SPIRE Network

SPIRE-Severe neurological imPairment in IREland; examining prevalence, healthcare utilisation and parental experience. Supported by CHI Research & Innovation

[Siobhán McCormack @siobhanmccorm]

Presenting our findings from evaluation and focus group on emergency care planning for children with Severe Neurological Impairment @CHIatTallaght @stephrkelly @Aoifemmahony @SPIREConcept #cpcc2024

[Siobhán McCormack @siobhanmccorm]

Highly Commended award for poster submitted on behalf of cross-site @CHI_Ireland study by Ciara Kinsella, Dr Annemarie Bennett @DieteticsTCD, @CharlotteEWils @aislingdunphy94 et al @SPIREConcept at #Cpcc2024 @cpcconf2024

[SIGPeP Paediatric Psychology @SIGPeP]

Next up we have Dr Charlotte E Wilson @CharlotteEWils @CHI_Ireland at the @SIGPeP symposium at the Annual Conference @PsychSocIreland #PSIConf23 #RettSyndrome #PaediatricPsychology

[Irish Academy of Childhood Disability @IrishDisability]

We are delighted and honoured to be have our bid accepted to host @EACDtweet in Galway, Ireland in 2026!!☘️☘️☘️☘️☘️☘️

[SPIRE Network @SPIREConcept]

Projects span Cerebral Palsy, Severe Neurological Impairment & complex care, neuromuscular, palliative care & Down Syndrome by @CharlotteEWils @joannebalfe @DeniseM05432245 @Aoifemmahony @EmmaCur38034017 @AedinCollins @stephrkelly @MaeveLedden @aislingdunphy94 & many others

[SPIRE Network @SPIREConcept]

Fantastic programme for #EACD2023 with an amazing 30 Irish studies and initiatives being presented across @CHI_Ireland @GalwayCMNHS @RCSI_Irl @TrinityMed1 @EnableIreland @centralremedial @LauraLynnHouse

[SPIRE Network @SPIREConcept]

Seed funding & support from the CHI Research & Innovation Office will have an enormous impact on the quality of our research, along with facilitating the establishment of our PPI “Family Faculty”. Delighted to be awarded the opportunity @CMRF_Crumlin @Temple_Street @CHIatTallaght

[Siobhán McCormack @siobhanmccorm]

Looking forward to the roll out of the Complex Care Summary and admission guide with further staff and parent feedback @MaeveLedden @DearbhlaHillick @aislingdunphy94 @CharlotteEWils @joannebalfe @SPIREConcept @ProgrammeSpark

[SPIRE Network @SPIREConcept]

@aislingdunphy94 @MaeveLedden @CharlotteEWils @CHIatTallaght

[SPIRE Network @SPIREConcept]

A common dataset will facilitate collaborative research and the development of evidence-based care pathways for children with severe neurological impairment #AACPDM22 @siobhanmccorm @joannebalfe @DeniseM05432245 @Aoifemmahony @AedinCollins @stephkelly36

[SPIRE Network @SPIREConcept]

Delighted to share initial dissemination from the SPIRE research programme at @aacpdm @CHIatTallaght @joannebalfe @DeniseM05432245 @siobhanmccorm @CharlotteEWils @stephkelly36 @aislingdunphy94 @MaeveLedden

[SPIRE Network @SPIREConcept]

Lots of child, parent and family-focused questions coming out in our survey to better understand needs of children with severe neurological impairment and their families. We would love to hear more. Please RT and click here for short anonymous survey: https://t.co/YZ34iPXRlX

[SPIRE Network @SPIREConcept]

@SIGPeP @Rachel_Fitzp this is really interesting and such an important area! Thanks @CharlotteEWils

[Spark Innovation Programme @ProgrammeSpark]

🙌🏻🙌🏻 Well done to team CHICC!!

[SPIRE Network @SPIREConcept]

We want to listen to the voice of carers and children living with severe neurological impairment to best understand their needs and improve care. Please RT @CarersIreland @irl_open @InclusionIre @DisabilityFed @centralremedial @EnableIreland

[SPIRE Network @SPIREConcept]

Do you parent, care for or support a child with Severe Neurological Impairment? We want to hear from you. Click here for an anonymous survey: https://t.co/GXQ08IeBfG

[A.McDonald @Aoifemmahony]

We want to learn how best to help care for the young people we see from those who know the most. Please help spread the word @IrwinGill @niamh_dr @IrishDisability @johnfitzsimons9 @CeoHardiman @NCHTallaght @Temple_Street @CHIatCrumlin @LauraLynnHouse @EnableIreland

[SPIRE Network @SPIREConcept]

Do you parent, care for or support a child with Severe Neurological Impairment? We want to hear from you. Click here for an anonymous survey: https://t.co/GXQ08IeBfG

[LauraLynn, Ireland's Children's Hospice @LauraLynnHouse]

The LauraLynn funded Scholarship in Children's Palliative Care, 'The McKenna Scholarship' call for applications closes on June 20th.

For more information and to apply, please visit: https://t.co/McHichWiEe

#LauraLynnChildrensHospice #ChildrensPalliativeCare

[Joanne Balfe @joannebalfe]

@suzie_guerin Information Webinar Wednesday May 18th at 1600h. email [email protected] or DM to register @LauraLynnHouse

[Suzie Guerin @suzie_guerin]

Great opportunity to conduct #funded #doctoral research in #children's #palliativecare