Ray Haddock

[Zdenek Vrozina @ZdenekVrozina]

A major new review from Yale (Moen, Baker, Iwasaki, 2025) offers the most comprehensive picture yet of what SARS-CoV-2 does to the nervous system.
The conclusion is stark:
Long COVID is a chronic neuroimmune disorder affecting brain, spinal cord, and peripheral nerves.🧵

[Sue [email protected] @inkblue01]

Covid infections + long duration of time = "Long Covid is now more common, or just as common as strokes." Dr Scott Arthur MP

[Matt McGorry @MattMcGorry]

Do you think that children in schools deserve to breathe clean air?

The following is a blueprint for how parents can make this more of a reality.

Long CVD is the #1 chronic health issue among children affecting 1 in 5 to 1 in 10 children…let’s protect them!

[Alpha-Kevin Thonhofer @AThonhofer]

Professor Chris Ponting, of the university’s Institute of Genetics and Cancer, said: “For so long people with ME/CFS have been told it’s all in their head. It’s not. We see [it] in their blood.
https://t.co/QfO6NkK4AA

[Ray Haddock @RayHaddock1]

https://t.co/5clMjH251A

[Ray Haddock @RayHaddock1]

https://t.co/5clMjH251A

[Vipin M. Vashishtha @vipintukur]

A significant discovery in the fight against #LongCovid!

➡️ Researchers have identified the epipharynx, a part of the pharynx, as a key site for chronic inflammation driven by residual SARS-CoV-2 RNA. 1/

[Ray Haddock @RayHaddock1]

https://t.co/vK1TtcnoOX

[Tobias @992tobias]

My story is in the news. I’m overwhelmed by the kindness, messages, and support. Thank you for reading, for sharing, and for making this invisible illness little more seen. I’m still deeply moved and endlessly grateful. #MECFS #ChronicIllness #LongCovid

https://t.co/ye1iqTiT3q

[Ray Haddock @RayHaddock1]

@GrandeBettina @kahryn_hoffmann #lukechartersmp

[Bettina Grande @GrandeBettina]

.@kahryn_hoffmann presents a model approach from Austria:
The new Reference Center for Post-Viral Syndromes is interdisciplinary, collaborative, and future-oriented.
A major achievement: an official off-label medication list for #MECFS is already available.
#MEAwarenessDay

[ME Foggy Dog @MEFoggyDog]

Evening Telegraph 1990.

Looks familiar doesn't it? The narrative remains the same.

NOTHING has changed.

#StillTheSame #MEAwarenessDay

[ME Foggy Dog @MEFoggyDog]

Nothing has changed.

WHY? @wesstreeting @Keir_Starmer

Inaction is unacceptable.

#StillTheSame #MEAwarenessDay

[Carole Bruce @CaroleBruce17]

Millions of us are missing. You won’t see most of us. You won’t hear most of us. Could you imagine if you caught a virus and never recovered? Drs dismissed you are could offer no help. Family and friends couldn’t understand why you weren’t the old you any longer.
#MEAwarenessDay

[Bettina Grande @GrandeBettina]

The Off-Label process in Germany? Slow & blocked by bureaucracy. While Austria already published a list for #MECFS , Germany remains stuck in cautious committees.
Asked about the difference, Bernhard Wörmann (Charité) said: “It’s an evidence and eminence system.”
#MEAwarenessDay

[ME Foggy Dog @MEFoggyDog]

This could have been written yesterday.

This is from 1993.

@StephenMorganMP - we need you to help push for social change. Less words more action please.

#StillTheSame #MEAwarenessDay

[Carly Welton @carlywelton]

This headline is the same age as me. Yet things are #StillTheSaME. I've been housebound and missing from my life for 5 years. Please #FundThePlan to help us get our lives back #MEAwarenessDay @AshleyDalton_MP @wesstreeting @leicesterliz @stephenctimms @JoPlattLeigh @DavidTaylor85

[Nth Cornish Convert @SaraGraybow]

Doctors and governments have known about ME for nearly 100 years - yet thanks to medical professionals and the state psychologising it, we are no further forward with treatments or cures #StillTheSaME #MEAwarenessDay
@AshleyDalton_MP
@wesstreeting
@JoPlattLeigh
@BenMaguireNC