Sadie C

[Sadie C @SadieRC67]

@PaulMcCartney I don't know if any messages ever get to Paul, but my 13yr old is a huge fan, he eats & sleeps Paul music. He's learning various instruments and would love to get in to LIPA. I'd love if a message of encouragement could get through to Ollie Dale, he'd be amazed🤞

[Sadie C @SadieRC67]

@swastrosarah @ThisisMEtweety @MEAssociation @PhysiosForME I had steroid injections before for it and it helped. Point being I am being refused treatment because I am bed bound

[Sadie C @SadieRC67]

@swastrosarah @ThisisMEtweety @MEAssociation I understand, but I need help with other issues that have been neglected due to not being able to get to appointments, because I can't sit up. GP has refused to treat a frozen shoulder for example and I'm in extreme pain. It's all neglect

[Sadie C @SadieRC67]

@swastrosarah @ThisisMEtweety @MEAssociation I did contact 25% group, who told me there was no help in Scotland. But I will try and ask @MEAssociation for help.

[Sadie C @SadieRC67]

@ThisisMEtweety @swastrosarah @MEAssociation @actionforme I'm in Scotland, there's no clinics. Neurologist I spoke with said it's a severe CFS, I have severe pem etc. I have tried for 2 years to get official diagnosis

[Sadie C @SadieRC67]

@ThisisMEtweety @swastrosarah @MEAssociation Just checked @actionforme about an advocate but it says I need an official diagnosis. Recently went private and had phone consultation, he said I was severe but wouldn't diagnose me as I couldn't get to appointment. I'm bed bound!!!

[Sadie C @SadieRC67]

@ThisisMEtweety @swastrosarah @MEAssociation @actionforme I feel like I am going round in circles. Forced to call nhs24 because of pain, who said GP has to administer help, and they aren't helping. I can't believe people are left like this. Will try @MEAssociation

[Sadie C @SadieRC67]

@ThisisMEtweety @swastrosarah @MEAssociation No I don't have an advocate, any idea how I could find someone to help?

[Sadie C @SadieRC67]

@PhillippaHolla1 @swastrosarah I doubt she would listen to anyone, she is extremely closed off. How do I contact these people, could they help me in any way?

[Sadie C @SadieRC67]

@ThisisMEtweety @swastrosarah @MEAssociation I have had an OT, and a social worker came but the GP overuled them and there's nobody now. I have no advocate. Everyone said I need to be admitted to hospital but it's down to GP. I don't know what to do anymore

[Sadie C @SadieRC67]

@arisonsned @vijayiyer312 @HRB99531653 @LetsDoIt4ME That's what I have been told. But I don't have a choice, I can't walk now, and because they think I do have a choice they have washed their hands of me

[Sadie C @SadieRC67]

@AmeliaDearheart @arisonsned @LetsDoIt4ME I'm in Scotland, where there's no M.E. clinics or help seemingly

[Sadie C @SadieRC67]

@KH_VMD @swastrosarah Thank you, it means as much to me to be believed as it does to get help for everything that's going on. You've made me cry

[Sadie C @SadieRC67]

@Squashedhedgi @swastrosarah No, all I have had done is blood tests from home, because I keep being told if I can't sit up and get to appointments then I am stuck basically

[Sadie C @SadieRC67]

@swastrosarah I have no option, I have been stuck in bed 24/7 for 2 years. No help. Nobody believes what I am saying. They think I am choosing this

[Sadie C @SadieRC67]

@VerloreneZeit I agree. It's what to do about it ❤️

[Sadie C @SadieRC67]

@vijayiyer312 @HRB99531653 @arisonsned @LetsDoIt4ME Thanks. I noticed another piece titled Deconditioning does not explain OI in M.E. This is what's been put to me for 2 years. It's my fault because I have lay here and now I'm deconditioned. Nobody believes that something caused me to be unable to sit up in the first place.

[Sadie C @SadieRC67]

@HRB99531653 @arisonsned @LetsDoIt4ME Tried to complain but the practice shut me down and said they were a team and stood by each other. So she got away with it and more. That was only one episode dealing with that GP