NHS Learning disability nurse working as part of @decodeproject2. Research Ambassador for @LPTnhs - Ask me about research 🙂. Strong Tea & Biscuit fan ☕️🍪
💡Icon of the Week: Airway Diseases
On World COPD Day, we’re highlighting that people with a learning disability are more likely to experience airway diseases, including COPD. Early diagnosis and support matter.
🔗 https://t.co/13f91Q10uu
#WorldCOPDDay#COPD#IconOfTheWeek
Introducing DECODE’s Icon of the Week!💡
Did you know 9 in 10 people with a learning disability have 2+ long-term health conditions - compared with 3 in 10 in the general population?💬Let’s raise awareness!
🔗View here https://t.co/fuz9RV1TnS
#IconOfTheWeek#HealthInequalities
Closing the day with words from Dr Satheesh Gangadharan 💬
“Most people see involving people with learning disabilities in research as a problem – but we have turned that around.”
A powerful way to end today’s event.
#InclusiveResearch#LearningDisability#PPI@lborouniversity
That’s a wrap on our conference: “Meaningfully involving people with learning disabilities in research”💜
Huge thanks to our speakers, PPI members & everyone who joined us today.
Your insights and lived experiences are what make DECODE possible.🙏
#InclusiveResearch
A brilliant end to Amy, Sarah & Heidi’s talk 👏
They shared a practical PPI toolkit for involving people with learning disabilities in health research.
Such an important resource for making research more inclusive.
#PPI#InclusiveResearch#LearningDisability
Great to hear from PPI co-leads Amy & Sarah & PPI member Heidi📢
They spoke about the challenges & opportunities in PPI health research, highlighting the importance of breaking down information, using pictures & making research truly inclusive.
#PPI#InclusiveResearch
‼️This is a terrifying possibility: by 2028 there may not be any newly qualified learning disability nurses‼️
If we lose this training, we lose expert advocates for some of the most vulnerable people in society. This is a crisis we can't afford to ignore. #LDNursingMatters
🌍 Social History of Learning Disabilities Conference – 10/06/25
History is not just something we study: it’s something we listen to, feel & carry forward into action.
Let’s keep challenging assumptions & centring voices that have too often been ignored #SHLD2025@DECODEproject2
@LPTNMAHPPres @DualNurse @LPTresearch 🎉Congratulations to Kelly for a great presentation today at #ACNAP2025 in France- @kellyabarber1 Great to see nursing research and @LPTnhs represented on the international stage.
Thank you to the learning disability carers, who've provided time to DECODE, as research participants and PPIE, to help us work towards change.
You've been amazing and we appreciate everything you've done. Raising my cup of tea to you in National Carers Week #CarersWeek2025
Do you want to help or advice getting a piece published in a professional newsletter or journal?
Come along to our informal virtual support session on Wed 11th June. All welcome!
Contact [email protected] for the link. @LPTresearch @LPTnhs @LPTNMAHPPres
💥 From Research to Reality💥
Insightful conference about current MLTC’s research, topics which are likely to affect us all.
@AmyWilkins_SLT and I got to contribute a human element amongst all the data.
And of coarse lovely to spend time with the @DECODEproject2 team.
‼️New Article‼️
Really proud to be a part of this article about the amazing PPI work undertaken in @DECODEproject2. A team effort led by @AmyWilkins_SLT.
Proud our work is adding to a small pool of similar evidence 🤩
https://t.co/aNnrrmTXF7
Spent some of this week with a fantastic group of people looking at how we can be research role models in the new @LPTnhs Research Ambassador role!
Thanks to the @LPTNMAHPPres for your support and guidance. This is going to be an AMAZING opportunity!
LPT clinicians have helped hospitals predict how long patients with learning disabilities will need inpatient care, which in turn may help them plan better and more personalised care.
The findings have been published in Frontiers in Digital Health. More: https://t.co/2B5H7BZwzV
1/3 💡New research from @lborouniversity into an artificial intelligence model could predict how long people with a learning disability are likely to stay in hospital.
👉Read more: https://t.co/QYfM8dBqzZ
🚨 Please read this fantastic work completed by DECODE researchers, so important to understand more about the health challenges that people with learning disabilities face 🚨
DECODE latest published research focused on predicting length of stay for patients with Learning Disabilities and multiple long-term conditions (MLTCs) for improving patient care and optimising medical resource allocation.https://t.co/8bhlPUmpJE @AIM_RSF@mencap_charity
👀 A brilliant new video where @DECODEproject2 researcher Ellie talks about her experiences of supporting people with learning disabilities in research and what this work has meant to her ❤️
DECODE researcher, Ellie Harvey, was invited to share her experience of co-designing research, for an ECR inclusive research guidance series. Well done Ellie, your enthusiasm and care for DECODE research shines through❤️@GDIHub@AIM_RSF@lborouniversity: https://t.co/ci4h0q003m