A Sickle Cell advocacy group that is changing narratives about Sickle Cell disease, Access to Health Care, Behavior Change, Breaking SCD cycle in Uganda.
Strengthening Healthcare Systems—One Story, One Health Worker, One Community at a Time. 🩸❤️
Real change happens when we invest in the people and systems that save lives. In Iganga District, we are building a stronger future for sickle cell care by equipping health facilities and empowering frontline healthcare providers. @novonordiskfond@teamnovonordisk
#StrengtheningHealthSystems #SickleCellCare #NewbornScreening #EarlyDiagnosis #HealthWorkforce #CommunityHealth #IgangaDistrict #RHIF #LeaveNoChildBehind #UniversalHealthCoverage #BuildingHope
HAPPENING NOW | Marriott Hotel, Kampala 🇺🇬
Today, the @MinofHealthUG and partners are convening stakeholders to shape the future of sickle cell research in Uganda. The meeting covers the National Sickle Cell Disease Research Agenda and the official launch of the development of the National Sickle Cell Prevalence Survey Protocol.
Today's goals: 🔹 Agree on a research coordination mechanism, a roadmap and stakeholder commitments. 🔹 Launch development of the National SCD Prevalence Survey Protocol and Research Agenda, and set up the protocol development team 🔹 Identify and prioritize key research questions, including on other congenital and inherited conditions 🔹 Share the latest evidence on the burden of SCD in Uganda and honour the researchers who built it
Good data leads to better policy, and better policy leads to better lives for people living with sickle cell. 💛
#SickleCellUganda #SCDResearch #EndSickleCell #DataForHealth
🇺🇬 HAPPY INDEPENDENCE DAY, UGANDA
Today, we celebrate our nation's journey of freedom, unity, and progress.
At RHIF, we envision a Uganda where sickle cell disease is detected early, quality care is accessible, and every affected family receives support.
One nation. One hope. Healthier generations! @SCAUuganda@Dintonkay@Microhaem@MinofHealthUG@mtnug@DrAyumeCharles@ddunguh@Isaacchamp1
#UgandaAt64 #RHIF #RestoreAChildsHope #BridgingSickleCellGaps
Uganda’s independence reminds us that freedom also means freedom from stigma, discrimination, and preventable suffering.
Today, we celebrate the resilience of sickle cell warriors, the dedication of healthcare workers, and the commitment of advocates.
🚨 HAPPENING NOW IN JINJA!
Hundreds of boda boda cyclists are receiving reflective jackets in different parts of Jinja District as part of an initiative by Raising Hope International Friends (RHIF), in partnership with the Ministry of Health, under the CONSA Project.
The initiative aims to promote awareness and uptake of newborn screening for Sickle Cell Disease, while equipping boda boda riders to become visible community champions for early detection, referral, and access to care.
Together, we are taking the message of early screening and prevention closer to families and communities.
#RHIF #CONSA #SickleCellDisease #NewbornScreening #KnowYourStatus #Jinja #MinistryOfHealth #SickleCellAwareness
In response to ongoing threats to research, ASH has more than doubled its awards investment to nearly $50 million, supporting 3,500+ opportunities.
Research careers start here. Apply or share: https://t.co/Ado9gzgxjA
#ASHAwards#MedTwitter#Fight4Hematology
HAPPENING NOW at Blessed Family Church, Kajjansi!
We are taking the sickle cell awareness message beyond hospitals and into our churches and communities. Today the team is bringing FREE sickle cell screening, education and counselling closer to families. 💙
⏰ Don’t wait—come and get screened TODAY! Bring your family, invite your friends, and encourage someone you love to know their sickle cell status. Your few minutes today could make a difference for a lifetime.
Tell a friend to tell a friend! 📢
#SickleCellAwarenessMonth #KnowYourSickleCellStatus
💙⚽ A week later, the memories of SCAFOG are still fresh.
Today, we look back at the 3rd Edition of SCAFOG, a powerful day where football became a platform for Sickle Cell awareness, community engagement, screening and advocacy.
With over 16 organizations participating, the tournament demonstrated what is possible when communities, organizations and partners come together around a shared cause.
🏆 Carolyn Beddings Ltd took the crown!
🐐 And yes… the champions went home with a goat! 😂🏆
🏆 Carolyn Beddings Ltd — Champions
🥈 Rotary Club of Kira — 2nd Place
🥉 Pharmacure — 3rd Place
4️⃣ Direct Aid Society — 4th Place
Congratulations to every team that stepped onto the pitch, and thank you to everyone who supported the 3rd Edition of SCAFOG.
The football may be over, but the movement continues. 💙
#SCAFOG #SickleCellAwareness #SickleCellAdvocacy #RHIF #FootballForACause #BreakTheSickleCellCycle
Day 2 of our Medical Camp has come to a successful close as we proudly join the people of Busoga in celebrating the Coronation Anniversary of the Kyabazinga of Busoga Kingdom. ❤️💙
We are grateful to everyone who made this day possible and to the community members who turned up to access essential health services, including sickle cell screening and health education.
Together, we continue bringing healthcare closer to communities and creating hope, one family at a time.
#Busoga #Kyabazinga #SickleCellAwareness #CommunityHealth
WE ARE IN MAYUGE DISTRICT: Celebrating Busoga, Championing Health.
As the people of Busoga come together to celebrate the Coronation Anniversary of His Royal Majesty the Kyabazinga of Busoga, our team is in Mayuge bringing essential sickle cell services closer to the community.
We were deeply honoured to have the medical camp officially graced by Rt. Hon. Rukia Nakadama Isanga, 3rd Deputy Prime Minister of Uganda, who led by example by getting screened for sickle cell herself.
Her message was clear: knowing your genotype is an important step towards making informed health and reproductive decisions. She encouraged Basoga and all Ugandans to know their genotype and take charge of their health.
This FREE Sickle Cell Health Camp is proudly delivered in partnership with SADO – Smart African Village Development Consortium and Raising Hope International Friends (RHIF), providing:
Sickle cell screening
Drug refills and treatment support
Health education
Counselling and psychosocial support
Referral and linkage to care
As Mayuge comes alive for the Kyabazinga Coronation Anniversary, we are reminded that celebration and health can go hand in hand.
All is set for the Coronation celebrations of His Royal Majesty the Kyabazinga of Busoga!
👑 Long Live the Kyabazinga!
🩸 Know Your Genotype. Know Your Health. Protect Your Future.
#KyabazingaCoronation #Busoga #Mayuge #SickleCell #KnowYourGenotype #SADO #RaisingHope #HealthForAll #SickleCellAwareness #CommunityHealth #Uganda
Today, members of SCAU offered free Sickle cell disease counseling and screening services at the Makerere University Guild Council Medical Camp.
Together, we continue to promote early detection, awareness, and better care for people affected by SCD.
#KnowYourSickleCellStatus
As we celebrate September as Global Sickle Cell Awareness Month, advocacy and awareness efforts continue across country. Here in Uganda, Boda bodas are required to wear reflector jackets, so we took the initiative to mobilize 100 boda boda riders in Kampala and distribute reflector jackets carrying a clear message encouraging genotype screening.
The riders were excited and grateful for the support. To us, every boda boda is a moving billboard—taking the sickle cell message to communities, workplaces and homes, and reaching thousands of people along the way. We continue to appreciate NNHF for supporting this campaign in Uganda. #SickleCellAwareness #KnowYourGenotype #SickleCellUganda #HealthAdvocacy #CommunityEngagement #Uganda
Sickle cell disease is inherited, but knowing your genotype can help individuals and couples make informed health and family-planning decisions. We encourage everyone to get tested, learn their genotype, and share accurate information with family, friends, and community members.
Early diagnosis and proper care can improve the quality of life for people living with sickle cell disease. Let us challenge stigma, support affected families, promote regular medical care, and ensure that no one faces sickle cell disease alone.