Singing at the Top of My Lungs

Singing at the Top of My Lungs (SATML) • 501 (c)(3) nonprofit organization • Dedicated to empowering hospitalized children through music, art, and play.

[Singing at the Top of My Lungs @SATMLfoundation]

What song are you singing today? 🎵 🎶

#cysticfibrosis #cfawareness #curecf #musictherapy #childlifespecialist #cmnhospitals #childrenshospitals #unsungheroes #music #musicheals #chronicillness #creativearts #creativeartstherapy #childlife #musictherapist #musictherapystudent

[Singing at the Top of My Lungs @SATMLfoundation]

How "paw-esome" is this Child Life Specialist duo? Last week @UCDavisChildren's #ChildLife Specialist Kristen Cady welcomed Daniels to the Canine crew! SATML is proud to support Child Life programs in addition to supporting music and art therapy programs.

Photo: UC Davis Health

[Singing at the Top of My Lungs @SATMLfoundation]

Hello to our new followers! 😊👋 Did you know you can follow Singing at the Top of My Lungs (SATML) on other social media platforms to get your weekly dose of philanthropic positivity? We'll see you there! #musictherapy #childrenshospital #childrenshospital #musicheals #childlife

[Singing at the Top of My Lungs @SATMLfoundation]

Have you heard about @AkronChildrens Piano-a-thon? Donations made during the virtual marathon fundraiser benefit #MusicTherapy/Palliative Care programs of Akron Children’s Hospital. Bravo to all the piano students performing and all the donors giving to such an important cause!

[Singing at the Top of My Lungs @SATMLfoundation]

SATML shares the healing powers of music, art and play in several ways - and we were thrilled to be able to provide grants to help fund music therapy programs this year. Hit the "follow" button to stay up to date as we share updates from our grant recipients! #musictherapy #music

[Cystic Fibrosis Foundation @CF_Foundation]

The @US_FDA has approved the use of Trikafta for children with CF ages 6 - 11 who have at least one copy of the F508del mutation or one copy of certain mutations. With this approval, about 1,500 children are eligible for a modulator for the first time. https://t.co/WMWm9BLHg6

[Singing at the Top of My Lungs @SATMLfoundation]

Week 4 of Cystic Fibrosis Awareness Month • How to get involved in #CFAwareness?

1) #Advocate. Spread the word and inspire others to help make change
2) #Fundraise. Bake sales, entertainment events, and more to benefit CF research
3) Volunteer with a #CF related non-profit org!

[Singing at the Top of My Lungs @SATMLfoundation]

Week 3 of Cystic Fibrosis Awareness Month • Finding a cure for cystic fibrosis (CF)

Currently, there is no cure for #CF but with continuing support, advocacy, and intense scientific research and development, perhaps a cure is on the horizon. #CFAwarenessMonth #CureCF #CureFound

[Singing at the Top of My Lungs @SATMLfoundation]

Week 2 of Cystic Fibrosis Awareness Month • Treating cystic fibrosis (CF)

A variety of treatments are used to help combat the symptoms of #CF! @VertexPharma gene modulators, inhalers and HFCWO vests to open and clear airways, and enzymes with meals to help with digestion.

[Singing at the Top of My Lungs @SATMLfoundation]

Week 1 of #CFAwarenessMonth • What is cystic fibrosis (CF)? Cystic fibrosis is a progressive, genetic disease that can lead to lung infections and respiratory failure. Founder @itsjuliarae speaking on part of her experience growing up with #CF. Video created by @getwellnetwork.

[Cystic Fibrosis Foundation @CF_Foundation]

On #NationalNursesDay we want to give a big round of applause to all nurses who go above and beyond to provide the best possible care to their patients, but especially to members of the CF community. RT to show your appreciation!

[Singing at the Top of My Lungs @SATMLfoundation]

May is Cystic Fibrosis Awareness Month. Stay tuned as Singing at the Top of my Lungs does our part to bring awareness to the reality of this rare genetic disease. @CF_Foundation #CFAwarenessMonth #cysticfibrosis #curecf #fightcf #cfwarriors #chronicillness #raredisease

[Singing at the Top of My Lungs @SATMLfoundation]

We share the healing powers of music, art & play in part by supporting #ChildLife, but what does that mean? Child Life Specialists are educated and clinically trained to provide patients evidence-based interventions including therapeutic play & education to reduce fear & anxiety.

[Singing at the Top of My Lungs @SATMLfoundation]

@UCDavisChildren @CMNatUCDavis This is so wonderful!

[UCDavisChildrensHosp @UCDavisChildren]

Behold! Our MRI room has had a kid-friendly makeover. It now features calming beach scenes, underwater adventures and animals, funded by a @CMNatUCDavis grant https://t.co/gHj3hn6cvQ

[Singing at the Top of My Lungs @SATMLfoundation]

Happy #MotivationMonday! What will you accomplish this week?
🎤🎶
“Wake up, live your life and sing the melody of your soul” -Amit Ray, @sriamitray

[Singing at the Top of My Lungs @SATMLfoundation]

April 16th is World Voice Day! Today we celebrate the phenomenon of voice. We celebrate our voice by using it to help bring music therapy to hospitalized children across the country, and honoring patients and specialists. How do you celebrate your voice? Share below! #WVD @AAOHNS

[Julia Rae @itsjuliarae]

“#Cysticfibrosis takes my breath away with what they’ve done” - @ManganielloHCM @HCMStrat 🙌🏻We’ve come a long way & we’re here to get even closer to crossing that finish line. @VertexPharma @RareAdvocates #RareDisease #curecf #fightcf

[Fordham University @FordhamNYC]

Great story on Fordham alumna @itsjuliarae ---> Singing At The Top Of Her Lungs https://t.co/VGQxbg0B6I via @PillPack @dlblumberg #cysticfibrosis

[Deborah Lynn Blumberg @dlblumberg]

My latest for @PillPack magazine Folks about how @itsjuliarae hasn't let her cystic fibrosis stop her from from becoming a rising star in singing, acting, and pageantry. https://t.co/WwfQ5ksi0K #amwriting #freelancer #cysticfibrosis #diseases