"Language about rare disease is a powerful—but underused—lever for change."
In a new Comment, authors call for a profound shift in how health-care providers use language within the rare disease ecosystem.
Find out more in our latest issue: https://t.co/BFju1eV7ay
RCN Position Statement on advanced nursing practice:
"Nurses working at an advanced level are not substitutes for any other profession. They are autonomous professionals."
https://t.co/Qo1CAxlQhZ
🔬 We know the effects of #PKU in children — but what about adults? Neuropsychological, emotional, metabolic, and social challenges persist… yet research remains limited.
🧠 It’s time to focus on adults with PKU. We need more studies — and more patients willing to take part.
🌟 Well done to our #BevanExemplars, the Welsh Digital Rare Care Centre team, who won the Excellence in Digital Health & Innovation award at last night’s #WelshHealthcareAwards!
The award recognises their work supporting people transitioning to adult care.
https://t.co/5OWihGHiOs
Congrats to our #BevanExemplars the Welsh Digital Rare Care Centre team who are finalists in the 2025 Welsh Healthcare Awards. Their work to help people transition to adult care has been shortlisted for the Excellence in Digital Health & Innovation Award. Awards announced Oct 16!
At @official_espku we strongly believe this document can make traveling especially by flaying ✈️stress - free. To get your copy all you have to do is contact a PKU Association in your country that is the E.S.PKU member.
“Listening is a tool for health equity, not just a soft skill”
Had a wonderful experience writing this piece that was commissioned for The Student BMJ by editor George Webster!
https://t.co/DrfNwqGA8B
Bullying is different from conflict. Conflict is a disagreement or argument in which both sides express their views. Bullying is negative behavior directed by someone exerting power and control over another person.
https://t.co/JqzxBKcHLx.