Rare Research

Research Project of @rarediseasessa

[Goolam @goolamv]

In a devastating blow to tourism to Durban, the non- profit company that test the water with eThekwini said that SAFETY AT DURBAN BEACHES CANNOT BE GUARANTEED
They released this urgent statement after disgraceful eThekwini mayor, Mxolisi Kaunda said Durban is safe and open for business. In essence the mayor lied. According to Adopt-a-Rivers Janet Simpkins the rivers in Durban are also extremely contaminated. Janet has been testing the water for the last 2 years together with independent lab Talbot. The waste water plants in Durban have all collapsed well before the floods. As a result raw sewage is pouring into the sea. The city has paid at least 3 different connected comrades millions but absolutely nothing was fixed. Basically the comrades stole the money. Recently the city asked UMngeni- uThukela to oversee the repairs. Some progress is at long last happening.
Mxolisi Kaunda together with his alliance partner The EFF have destroyed Durban.

[Rare Research @RareResearchSA]

Privileged to be attending the 49th Annual a meeting of the International Clearing House for Birth Defects Surveillance and Research (ICBDSR). Opened by the Chief Medical Officer of Malta.#ICBDSR2023

[Kelly du Plessis @kellyrare]

A year ago I made a promise to this family to fight for Zach like I would my own. I will not waiver in that promise. Schemes like @medihelpsa who continuously fail to recognise previous @CMSCares4u rulings into consideration need to be held accountable.

[Rare Research @RareResearchSA]

Regenerative medicines: A new regulatory paradigm for South Africa https://t.co/7xmmLRaZnF

[Rare Research @RareResearchSA]

The 3rd March 2022 is World Birth Defects Day (WBDD) - a day when we recognise birth defects and their impact on the world. WBDD began as an annual event in 2015 and has fast become a movement.

https://t.co/TWsJOTafa7

[Global Birth Defects @GlobalBirthDfx]

TODAY IS WORLD BIRTH DEFECTS DAY, JOIN US IN SHOWING SUPPORT FOR PREVENTING DEATHS AND IMPROVING LIVES AFFECTED BY BIRTH DEFECTS #WorldBDDay

[Rare Research @RareResearchSA]

The Africa Talent Programme (ATP) has been initiated by Wageningen University & Research to give top talents from Africa the opportunity to study towards a PhD or obtain a postdoc position at Wageningen University.

https://t.co/rmuhn6nqQf

[Rare Disease Day @rarediseaseday]

Everyone is invited to light or decorate their home with the Rare Disease Day colours at 7 PM your local time, 28 February 2022.

Don't forget to share your illuminations on social media and use #LightUpForRare

➡️ Find out how to get involved: https://t.co/S0PNzbafDo

[Rare Research @RareResearchSA]

RSTMH Early Careers Grants 2022 is now open for applications from early career researchers and global health professionals based anywhere in the world, who have not had research funding in their own name before.
Apply here: https://t.co/YlIydVcCZ5

[Rare Research @RareResearchSA]

@irdirc is proud to share with you a decade of its vision, goals, and highlight achievements summarized in this article published in @NatRevDrugDisc !
❗️The article is accessible for free for a limited time only❗️
Don't hesitate to share!
https://t.co/qJIOy74ppf

[eNCA @eNCA]

A new #COVID19 variant has been discovered in South Africa. The super-variant is said to have an extremely high number of mutations. The variant has also been found in Botswana and Hong Kong. Experts in South Africa say they don't know if vaccines work against the variant. #eNCA

[Rare Research @RareResearchSA]

We are trying to reach as many parents as possible (locally and abroad), especially those with kids that have a congenital condition. Any parent can complete the survey. It has received ethical approval and will only take 15 mins to complete.

https://t.co/Z0PN5beKjI

[Rare Research @RareResearchSA]

An article recently published alongside a UKZN Medical Student.
Dr Malherbe, we so appreciate having you on our team, and being able to tap into your incredible knowledge.

https://t.co/Iody4b8l2J

[Rare Diseases South Africa @rarediseasessa]

R2484.08 raised in June by simply swiping your @MySchool cards - THANK YOU ❤❤❤

Register for yours today at https://t.co/hbbrjlMCDb

RT to help us reach more amazing people like yourself.

[News24 🇿🇦 @News24]

As Gauteng hospitals struggle to cope with a record-breaking third wave of the pandemic, the CEO of South Africa’s largest private hospital group issued an urgent call that the province should be placed under Level 5 lockdown, with all schools closed.

https://t.co/B8fOKxr1ti

[Rare Diseases South Africa @rarediseasessa]

PLEASE register with @MySchoolSA & help us both win!!
You could be one of 10 winners that will win 10K for yourself and 10K to give to your chosen beneficiary (please pick us 🙏) by simply swiping your MySchool or linked Woolies card until 24 June 2021!!!

https://t.co/KlpgBzJWWy

[RareConnect @RareConnect]

What is the impact of living with a #raredisease? Or the impact of having a child or family member affected by one? There are already many stories on the RareConnect communities and we are keen to share more of your experiences to help reach out to and support more families.

[Rare Diseases South Africa @rarediseasessa]

Help make change-while you shop ☕
By signing up for a @MySchoolSA & selecting RDSA as a beneficiary, you can help us continue making positive change in the lives of others simply by doing your shopping at one of their affiliations.
There is NO cost to join & no hidden expenses.

[Rare Diseases South Africa @rarediseasessa]

#SmallChange makes #BIGdifference and whilst large donations are obviously very helpful, never underestimate the value of small monthly donations which all add up and literally change lives ❤

Join our #100Club (or more or less) by visiting here: https://t.co/9SvGvNmdZp