and spent many hours with brave patients willing to have monthly lumbar punctures in the name of science. hard work and their generosity and bravery.. 1/n

[Chris McDermott @profcjmcdermott]

The approval of Qalsody demonstrates that we are on the pathway to ending #MND #ALS. I am always full of admiration for those facing the challenges of living with MND who take on the additional burden of trial participation. Thank you. You make this happen. #united2endMND