Who are the #actuallyautistic elders? The community leaders? The people who can influence? What is our community structure? Why has no one hyperfocussed the shit out of this? We need to skills share and share mutual aid and coregulate to survive.
@Learn_DoBetter@SophWilliams28@NeuroSurvivor Yes I appreciate the extra context. The partnering part is that the need has to be heard and validated and something needs doing, to prevent further dysregulation and escalation.
@AmyEBrown3@peaso19 Reframe: “what & who exists now” with a view to mapping the mycelium of existing experience, knowledge, “power”, skills, gaps, resources. Through our neurodivergent lens, there will still be folks doing the leading, by doing it first or doing it at all. Who are they?
@adamisafox @EChickentender This! What if we could self identify autists / neurodivergents who need support… right now I know a lot of folks who need help, and there’s lots of help out there, but the two sides can’t find each other.
@MegaliArkouda I can identify! Imagine a space where it was special interest focussed and there’s a tool for communicating what help you need and the group can then collectively redistribute tasks and resources. What exists now needs ‘mapping’ so it can be formed with intention.
@reesedixon That’s what I’m seeking. Where has it worked, where does it not work. Can it be acknowledged and shared so ‘new entrants’ (there’s a lot of us coming) feel grounded in the history, the reality of who already exists in the space. So the transition is not as clunky as I’m seeing.
@HammerUK9 My (undiagnosed) autistic child had constant car sickness as a baby, he hated the car seat. Still gets car sick at 9yrs. Lots of my very neurodivergent family do too.
@illcrydonttryme Just to be clear, it was a flippant joke at the time. I’m keen to get the picture of how things are, to understand, to document, to share, to adapt or tear down etc
Reminder of why #journalling is great for #rejectionsensitivitydisphoria coping:
Post meltdown, go back to the journal…
“We exist as a million versions in others heads… none of them are accurate.”
Inhale. I can tolerate being misunderstood. Exhale.
#ActuallyAutistic#RSD
@KatyElphinstone @AutisticNW No need to be sorry in the slightest!!! I only said in case I’m you went on a thread deep dive. Really no need, you’ve already been more than helpful. And I’m twittered out 🤯
@KatyElphinstone @AutisticNW Super! I’ve tweeted a few clarifications / expansions on what I meant by elders. Essentially tell me about people you rate with experience or solid opinions so I can assimilate more info pls :)
@essie_is_okay Absolutely not what I meant, and I truly hate that the same words can have so many different readings. I have spent way more time than I wanted to making sure that my intentions are clear, respecting elders and survivors matters to me very much.
@essie_is_okay I need to say this again. I did not tell Cal (who I had no context for at the time) that the work had not been done. I did not say that and I would not say that.
@essie_is_okay And I’m not angry either. But one sentence has been misread I’ve been put in Twitter stocks for an hour. I know it’s minor, it really is, I’m sorry that I didn’t stop replying to messages. Being misunderstood is naturally very difficult.
@essie_is_okay Because the meaning to me is the same. The words are different. I can’t control how my words are interpreted. And it was an off the cuff tweet. I had like 10 followers. I would have chosen my words different in a different context. But I haven’t said what you think I’ve said.