Rare Opportunities

Rare Opportunities in Primary Care is committed to improving the quality of primary care for people living with rare diseases.

[National Organization for Rare Disorders (NORD) @RareDiseases]

Join #raredisease advocates in an effort to collectively move a total of 7K miles during the month of February in honor of #RareDiseaseDay! Learn more & sign up for the 7K Mile Rare Movement here: https://t.co/cnVRNMYqm8

[Carri Levy @dsproducer]

5000-6000 people in the US have Primary Periodic Paralysis Awareness - Go Behind the Mystery https://t.co/tgec84osT8

[Patient Worthy @PatientWorthy]

What You Need to Know About Primary Periodic Paralysis https://t.co/ca9dEMrgS5 #PrimaryPeriodicParalysis #Hyperkalemia #Hypokalemia @MDUK_News

[Amyloidosis @Amyloidosisfdn]

Some Symptoms of Wild-type ATTR #Amyloidosis. Visit our Website for Details: https://t.co/FRKahIDClF. #AmyloidosisAwareness #RareDisease

[Amyloidosis @Amyloidosisfdn]

Those with #amyloidosis, how long did it take you?@RareDiseases

[Cystic Fibrosis Foundation @CF_Foundation]

Help educate your family and friends on how #cysticfibrosis affects the lungs. RT this post. https://t.co/ub1iaPpFWM

[Cystic Fibrosis Foundation @CF_Foundation]

If you find #cysticfibrosis challenging to describe to others, this explainer may help: https://t.co/DmHq4zgSBq #CFawareness

[Cystic Fibrosis Foundation @CF_Foundation]

One week left until the first-ever CF MiniCon! Today on the blog, learn who will be speaking at the keynote event: https://t.co/1fUqSoUNMH

[Rare Opportunities @RarePrimaryCare]

#raredisease #primarycare #RareOpps #genetics

[Amyloidosis @Amyloidosisfdn]

Get the Facts about AL #Amyloidosis Here: https://t.co/8xBvcsXnkC. #RareDisease @NORD @RDLA @NPRHealth

[Rare Disease UK @rarediseaseuk]

Help us understand what #patients with musculoskeletal diseases want researchers to focus on: https://t.co/V2WFhTnkQ8 #raredisease #research

[Rare Disease UK @rarediseaseuk]

"We are not the majority, but we do exist. And we’re really, really hurting" - @rebeccah_zebra https://t.co/yNHwI3HvP1 #raredisease

[California Institute for Regenerative Medicine @CIRMnews]

Pioneering #stemcell #genetherapy from @UCLAstemcell cures infants with bubble baby disease. #SCID #raredisease https://t.co/ubwg3WCdkb

[Rare Genomics @RareGenomics]

Genomics promises a leap forward for #RareDisease diagnosis https://t.co/FRAkP20sZU

[Pasco County Schools Government Relations @pascoschoolsGR]

@RepGusBilirakis This #Pasco student needs your help. He has a #RareDisease & his insurance just denied coverage. https://t.co/z76fayAafr

[MDS Foundation @MDSFoundation]

#inspiration #inspirationalquotes #cancer #cancerquotes #hope #inspiration #bloodcancer #raredisease #bonemarrowtransplant #bonemarrow

[Rare Opportunities @RarePrimaryCare]

#RareDisease

[TrialVine @Trial_Vine]

Research is the key to bringing answers, hope, and new treatments to the 350 million people with #raredisease.
#RareDiseaseDay

[Astellas Pharma US @AstellasUS]

Did you know that for a disease to be considered a #raredisease, it must impact fewer than 200,000 people in the U.S.? #RareDiseaseDay

[Rare Opportunities @RarePrimaryCare]

#RareDiseaseDay in full effect