Responsum for PF

Responsum for PF is a free patient platform designed to help patients take control of their health. Powered by @ResponsumHealth.

[Responsum for PF @ResponsumforPF]

Is feeling rested a challenge living with IPF? Columnist Tim Cox discusses his experience to help you sleep and feel better. https://t.co/Rvbfy0kIqp

[Boehringer Ingelheim @Boehringer]

We are collaborating with @SATTNord, @CNRS_HdF, @univ_paris_cite and @unipv to advance an innovative treatment called K1K1 into clinical development for the treatment of people living with pulmonary fibrosis.

Learn more: https://t.co/jpTCWesaEl

#IPF #ILD #ResearchAndDevelopment

[Pulmonary Fibrosis News @pulmonaryfibros]

Four years after Kim Fredrickson's passing, columnist Sam Kirton pays tribute to the late PF warrior and her legacy of compassion. https://t.co/kvXqFDWSMX #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #PFcommunity #pulmonaryfibrosisawareness

[Pulmonary Fibrosis Foundation @PFFORG]

Held at Liberty State Park, the PFF Walk - NYC Metro offers two course options – 1-mile or 5K – along a stunning waterfront pathway with views of Lady Liberty, Ellis Island, and the Manhattan skyline. Register now at https://t.co/7b01P8V8AP!

[Responsum for PF @ResponsumforPF]

An international research team has found new fibrosis-forming pathways that support further research into saracatinib as a possible IPF treatment. https://t.co/26K6EYh2IZ

[Responsum for PF @ResponsumforPF]

Raising awareness of rare diseases, and advocating for research, treatment, and care, can help ensure that no one gets left behind. #RareDiseaseDay https://t.co/p9iZFB2thp

[THE CPFF @THE_CPFF]

Today is #RareDiseaseDay

Help advocate for more equitable access to diagnosis, treatment, and support for PF patients.

People with a rare disease like pulmonary fibrosis need equitable access to healthcare.

Visit our campaign page: https://t.co/F335AtWwMh
#HopeBreathesHere

[Pulmonary Fibrosis Foundation @PFFORG]

Today is Rare Disease Day. Learn about how we're observing Rare Disease Day to raise awareness of pulmonary fibrosis at https://t.co/8jTSsmbqS2

[Responsum for PF @ResponsumforPF]

Cedars-Sinai researchers say that an everyday mineral has the potential to effectively treat idiopathic pulmonary fibrosis. https://t.co/6dXfnXhIcI

[Responsum for PF @ResponsumforPF]

Researchers at the University of Alabama at Birmingham offer hope to those with #IPF acute exacerbation through a potentially life-saving treatment approach. https://t.co/6dXfnXig2g

[Responsum for PF @ResponsumforPF]

Learn more about #PF and clinical trial involvement with new @PFFORG resources https://t.co/1Ty8y0z4kE

[Responsum for PF @ResponsumforPF]

"The researchers concluded that presumed Agent Orange exposure was related to greater IPF risk. They say further research is needed to validate this relationship and learn what’s causing it." https://t.co/NoxwaBTRAl

[Responsum for PF @ResponsumforPF]

Male Vietnam veterans diagnosed with IPF between 2010 and 2019 were identified from Veterans Health Administration data on 3.6 million such veterans.

[Responsum for PF @ResponsumforPF]

A large group of Vietnam veterans with presumed exposure to Agent Orange showed an increased risk of idiopathic pulmonary fibrosis, according to a recent study. https://t.co/NoxwaBTRAl

[Responsum for PF @ResponsumforPF]

A large group of Vietnam veterans with presumed exposure to Agent Orange showed an increased risk of idiopathic pulmonary fibrosis, according to a recent study. https://t.co/NoxwaBTRAl

[Pulmonary Fibrosis News @pulmonaryfibros]

Columnist Sam Kirton shares his experience with post-transplant dietary changes and provides resources to learn more. https://t.co/8FJkjgffez

#PF #pulmonaryfibrosis #IPF #livingwithpulmonaryfibrosis

[Responsum for PF @ResponsumforPF]

PFF has co-founded an industry-wide effort to identify new blood biomarkers specific to IPF with the goal of predicting which patients would benefit most from certain medications. https://t.co/CWjZADcY0P

[Responsum for PF @ResponsumforPF]

Having direction for dealing with the psychological impact of a serious illness is invaluable. In a webinar, the Pulmonary Fibrosis Foundation offered “A Roadmap for Coping.”https://t.co/tnbcMNaAfn

[Responsum for PF @ResponsumforPF]

People living with idiopathic pulmonary fibrosis often have other simultaneous conditions, or comorbidities, that worsen IPF’s negative impacts on life span, quality of life, and economic cost. #PFMonth https://t.co/wrJT1TaWeZ

[Responsum for PF @ResponsumforPF]

People may be more likely to be diagnosed with #PulmonaryFibrosis if they fall into any of these risk categories: https://t.co/QoSjY2ixEx

➡️Past or present smoker
➡️Family history of ILD
➡️60 years of age or older

[Responsum for PF @ResponsumforPF]

Stem cell therapy faces many challenges, but holds promise for regenerative medicine, testing new drugs, and ultimately finding a cure for PF. #PFMonth https://t.co/1nQpARoG9B