SoulofaRebel

At the age of 13, I was diagnosed with #Type1Diabetes. Now in my 40s, read more about me and my trials and tribulations on my blog #T1D

[NHS Million @NHSMillion]

NHS staff are not failing, they are being failed

Please RT if you agree

[Partha S Kar 🇮🇳🇬🇧🏏🎥 @parthaskar]

Do you know what #T1Diabetes is?
Incessant
Unforgiving
Continuous

The daily glucose checks, the injections, the variables around it….

The least one can or should do as a clinician?

Help make it a bit more bearable and “easier” to live with

#ThursdayTip

[SoulofaRebel @SOAR_Ldn]

And now @harrow_council social services are playing games with my health and safety. Appreciate services are stretched but my life and survival matters. 😔
@harrowonline @Harrow_Times @myldn

[SoulofaRebel @SOAR_Ldn]

It's been a while. A lot has happened in the intervening time. The world has changed as have many things in my life. More on that later. But somethings never change!

[SoulofaRebel @SOAR_Ldn]

@rachmg2077 That's disgusting. Sorry this happened 😢

[SoulofaRebel @SOAR_Ldn]

@susan_pym Had the same problem with the generic mail ap on my phone. V annoying. Downloaded the yahoo mail ap and it seems to be working ok.

[SoulofaRebel @SOAR_Ldn]

@bvaarcher @UkFalck @ImperialNHS Sorry you had to go through this @bvaarcher - unfortunately webare by far not the only ones to experience such an awful service. #Falck really have no idea what impact they are having on vulnerable people.

[SoulofaRebel @SOAR_Ldn]

Dear @UkFalck why do your #patienttransport drivers choose to have personal conversations whilst driving patients? 1 driver talks to his wife & kids and adds 15 minutes to a already long journey because he missed the turning. @ImperialNHS #falck 1/

[SoulofaRebel @SOAR_Ldn]

@ImperialNHS @UkFalck If you look through your twitter comms (at minimum) you will see there have been on going issues and communication with various people at both @UkFalck and #Imperial.

[SoulofaRebel @SOAR_Ldn]

Yet again @UkFalck drivers show their complete disregard for patients. The attitude of the driver taking me home tonight left me feeling extremely vulnerable to the point I had to have my dad meet me at home to ensure my safety! @ImperialNHS when are things ever going to change?

[SoulofaRebel @SOAR_Ldn]

How many official complaints need to be submitted to @ImperialNHS about #Falck #patienttransport for the many serious failings? Think I'm on 8 now since June. Even talking directly to Craig Smith COO of @UkFalck has seemed to have made little difference.

[SoulofaRebel @SOAR_Ldn]

#Imperial & the COO of #Falck have both said that they agree that there are issues & training has/is being given - no evidence of this especially when much of it is subcontracted or zero hour drivers who come and go. Are they being given training too? @BBCHughPym @BBCLondonNews

[SoulofaRebel @SOAR_Ldn]

@UkFalck God help patients if their non urgent #PatientTransport so called service is anything to go by. Control in Milton Keynes don't have a clue. Drivers unhappy and untrained. And ultimately patients suffer.

[SoulofaRebel @SOAR_Ldn]

@UkFalck What about looking after your patients? And getting then to their appointments on time and home safely and on time?

[SoulofaRebel @SOAR_Ldn]

#NotMyPrimeMinister

[Susan Pym @susan_pym]

This is your current Prime Minister speaking.

[rachgbear @rachmg2077]

🤔 10 years ago go I would have been at my mum and dad's house recovering from my #kidneytransplant.... so much has changed since then #illness #Mobility #dialysis #heartvalvereplacement
What were you doing #10years ago?

[SoulofaRebel @SOAR_Ldn]

A big thank you to Shauna 🌟 - The transport quality manager at @ImperialNHS who helped return my rucksack I left in the #patienttransport vehicle that dropped me home last night. I was pretty stressed out yesterday after a long day appointments and #dialysis today.

[SoulofaRebel @SOAR_Ldn]

At least 14 patients waiting to go home at 7pm! Many finish #dialysis at 5:30pm. So much for the rule dialysis patients should only have to wait 30mins for transport home & be grouped together for coordinated travel. @ImperialNHS When is this mess called going to be sorted out?

[SoulofaRebel @SOAR_Ldn]

Once again a royal cock up by @FalackUk #patienttransport. Driver arrived around 5:30 p.m. I had 13 minutes left on #dialysis I got out 6pm. No driver in sight.
Waited 15mins. Spoke to the coordinator said the driver should be on their way up.
15mins later still waiting

[SoulofaRebel @SOAR_Ldn]

.@UkFalck always have sick and vulnerable patients waiting for extreme amounts of time. It's ok for them to keep us waiting but they can't wait a few mins for a patient.
I was eventually picked up at 7pm. As a #diabetic they are messing with my meal times and my health