Rick O

[shitscaredmum @shitscaredmum]

#BNOS 3 yrs ago - still in shock from losing Laura & trying desperately to understand this vile disease that steals so many young people
#BNOS2025 & I’m proud to be part of the @ourbrainbankuk team -sharing our research project & fighting for more effective treatments
4Laura 🌈

[Rick O @RichardOrna]

@NICEComms Your methods should support delivery of crucial, life-extending treatments like Optune Tumour Treating Fields please

[Rick O @RichardOrna]

Policy number 991BHQ

[Rick O @RichardOrna]

You covered a crucial treatment for my brain cancer for two years @AvivaUK and suddenly pull the plug - why?

[Rick O @RichardOrna]

@shitscaredmum Doing as well as can be thank you Nic! Back on chemo as my MRIs look iffy, but all is ok 👍

[Rick O @RichardOrna]

@clairyhawk @AvivaUK They stopped covering Optune! According to the data - the best treatment there is! And they say it's 'experimental' = bonkers! Hope you're both well Claire

[Rick O @RichardOrna]

@astrazenecauk in the US, you have AZ&ME. I'm in the UK, have brain cancer and cannot afford Tagrisso, which could help with my EGFR amplification - please can you help me?

[shitscaredmum @shitscaredmum]

Thank you so much for supporting the Rare Cancers Bill today @JoshFG My daughter died from #glioblastoma so I'm passionate about the bill & was so moved by your speech, Alex sounded like the best brother & I'm deeply sorry, sibling loss is always underestimated.
#BeMoreLaura

[Rick O @RichardOrna]

@GenesisCare @PaulGearing1 In early 2023, Chris Herbert, smiling, told my wife and I that my GBM had progressed, stopped my TMZ and said I'd be dead within three months. He doesn't know what pseudoprogression is. He is an ignorant, heartless monster.

[Rick O @RichardOrna]

@shitscaredmum Yes!!!

[shitscaredmum @shitscaredmum]

The Rare Cancers Bill takes place in the House of Commons 14/3 – pls contact your MP & ask them to use their vote
We desperately need greater accountability, improvements to regulation & more clinical trials for 'rare' cancers.
Here's a letter template ...
https://t.co/1S2Vh9R6Mp

[Rick O @RichardOrna]

@shitscaredmum @GJBrainResearch You are NOT a broken record Nic - you are a glorious, essential symphony! Thank you for all that you are doing - please keep up the extraordinary work and let me know if I can help

[Rick O @RichardOrna]

@braintumourrsch @BBCBristol @bbc5live @shitscaredmum @brainstrust

[Rick O @RichardOrna]

In December 2022, I was diagnosed with brain cancer. To raise funds for my treatment and awareness of the need for better research and treatments, I'll be taking part in the Bristol 10k on Sunday 11th May - please support if you can https://t.co/iBGvzLZcpb https://t.co/jk72HwfqZK

[Rick O @RichardOrna]

@shitscaredmum @netflix I will keep well away then! All OK here thank you Nic - hope all is OK with you and family xxx

[Rick O @RichardOrna]

@ProfRAScolyer I hope this is pseudo-progression Richard - thinking of you and your family - take care

[Rick O @RichardOrna]

@shitscaredmum @GJBrainResearch @HamerlikB Unbelievable! How exciting! ❤️

[Rick O @RichardOrna]

@shitscaredmum Big hugs back to you all! A bit of fresh air does wonders - enjoy and take care 😊