Raising Hope International Friends

A Sickle Cell advocacy group that is changing narratives about Sickle Cell disease, Access to Health Care, Behavior Change, Breaking SCD cycle in Uganda.

[Raising Hope International Friends @RaisingHopeInt2]

As part of Sickle Cell Awareness Month, we successfully held the 6th Sickle Cell Awareness 6-Aside Tournament — bringing together teams, partners, and the community to raise awareness, strengthen networks, and champion the fight against sickle cell disease. A big thank you to everyone who participated and supported this impactful initiative. @UMCVictoriaHosp @PharmacistsUg @Stabex_Ug @rckira1 @fortebet_uganda @Microhaem

[Raising Hope International Friends @RaisingHopeInt2]

As Uganda prepares to commemorate World Sickle Cell Day on 19th June in Jinja, the Ministry of Health Uganda, Joint Clinical Research Centre, Raising Hope International Friends, and other key stakeholders are intensifying preparations and community mobilization activities across the Busoga region — an area with a high burden of sickle cell disease.

Pre–World Sickle Cell Day community mobilization activities are already ongoing across the region, focusing on awareness creation, community engagement, screening, and patient support. We are proud to continue participating in these national efforts aimed at demystifying sickle cell disease, promoting early diagnosis and linkage to care, reducing stigma, and strengthening psychosocial support for individuals and families affected by the condition

Together, through partnership and collective action, we are creating hope and strengthening the fight against sickle cell disease in Uganda.

#WorldSickleCellDay2026
#JinjaCity #June19
#TogetherAgainstSickleCell
#SickleCellWarriors
#LinkageToCare
#HopeForSickleCell

[Raising Hope International Friends @RaisingHopeInt2]

A very happy birthday to our esteemed Executive Director @Isaacchamp1

[Global Sickle Cell Disease Network @GlobalSCDN]

We are pleased to announce that the 6th Global Congress on Sickle Cell Disease will take place in Montreal, Canada🇨🇦 from Aug. 31 to Sept. 3, 2027! 📅Save the date and stay tuned for more details! #SickleCellDisease #GlobalCongress #GSCDN

[Raising Hope International Friends @RaisingHopeInt2]

We wish you all a Happy #LabourDay!

[Raising Hope International Friends @RaisingHopeInt2]

When communities of practice come together, experiences are shared, knowledge is exchanged, networks are strengthened, and lasting solutions are built for the #SickleCellCommunity in Uganda and beyond.

Join us at the 5th #UASCC26 Convention. @terumobct
@jcrc_official1 @MSF_USA
@HemexHealth
@AgiosPharma
@AgiosMedical
@GHU_Official
@MinofHealthUG @cphluganda
@ben02ng @Microhaem @AARInsuranceU @NicosamHealth
@Prudential_np @JubileeInsUG @FnScientific

One story at a time.

#AdvocacyInActionNow
#SickleCellConvention
#HealthForAll #CommunityImpact #PartnershipsMatter #SickleCellWarriors #AwarenessToAction #GlobalSupportLocalmpact #HealthcareLeadership #TogetherWeCan

[Raising Hope International Friends @RaisingHopeInt2]

The future without sickle cell disease is possible. It begins with awareness and knowing your sickle cell status. When communities, schools, and families are informed, they are empowered to make choices that reduce new cases. Together, we can shift the narrative from crisis to prevention. Let’s raise our voices and end the sickle cell cycle.
#EndSickleCell #GenotypeMatters #CommunityHealth #AwarenessSavesLives

[Raising Hope International Friends @RaisingHopeInt2]

As the challenges around #SickleCell continue to rise, so must our response be stronger, bolder and unstoppable. These challenges push us to unlock our full potential, strengthen care systems, and improve livelihoods. Join us in Uganda to build a lasting resilience for future generations.

We invite participants, partners, and sponsors to join us in Uganda for the 5th Annual Uganda Sickle Cell Convention 2026 #AUSCC26, a dynamic platform for knowledge exchange, collaboration and building impactful networks to amplify more voices and drive change. @terumobct @FnScientific @HemexHealth @Microhaem @AbsaUganda @AgiosPharma
@GHU_Official
@SCINTFcameroon
@AgiosMedical
#SickleCellConvention2026
#SickleCellMatters
#EndSickleCell
#StrongerTogether

[Raising Hope International Friends @RaisingHopeInt2]

As part of our ongoing efforts to complement the Ministry of Health Uganda in strengthening quality healthcare delivery, RHIF conducted a two-day capacity-building training of Healthcare providers on sickle cell disease in Jinja District.

The training convened 58 healthcare providers (Doctors, Nurses, psychiatrist, public health dentist, clinical officers, lab technicians and technologists, )
from 14 health facilities across Jinja City and was officially graced by the District Health Officer and City Health Officer, reflecting strong government endorsement and alignment with national priorities.

The training was facilitated by Dr. Phillip Kasirye and Prof. Grace Ndeezi, the sessions covered comprehensive SCD care—from pathophysiology, diagnosis, and screening to clinical management, HCPs roles, ⁠referral systems and linkage to care, use of hydroxurea and management of acute and chronic complications. Practical case studies, psychosocial support and strategies to address stigma and mental health were emphasized.

The HCPs are now better equipped to apply standard treatment protocols, strengthen patient counseling, improve community linkages, and enhance continuity of care—contributing to improved outcomes for persons living with sickle cell disease.

We extend our sincere gratitude to the NNHF for supporting Sickle Cell Program in Uganda 🇺🇬.

[Raising Hope International Friends @RaisingHopeInt2]

Demystifying Sickle cell disease in schools. The campaign is ongoing. Join the fight today.

[Kevin's Gallery @onekasolo57460]

Today, we successfully conducted a Sickle Cell Screening and Awareness Campaign at Alkhamis Islamic Center, where over 400 students were screened & educated on the importance of knowing their sickle cell status.
#SickleCellAwareness #KnowYourStatus #Mukono @RaisingHopeInt2

[Raising Hope International Friends @RaisingHopeInt2]

Yesterday, our team conducted a sickle cell awareness and education session and screening services at Aisha Girls Primary and Secondary School, Bombo Kalule, in Luwero District. They had an engagement focused on demystifying sickle cell disease, promoting early screening, and strengthening understanding of prevention and care among students. Through interactive discussions with students, we're addressing common myths, reducing stigma and encouraging informed health-seeking behaviors. @GazaDirectAid

#SickleCellAwareness
#PublicHealth
#CommunityEngagement
#HealthEducation
#Luwero

[Raising Hope International Friends @RaisingHopeInt2]

We are pleased to announce the 5th Annual Uganda Sickle Cell Convention, scheduled for 3rd July 2026 at the Makerere University School of Public Health Auditorium.

Over the past four years, this convention has grown into a powerful platform for building a community of practice, strengthening networks, sharing best practices, learning from sickle cell warriors, and advancing policy dialogue.

We are excited to convene stakeholders once again to drive meaningful action in sickle cell prevention, care, and advocacy. @GlobalSCDN @GHU_Official @SabrinaKitaka @NicosamHealth
@HemexHealth @Stabex_Ug
@MSF_USA @MSF
@FnScientific
@AgiosMedical @cphluganda
@ben02ng @BillGates
@Microhaem
@terumobct
#SickleCellConvention
#SickleCellUganda
#PublicHealthUganda
#HealthAdvocacy
#EndSickleCell

[Raising Hope International Friends @RaisingHopeInt2]

From us all to you. Happy Easter Holidays .

[Raising Hope International Friends @RaisingHopeInt2]

@Isaacchamp1 @Microhaem Congratulations @Microhaem on this remarkable innovation. We are excited about this important milestone, which strengthens local capacity and advances the fight against sickle cell disease in Uganda.

[Raising Hope International Friends @RaisingHopeInt2]

As part of our ongoing efforts under the CONSA Project to trace and support families living with sickle cell disease and ensure continuity of care, last week, we conducted a refresher training for 34 Community Health Workers (CHWs).

The training equipped CHWs with essential knowledge, tools, and resources to effectively educate, counsel, and refer sickle cell cases within their communities. This is critical in ensuring that children living with sickle cell disease receive the comprehensive care they deserve. We appreciate the Community Health Workers play a vital role in strengthening awareness, early identification, and linkage to care, making them key pillars in improving health outcomes at the grassroots level.

It was an engaging and impactful session, marked by active participation and shared commitment to improving sickle cell care.

We extend our sincere gratitude to Andrew Zapfel, MPH, PMP and American Society of Hematology for supporting this impactful actvity in Uganda.

#SickleCellCare
#CommunityHealth
#CHWs
#HealthForAll
#UgandaHealth
#CONSAProject.

[Raising Hope International Friends @RaisingHopeInt2]

On 10th March 2016, we held an initiation meeting with Jinja health officials, Ministry of Health representative, the Director of Jinja Regional Referral Hospital, the Head of the Pediatric Department Jinja Referral, and project support teams to strengthen collaboration to improve the newborn screening program under CONSA.

Under the CONSA project, RHIF will support community-level interventions to trace children lost to follow-up, provide support to affected families to ensure continuity of care, and strengthen referral systems through targeted training of Community Health Workers.

We also aim to increase awareness of sickle cell disease and its management, ensuring that families are well-informed and supported. By equipping Community Health Workers with the necessary tools and skills, we hope to strengthen community-based care systems so that every child receives the attention and treatment they need.

We are grateful for the support of the American Society of Hematology Andrew Zapfel, MPH, PMP for this partnership, which seeks to drive meaningful impact and improve the quality of life for children living with sickle cell disease.
#SickleCellAwareness
#NewbornScreening
#CommunityHealth
#ChildHealth
#HealthcareImpact.
#CommunityHealth
#CHWs
#HealthForAll
#UgandaHealth
#CONSAProject.

[Raising Hope International Friends @RaisingHopeInt2]

Proud moment as our leader @Isaacchamp1 led the Sickle Cell Alliance Uganda delegate in a courtesy follow-up meeting with Rt. Hon. @AnitahAmong . We appreciate her commitment to champion the sickle cell cause, strengthen policies, increase funding, and improve care, awareness, and support for all persons living with sickle cell disease.

[Isaac Okello @Isaacchamp1]

As the President of the Sickle Cell Alliance Uganda, I led a delegation to pay a courtesy follow-up visit to Rt Hon Speaker @AnitahAmong who graciously granted us an audience to discuss the recent parliamentary motions on sickle cell disease.